BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Tuberous Sclerosis Association - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Tuberous Sclerosis Association X-ORIGINAL-URL:https://tuberous-sclerosis.org X-WR-CALDESC:Events for The Tuberous Sclerosis Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20180325T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20181028T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20190331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20191027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20201211T183000 DTEND;TZID=Europe/London:20201211T193000 DTSTAMP:20260928T174434 CREATED:20201201T145114Z LAST-MODIFIED:20201201T145618Z UID:41681-1607711400-1607715000@tuberous-sclerosis.org SUMMARY:Christmas 'Book at bedtime' with Sir David Suchet CBE DESCRIPTION:Start your preparation for Christmas with a magical reading of ‘The Night Before Christmas’\n \nGather around\, put on your Christmas jumper or PJs and get comfy. We have a very special festive treat for all of you\, as world-renowned actor Sir David Suchet CBE reads the traditional poem ‘The Night Before Christmas’ for the TSC community! \nFamilies\, individuals\, little ones and grandchildren alike – this gift is for everyone\, and gives us all the chance to come together virtually in the festive spirit\, as Sir David’s reading is premiered. We’ll also try to squeeze in time to sing a couple of festive favourites before saying ‘Goodnight\, sleep tight!’ and ‘only 14 sleeps until Christmas!’ \nWe’ll also have time for some singalong Christmas carols\, to get you into the festive mood. \nTickets are free and will be available until 4pm on Friday 11 December. URL:https://tuberous-sclerosis.org/event/nightbeforexmas/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/12/suchet3.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201205T130000 DTEND;TZID=Europe/London:20201205T153000 DTSTAMP:20260928T174434 CREATED:20201030T112129Z LAST-MODIFIED:20201030T112129Z UID:28980-1607173200-1607182200@tuberous-sclerosis.org SUMMARY:Virtual Outlook Festive Special DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is looking festive!\nWith the TSC community facing a festive season when it will be difficult to meet with loved ones\, the TSA is delighted to organise a festive edition of Outlook\, the TSA group for adults mildly affected by TSC. \nWhether you’ve been to Outlook before or if it’s your first time\, come along to meet with others virtually through Zoom on Saturday 5 December\, 1pm – 3:30pm for some festive cheer and to connect with others in the TSC community. \nThe fantastic agenda for our festive Outlook special: \n\n1pm – 1:05pm\, Welcome and introductions\n1:05pm – 1:20pm\, Update from the TSA\n1:20pm – 2pm\, Christmas quiz\n2pm – 2:10pm\, Break\n2:10pm – 3pm\, Group discussion: Keeping connected and safe over winter\n3pm – 3:15pm: Christmas carols\n3:15pm – 3:30pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 11am Saturday 5 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible. URL:https://tuberous-sclerosis.org/event/virtual-outlook-festive-special/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/10/Outlook-christmas.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201126T180000 DTEND;TZID=Europe/London:20201126T190000 DTSTAMP:20260928T174434 CREATED:20201028T104442Z LAST-MODIFIED:20201102T160606Z UID:28368-1606413600-1606417200@tuberous-sclerosis.org SUMMARY:TSA Annual General Meeting 2020 DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2020 will take place Thursday 26 November\, 6pm – 7pm. The AGM will take place virtually this year to keep everyone safe and well. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you. \nTo attend the AGM 2020\, please register your place below. Tickets will be available until 4pm on Thursday 26 November. \nTSA AGM 2020 materials can be read here: \n\nAGM 2020 Trustees letter\nAGM 2020 Notice\nImpact Report 2019 (including the latest Treasurer’s Report\, Strategic Report\, the 2019 Summarised Statement of Financial Activities and the Balance Sheet for 2019) URL:https://tuberous-sclerosis.org/event/agm2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201125T180000 DTEND;TZID=Europe/London:20201125T190000 DTSTAMP:20260928T174434 CREATED:20201103T143015Z LAST-MODIFIED:20201125T155833Z UID:30629-1606327200-1606330800@tuberous-sclerosis.org SUMMARY:Latest TSC research update: COVID-19\, LAM\, renal and TAND DESCRIPTION:Are you interested in finding out about the latest discoveries in TSC research?