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X-WR-CALNAME:The Tuberous Sclerosis Association
X-ORIGINAL-URL:https://tuberous-sclerosis.org
X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;VALUE=DATE:20220103
DTEND;VALUE=DATE:20231004
DTSTAMP:20261029T103540
CREATED:20211207T141455Z
LAST-MODIFIED:20220118T094557Z
UID:87478-1641168000-1696377599@tuberous-sclerosis.org
SUMMARY:Skydive
DESCRIPTION:Skydive anytime \n\nTake to the skies with us this year and experience the best views from 10\,000 feet in the ultimate adrenaline rush. It’s a once in a lifetime experience and we’d love to have you join us.  \nEvent details\n\nDates: Any date that suits you\nLocation: Across the UK\nRegistration fee: £70\nMinimum sponsorship: £395*\n\n* NB -Airfield costs can vary slightly and this can affect your minimum sponsorship amount required. \nOur skydive provider Skyline has airfields located across the UK. Once you’ve decided on your location\, simply pick a date that works for you and pay your £70 registration fee to join our brave team of skydivers. \n\n\nFAQs\nWhat’s it like?\nA tandem skydive is the easiest and most popular of all skydives. It requires only 30 minutes of training before you then jump strapped to your instructor! The BPA (British Parachute Association) qualified tandem instructor does all the hard work for you\, allowing you to enjoy the exhilarating feeling of flying through the clouds from over 10\,000 feet at up to 120 mph! It is a truly unforgettable experience. \nWhat does the jump involve?\n\nJump and training completed in one day\nHarnessed to an experienced parachute instructor at all times\nFreefall down to 5\,000 feet – falling through the air at 120 mph!\nLanding controlled by your instructor\nCertificate to prove that you have completed a ‘two-mile high’ Tandem Skydive!\n\nWhat COVID-19 safety measures are in place?\nIn accordance with government guidelines\, all Skyline operated airfields will have strict safety measures in place to protect everyone attending their sites. \n\nAre there any restrictions?\n\nTo take part in a skydive you must be aged 16 or above. \nYou’ll be required to sign a medical form before you jump declaring your fitness to take part – this will be sent to you once you have reserved a place. Pre-existing medical conditions don’t mean you won’t be able to take part\, but if you suffer from any of the conditions listed on the form you’ll need your doctor to agree it’s safe for you to take part. Your doctor will need to complete a separate form found here. \nEach airfield has its own maximum weight limit for taking part details con this can be found here. \nWhat’s included?\nYou’ll receive a welcome pack\, including an exclusive\, branded t-shirt to wear on the day as well as unlimited support from our events team. \nWhat is the cost?\nYou can raise money for the TSA and jump for FREE! All you need to do is raise a minimum of £395 for the TSA! \nThe £395 Minimum sponsorship then covers the refund of your deposit\, event costs and a small donation to the TSA. Any money raise in excess of the minimum amount comes direct to the TSA. \n\nWe ask you make it clear to anyone you ask for a donation that event cost will be subtracted from sponsorship money.  \n\nHow  do you book?\n\nClick BOOK NOW  and enter your details. Here you’ll need to select your airfield and a couple of dates you can do. If you aren’t sure of your closest airfield just take a look at the airfield map.\nThere’s a £70 deposit required to book in\, which you can choose to redeem from cash sponsors once you have reached the £395 target or pay this yourself.\nOnce you are booked you can start fundraising! Visit www.justgiving.co.uk/tuberous and create your fundraising page.  Once made\, tell everyone about your parachute challenge and why you’re supporting the TSA – share your story on social media\, emails\, cards\, letters and by phone! It all helps!\n\n\nHave your own place?\nIf you’ve already arranged and paid for your own skydive\, we’d still love to welcome you to our skydiving team. There’s no set fundraising target; we just ask that you raise what you can. Please contact the fundraising team using the details below. \nAny questions\nOur fundraising team is here for you! Just get in contact with us at fundraising@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/skydive/
LOCATION:Anywhere
CATEGORIES:Community Fundraising,Featured Events
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/08/tsa-t-shirt-Emily-Dyson-skydiving.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220424T000000
DTEND;TZID=Europe/London:20221009T235900
DTSTAMP:20261029T103540
CREATED:20220304T105434Z
LAST-MODIFIED:20220304T110903Z
UID:88876-1650758400-1665359940@tuberous-sclerosis.org
SUMMARY:The Kiltwalk