\nThe TSA and St George’s University Hospitals are proud to be hosting ‘Latest TSC research update: COVID-19\, LAM\, renal and TAND‘ on 25 November. Chaired by Dr Frances Elmslie (Consultant Clinical Geneticist\, St George’s University Hospitals and TSA Trustee)\, the event will see Professor Julian Sampson (Professor of Medical Genetics\, Cardiff University) unpick the latest research and discoveries of TSC\, explaining what the findings could mean for the TSC community’s day-to-day lives. \nJoin the free event to find more about things such as TSC in relation to: \n\nCOVID-19\nLymphangioleiomyomatosis (LAM).\nKidney/renal function\nTSC-Associated Neuropsychiatric Disorders (TAND)\n\nTickets (free to all) will be available until 4pm on 25 November. URL:https://tuberous-sclerosis.org/event/research-update-nov20/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/11/researchnov20-2.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20201004 DTEND;VALUE=DATE:20201005 DTSTAMP:20260928T174434 CREATED:20190930T191505Z LAST-MODIFIED:20200813T142933Z UID:8568-1601769600-1601855999@tuberous-sclerosis.org SUMMARY:London Marathon 2020 - Cancelled DESCRIPTION:London Marathon 2020 (Sunday 4 October 2020)\nDue to Covid-19 restriction the postponed event has now been cancelled.\nThe #TeamTSA runners will have their places deferred to one of the next 3 London Marathon events. We would like to thank our runner for their amazing efforts in training and fundraising to date. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose URL:https://tuberous-sclerosis.org/event/london-marathon-2020-2/ LOCATION:London CATEGORIES:Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/donate-by-easy-fundraising.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200914 DTEND;VALUE=DATE:20200921 DTSTAMP:20260928T174434 CREATED:20191003T163828Z LAST-MODIFIED:20210603T080323Z UID:8923-1600041600-1600646399@tuberous-sclerosis.org SUMMARY:Jeans for Genes 2020 DESCRIPTION:Jeans for Genes\nJeans for Genes Day is an annual fundraising campaign by Genetic Disorders UK\, the national charity that supports individuals and families affected by genetic disorders.\nThe Tuberous Sclerosis Association (TSA) are a proud partner of Genetic Disorders UK\, meaning that you can get involved in Jeans for Genes and help raise funds and awareness to support people affected by Tuberous Sclerosis Complex (TSC)! \nWhat is Jeans for Genes Day?\nBetween Monday 14 – Sunday 20 September 2020\, thousands of people around the UK help raise funds for people affected by genetic disorders by asking schools\, workplaces or community groups to wear jeans for the week. \nIf you get involved on behalf of the TSA\, half of the proceeds that you raise will go to the TSA!* \n*Jeans for Genes Day is a fundraising initiative organised by the UK Genetic Disorders Partnership Network. We are a member of the Partnership\, so if you organise for your school or workplace to hold a Jeans for Genes day and they haven’t held one in the last three years\, the Tuberous Sclerosis Association receives 50% of the money raised. It’s as simple as that! \nHow to register for Jeans for Genes and raise money for people living with TSC\nTo ensure that the Tuberous Sclerosis Association receives 50% of the money you raise\, just follow these three simple instructions: \n\nSign-up and order your fundraising pack from the Jeans for Genes website here\nFill in the free fundraising pack form on the Jeans for Genes website\nFor the question “Are you affiliated to one of our partners?” choose the Tuberous Sclerosis Association from the drop-down menu.\n\nThis ensures that the TSA and Jeans for Genes know that you want to fundraise for us! \nOnce you’ve collected those fantastic funds\, just send them back to Jeans for Genes and they’ll take it from there. \nRemember to let us know about your fundraising\nDon’t forget to tell us about your brilliant Jeans for Genes event\, so that our fundraising team can help to support you. Either email fundraising@tuberous-sclerosis.org or ring the team on 0300 222 5737 URL:https://tuberous-sclerosis.org/event/jeans-for-genes-2020/ CATEGORIES:Community Fundraising,Featured Events ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/J4G-BOX-e1571743313228.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200913 DTEND;VALUE=DATE:20200914 DTSTAMP:20260928T174434 CREATED:20190930T191505Z LAST-MODIFIED:20200804T141745Z UID:8569-1599955200-1600041599@tuberous-sclerosis.org SUMMARY:Virtual Great North Run 2020 DESCRIPTION:Virtual Great North Run 2020 (Sunday 13 September)\nWhile everyone can’t gather together to run the famous 13.1 mile route\, you can still ‘Be Your Greatest’ and support people living with TSC. \nThe Virtual Great North Run is a free to enter half marathon challenge. There’s no minimum sponsorship pledge\, we simply ask you to raise what you can. \nWith their partners ViRACE\, the Great North Run organisers are creating an app to bring you an innovative virtual experience with audio clips from the event so that you will hear the sounds of the Great North Run. From an upbeat warm-up led by the legendary Roy Gayle\, to chants of OGGY OGGY OGGY\, and the iconic roar of the Red Arrows fly-past\, they are making it feel as much like the real event as we can! \nThe event will mimic a race format so that all runners start their Virtual Great North Run at the same time on 13 September 2020 and complete the same 13.1 mile distance. Runners will be tracked throughout the virtual race and will be able to view results after the race has finished. \nTo register please visit : https://www.greatrun.org/great-north-run URL:https://tuberous-sclerosis.org/event/great-north-run-2020-2/ LOCATION:Anywhere CATEGORIES:Featured Events,Half Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/GNR_Virtual_FacebookGraphic4-thumbnail.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200912T130000 DTEND;TZID=Europe/London:20200912T153000 DTSTAMP:20260928T174434 CREATED:20200902T093442Z LAST-MODIFIED:20200902T094000Z UID:22501-1599915600-1599924600@tuberous-sclerosis.org SUMMARY:Northern Ireland Get Together Virtual Meeting 2020 DESCRIPTION:Sign up below for your free tickets to the first ever virtual Northern Ireland Get Together!\nThis year’s Northern Ireland Get Together is going virtual! Join us on Saturday 12 September 1pm – 3pm via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Northern Ireland. \nWhat you can expect at the Northern Ireland Get Together 2020 \n\nIssues important to those living in Northern Ireland and affected by TSC\nA look at the impact that covid-19 has had on TSC-affected families in Northern Ireland\nOpportunities to speak to the Belfast TSC Clinic about what matters to you\nThe chance to get to know your fellow Northern Ireland community\n\nRegister for the event below and get ready for a great day. Tickets will be available until 11am Saturday 12 September. URL:https://tuberous-sclerosis.org/event/northern-ireland-get-together-2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/09/PSNI_Map_Northern_Ireland3.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200815 DTEND;VALUE=DATE:20200817 DTSTAMP:20260928T174434 CREATED:20190930T191506Z LAST-MODIFIED:20200804T115703Z UID:8570-1597449600-1597622399@tuberous-sclerosis.org SUMMARY:Virtual MyRideLondon DESCRIPTION:My RideLondon (15 -16 August 2020)\nJoin the nationwide virtual challenge\, My Prudential RideLondon\, and be part of the world’s greatest festival of cycling. Choose your distance\, plan your route and get cycling! \nSo RideCardiff\, RideManchester\, RideRoundThePark…..the opportunities are endless! \nMy RideLondon is your chance to get on your bike – or scooter\, skateboard\, trike\, tandem\, penny farthing\, roller skates\, unicycle – and take part in the world’s greatest festival of cycling\, wherever you live and with whoever you like – family\, friends or by yourself. It’s your ride\, your way\, for the TSA! \nVisit myridelondon.co.uk to register \,choose your distance and set up a fundraising page for the TSA. Then before the event weekend of 15 and 16 August\, you’ll be able to download the My Prudential RideLondon app – from here you can track and log your ride. \nYou are invited to complete one (or more!) of four challenges over the weekend: 19 miles for riders in search of a challenge\, 46 miles for riders who want to push the boundaries\, a more taxing 100 miles for those who want to go all-out or the distance of your choice at My Prudential RideLondon FreeCycle. \nTo get involved please visit : https://myridelondon.co.uk/  \nThe event is free to enter and there is no minimum sponsorship pledge\, we simply ask you to raise what you can. URL:https://tuberous-sclerosis.org/event/ride-100-2/ LOCATION:Anywhere CATEGORIES:Cycling,Featured Events ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/Prudentail-My-Ride-London_Email-Banner-600x400-thumbnail.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200729T180000 DTEND;TZID=Europe/London:20200729T190000 DTSTAMP:20260928T174434 CREATED:20200720T144730Z LAST-MODIFIED:20200720T150122Z UID:22154-1596045600-1596049200@tuberous-sclerosis.org SUMMARY:Virtual session: Young people\, epilepsy and the 'new normal' DESCRIPTION:Are you a parent\, carer or guardian of a young person who lives with TSC-related epilepsy?\nJoin the TSA’s virtual session ‘Epilepsy\, young people and the ‘new normal” on Wednesday 29 July at 6pm\, where we are delighted to be welcoming Lisa O’Brien (Head of Health\, Young Epilepsy) to discuss epilepsy-related key issues for young people as lockdown and shielding begin to ease. \nTopics to be covered include: \n\nAccessing medicine and clinical support as we transition to the ‘new normal’\nHow stress can impact on seizures and how it might be possible to help manage this\nKey issues and strategies for young people living with epilepsy as we enter the ‘new normal’\nA refresher on ‘Key things to remember’ about being out and about and living with epilepsy\n\nTickets will be available until 4pm on 29 July. URL:https://tuberous-sclerosis.org/event/epilepsy-transition/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/07/ye5.