DESCRIPTION:Walk information\n\n\n\n\n\n\nBe a Kiltwalk hero in 2022 and join #TeamTSA ! Choose from The Mighty Stride\, The Big Stroll or The Wee Wander and all Kiltwalk fundraising for the TSA gets a massive 50% boost! Wear your tartan and join us! For the virtual Kiltwalk\, you can choose your own location and distance for a personal challenge. \n\n\n\n\n\nEvent dates\n\n\n\n\n\n\n\n\n\nClick on a title below to go to the event sign-up page. \n\nKiltwalk Glasgow 2022: 24 April 2022\nKiltwalk Aberdeen 2022:  29 May 2022\nKiltwalk Dundee 2022: 21 August 2022\nKiltwalk Edinburgh 2022: 18 September 2022\nKiltwalk Virtual 2022: 7 – 9 October 2022\n\n\n\n\n\n\n\n\n\n\n\n\n\nRegistration and fundraising options\n\n\n\n\n\n\nSign up at the Kiltwalk website and select Tuberous Sclerosis Association as your chosen charity. A JustGiving page is created for you – fundraise for us and an amazing 50% is added on by The Hunter Foundation. \nIf you raise £200 – the TSA will receive £300! \n\n\n\n\n\n\n\n\n\n\nWhy join #TeamTSA ?\n\n\n\n\n\n\nThrough the TSA\, the TSC community should never feel alone. Taking part in the Kiltwalk 2022 means you are part of the team helping to ensure everyone affected by TSC in the UK has the help for today and hope for the future. \nAlong the way\, we will support you with training tips\, a TSA t shirt\, fundraising advice and one-to-one support: cheering you on every step of the way. \n\n\n\n\n\nBook a place\n\n\n\n\n\n\n\n\n\nFor full details of prices and to sign up\, visit the Kiltwalk website. \n\n\n\n\n\nContact us for details on TSA Places available – fundraising@tuberous-sclerosis.org
URL:https://tuberous-sclerosis.org/event/the-kiltwalk/
LOCATION:Multiple venues
CATEGORIES:Community Fundraising,Featured Events,Swimming
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/Support-Us.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220601
DTEND;VALUE=DATE:20220701
DTSTAMP:20261029T103540
CREATED:20220530T110246Z
LAST-MODIFIED:20220530T110932Z
UID:89753-1654041600-1656633599@tuberous-sclerosis.org
SUMMARY:TSC Clinics Virtual Challenge
DESCRIPTION:
URL:https://tuberous-sclerosis.org/event/tsc_cvc/
LOCATION:Anywhere
CATEGORIES:Community Fundraising,Featured Events
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Untitled-design-8.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220610
DTEND;VALUE=DATE:20220619
DTSTAMP:20261029T103540
CREATED:20191022T103018Z
LAST-MODIFIED:20211207T160239Z
UID:10989-1654819200-1655596799@tuberous-sclerosis.org
SUMMARY:Great Swim Series
DESCRIPTION:Great Swim\nWith events in Windermere and Alton Waters and distances to suit all levels and abilities you can enjoy a weekend in the great outdoors with friends and family. Take your pick from 250 metres\, 1/2 a mile\, 1 mile\, 2 miles\, 5k or a 10k… \n\n\n\n\n\nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n                 \n \n                        About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n			\n				\n				Yes\n			\n			\n				\n				No- not yet!\n			About youName\n                            \n                            \n                                                    \n                                                    First\n                                                \n                            \n                            \n                                                    \n                                                    Last\n                                                \n                            \n                        Address    \n                    \n                         \n                                        \n                                        Street Address\n                                    \n                                        \n                                        Address Line 2\n                                    \n                                    \n                                    City\n                                 \n                                    \n                                    Postcode\n                                \n                    \n                Date of birth\n                            \n                            MM slash DD slash YYYY\n                        \n                        Email*\n                            \n                        Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n			\n				\n				Yes\n			\n			\n				\n				No\n			Keeping in touch*\n						\n						Select All\n					\n								\n								I am happy to be contacted by email\n							\n								\n								I am happy to be contacted by post\n							\n								\n								I am happy to be contacted by phone\n							\n								\n								I am happy to be contacted by SMS\n							By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n          \n            \n            \n            \n            \n            \n            \n            \n            \n            \n        \n                        Δ\n \n                        Close\n\n\n\n\n\n\n\n\n\n\n\n\n\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on JustGiving.