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200725T130000 DTEND;TZID=Europe/London:20200725T153000 DTSTAMP:20260928T174434 CREATED:20200703T135111Z LAST-MODIFIED:20200722T102329Z UID:22001-1595682000-1595691000@tuberous-sclerosis.org SUMMARY:Scottish Get Together virtual meeting 2020 DESCRIPTION:Sign up below for your free tickets to the first ever virtual Scottish Get Together!\nDespite the coronavirus outbreak\, we’re determined to make sure that the TSC community can come together. That’s why this year’s Scottish Get Together will be virtual! \nJoin us on Saturday 25 July via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Scotland. \nScottish Get Together 2020 agenda\n* 13:00 – 13:10. Welcome and introductions\, housekeeping\n* 13:10 – 13:45. An overview of the TSA Support Line\n* 13:45 – 13:50. Break\n* 13:50 – 14:45. Q&A with Dr Shelagh Joss (Glasgow TSC Clinic)\n* 14:45 – 14:50. Break\n* 14:50 – 15:20. Scottish Association for Mental Health – Let’s Talk project\n* 15:20 – 15:30. Thank you and close \nOur thanks go to the Bank of Scotland Foundation\, for kindly providing a grant towards this event. URL:https://tuberous-sclerosis.org/event/scottish-get-together-virtual-meeting-2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/07/sgt1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200715T180000 DTEND;TZID=Europe/London:20200728T190000 DTSTAMP:20260928T174434 CREATED:20200707T085649Z LAST-MODIFIED:20200727T131229Z UID:22011-1594836000-1595962800@tuberous-sclerosis.org SUMMARY:Virtual session: Strategies for better sleep DESCRIPTION:Are you or your family struggling to get a good night’s sleep?\nFor the TSC community\, many of us find it hard to have regular and restful sleep. With everything happening in the world\, this is now harder than ever. Register today for our ‘Strategies for better sleep’ virtual session to find out more about: \n\nThe importance of sleep\nWhy and how sleep can be disturbed in stressful environments\nPractical guidance on getting a good night’s sleep\n\nThe TSA is delighted to be welcoming Kerry Davies to the session – a certified sleep practitioner and learning disabilities nurse\, who has experience of roles within mental health\, hospital settings\, schools and with families of children with SEN\, providing her with extensive knowledge on how to help almost any family. URL:https://tuberous-sclerosis.org/event/better-sleep/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/07/better-sleep-slate-3.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200624T180000 DTEND;TZID=Europe/London:20200624T190000 DTSTAMP:20260928T174434 CREATED:20200615T093348Z LAST-MODIFIED:20200615T094438Z UID:21754-1593021600-1593025200@tuberous-sclerosis.org SUMMARY:Virtual session: Managing aggression and violent behaviours DESCRIPTION:Would you like to learn more about managing aggression and violent behaviours in TSC?\nRegister today for our aggression and violent behaviours virtual session\, in which we will cover topics including: \n\nTriggers for aggressive behaviour and how to help predict them\nStrategies to help the transition back to the ‘new normal’ following lockdown measures\nCommon changes in a child’s behaviour as they grow up\n\nThe TSA is delighted to be welcoming Dr Tanjala Gipson (TAND Clinic Director\, Le Bonheur Children’s Hospital) to the session – a world leader on TAND and behaviour management in TSC. URL:https://tuberous-sclerosis.org/event/managebehaviours/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/06/Tanjala-slate-2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200606T130000 DTEND;TZID=Europe/London:20200606T153000 DTSTAMP:20260928T174434 CREATED:20200513T153539Z LAST-MODIFIED:20200520T152150Z UID:21458-1591448400-1591457400@tuberous-sclerosis.org SUMMARY:Welsh Info Day virtual meeting 2020 DESCRIPTION:Sign up below for your free tickets to the first ever virtual Welsh Info Day!\nDespite the coronavirus outbreak\, we’re determined to make sure that the TSC community can come together. That’s why this year’s Welsh Info Day will be virtual! Join us on Saturday 6 June via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Wales. \nFurther details on speakers and an agenda will be shared as soon as possible. URL:https://tuberous-sclerosis.org/event/welsh-info-day-virtual-2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/WIDslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200527T180000 DTEND;TZID=Europe/London:20200527T190000 DTSTAMP:20260928T174434 CREATED:20200513T145925Z LAST-MODIFIED:20200526T114024Z UID:21449-1590602400-1590606000@tuberous-sclerosis.org SUMMARY:Virtual session: Managing