URL:https://tuberous-sclerosis.org/event/great-swim-series/
CATEGORIES:Swimming
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/great-swim-e1571742403664.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220611
DTEND;VALUE=DATE:20220612
DTSTAMP:20261029T103540
CREATED:20211207T151923Z
LAST-MODIFIED:20211207T151932Z
UID:87957-1654905600-1654991999@tuberous-sclerosis.org
SUMMARY:Nightrider London
DESCRIPTION:This event is delivered by TSA charity partners Skyline Promotions\, the TSA acts only the benefitting charity from any sponsorship raised.  \nEvent Overview\nNightrider is a fun\, exciting charity cycle ride where you can see London under the moonlit night sky\, cycling past iconic landmarks and through historic streets with 50 or 100km route options to choose from. \nThe first ever Nightrider took place in 2010 on the streets of London with 300 cyclists and since then has gained tremendous success with over 21\,000 participants having taken up the challenge to date. \n\nEvent Details\n\n\n\nWhen: Saturday 11 June 2022\nWhere: London\nDistance: 50 km / 100km\nRegistration fee: £55\nMinimum sponsorship: £150 \n\n\nBook your place\n\n\nPlease click the link below for full event details\, terms and conditions and to book your place. \n\n\nBook your Night Ride
URL:https://tuberous-sclerosis.org/event/nightriderlondon/
LOCATION:London
CATEGORIES:Cycling
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/3a2c41ef-9479-440a-af6b-ee80f5d70c03_Copy-of-Skydivings-Back-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220612
DTEND;VALUE=DATE:20220613
DTSTAMP:20261029T103540
CREATED:20190930T191517Z
LAST-MODIFIED:20211207T154814Z
UID:8583-1654992000-1655078399@tuberous-sclerosis.org
SUMMARY:Hull Half
DESCRIPTION:Hull Half Marathon\nThe Hull Half Marathon is a fantastic addition to the region’s running calendar\, staged on the same day as the  Hull 10K. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know what you’re doing so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n                 \n \n                        About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n			\n				\n				Yes\n			\n			\n				\n				No- not yet!\n			About youName\n                            \n                            \n                                                    \n                                                    First\n                                                \n                            \n                            \n                                                    \n                                                    Last\n                                                \n                            \n                        Address    \n                    \n                         \n                                        \n                                        Street Address\n                                    \n                                        \n                                        Address Line 2\n                                    \n                                    \n                                    City\n                                 \n                                    \n                                    Postcode\n                                \n                    \n                Date of birth\n                            \n                            MM slash DD slash YYYY\n                        \n                        Email*\n                            \n                        Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n			\n				\n				Yes\n			\n			\n				\n				No\n			Keeping in touch*\n						\n						Select All\n					\n								\n								I am happy to be contacted by email\n							\n								\n								I am happy to be contacted by post\n							\n								\n								I am happy to be contacted by phone\n							\n								\n								I am happy to be contacted by SMS\n							By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n          \n            \n            \n            \n            \n            \n            \n            \n            \n            \n        \n                        Δ\n \n                        \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.
URL:https://tuberous-sclerosis.org/event/hull-half-2/
CATEGORIES:Half Marathon
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/hull-half-shaped-2-e1571730601295.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220612
DTEND;VALUE=DATE:20220613
DTSTAMP:20261029T103540
CREATED:20190930T191517Z
LAST-MODIFIED:20211207T154652Z
UID:8584-1654992000-1655078399@tuberous-sclerosis.org
SUMMARY:Hull 10k
DESCRIPTION:Hull 10k\nIt will be the 11th running of this fantastic event\, which was launched in 2010 and showcases the very best this vibrant East Riding city has to offer. With a flat route making it suitable for both Novice and seasoned runners alike\, it’s easy to see why it has grown into one of the region’s most popular 10Ks. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n                 \n \n                        About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n			\n				\n				Yes\n			\n			\n				\n				No- not yet!\n			About youName\n                            \n                            \n                                                    \n                                                    First\n                                                \n                            \n                            \n                                                    \n                                                    Last\n                                                \n                            \n                        Address    \n                    \n                         \n                                        \n                                        Street Address\n                                    \n                                        \n                                        Address Line 2\n                                    \n                                    \n                                    City\n                                 \n                                    \n                                    Postcode\n                                \n                    \n                Date of birth\n                            \n                            MM slash DD slash YYYY\n                        \n                        Email*\n                            \n                        Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n			\n				\n				Yes\n			\n			\n				\n				No\n			Keeping in touch*\n						\n						Select All\n					\n								\n								I am happy to be contacted by email\n							\n								\n								I am happy to be contacted by post\n							\n								\n								I am happy to be contacted by phone\n							\n								\n								I am happy to be contacted by SMS\n							By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.\n          \n            \n            \n            \n            \n            \n            \n            \n            \n            \n        \n                        Δ\n \n                        \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.
URL:https://tuberous-sclerosis.org/event/hull-10k-2/
CATEGORIES:10k
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/10k-fam.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220615T180000
DTEND;TZID=Europe/London:20220615T190000
DTSTAMP:20261029T103540
CREATED:20220304T122306Z
LAST-MODIFIED:20220304T122306Z
UID:88893-1655316000-1655319600@tuberous-sclerosis.org
SUMMARY:Cardiff TSC clinic update 2022
DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 15 June\, 6pm – 7pm\, the TSA welcomes clinicians from the Cardiff TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm 15 June).
URL:https://tuberous-sclerosis.org/event/cardiff-tsc-clinic-update-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/cardiff-clinic-update-2021.png
END:VEVENT
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