anxiety and stress (with Anxiety UK) DESCRIPTION:Do you want to know how to manage anxiety during the covid-19 pandemic? \nSign-up below for the free virtual session ‘TSC\, anxiety and covid-19’\, where the TSA and Anxiety UK will discuss living well during the coronavirus pandemic and coping strategies for anxiety and anxiety-related depression. \nThe session is for everyone in the TSC community\, including those living with the condition and family members/loved ones and TSC professionals. \nFor over 50 years\, Anxiety UK has worked to relieve and support those living with anxiety and anxiety-based depression by providing information\, support and understanding via an extensive range of services\, including one-to-one therapy. URL:https://tuberous-sclerosis.org/event/anxietycovid19/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/anxiety-uk-slate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200520T180000 DTEND;TZID=Europe/London:20200520T190000 DTSTAMP:20260928T174434 CREATED:20200513T122643Z LAST-MODIFIED:20200513T154707Z UID:21440-1589997600-1590001200@tuberous-sclerosis.org SUMMARY:Virtual session: TSC carer support and covid-19 (with Carers UK) DESCRIPTION:Are you\, or is someone that you know\, caring for someone living with TSC? \nSign-up below for the free virtual session ‘TSC carer support and covid-19’. The TSA are delighted to be hosting the session alongside Carers UK\, the UK’s only national membership charity for carers. \nDuring the session\, we will discuss a range of topics including: \n\nCarers fatigue and how to ask for help\nAllowing carers into the home during lockdown\nKeeping in touch with loved ones in their residential or care home\nLooking after yourself\, as well as others\, during covid-19\nAccessing respite and other support\n\nDon’t miss out on this fantastic opportunity hear from one of the most prominent organisations for carers in the UK. URL:https://tuberous-sclerosis.org/event/carersupport-covid19/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/carers-uk-webinar-slate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200515T180000 DTEND;TZID=Europe/London:20200515T190000 DTSTAMP:20260928T174434 CREATED:20200511T173400Z LAST-MODIFIED:20200515T115259Z UID:21384-1589565600-1589569200@tuberous-sclerosis.org SUMMARY:Virtual session: TAND and covid-19 DESCRIPTION:Do you or does someone close to you live with a TSC-Associated Neuropsychiatric Disorder (TAND)? \nSign-up now for the free ‘TAND and covid-19’ virtual session below. The special session will be  hosted by TAND experts Professor Petrus de Vries (Professor of Child & Adolescent Psychiatry) and Professor Anna Jansen (Head of Child Neurology\, UZ Brussels). \nDuring the session\, we will discuss: \n\nTAND at the time of covid-19\nCoping with challenging behaviours\nThe upcoming research project\, The TANDem Project\n\nThe event is proudly taking place on Global TSC Awareness Day. URL:https://tuberous-sclerosis.org/event/virtual-session-tand-and-covid-19/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/TAND-webinar-slate.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200503 DTEND;VALUE=DATE:20200504 DTSTAMP:20260928T174434 CREATED:20190930T175746Z LAST-MODIFIED:20200218T155455Z UID:8521-1588464000-1588550399@tuberous-sclerosis.org SUMMARY:City of Norwich Half Marathon DESCRIPTION:City of Norwich Half Marathon\nThe race starts and finishes within the Norfolk Showground and follows a rural single lap route through the parishes of Easton\, Honingham\, Colton\, Barnham Broom\, Marlingford and close to Easton College. The first half of the course is pretty flat with one or two little bumps in the second half. All roads along the race route are closed to through traffic while the race is in progress. \nTaking part is easy… \nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/city-of-norwich-half-marathon/ LOCATION:Norwich CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/nhalf-e1582041289299.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200427 DTEND;VALUE=DATE:20200504 DTSTAMP:20260928T174434 CREATED:20190930T175753Z LAST-MODIFIED:20191023T160545Z UID:8535-1587945600-1588550399@tuberous-sclerosis.org SUMMARY:Tour de Yorkshire DESCRIPTION:Tour De Yorkshire Ride\nThe Tour de Yorkshire Ride offers a unique mix of Tour de France delivery combined with Yorkshire hospitality and beauty resulting in a sportive dream day. This is your chance to ride many of the same roads as the pros before they do\, including the pro finish line\, complete with support from the waiting crowds. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/tour-de-yorkshire/ LOCATION:Leeds CATEGORIES:Cycling ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/yorkshire-tour.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200426 DTEND;VALUE=DATE:20200427 DTSTAMP:20260928T174434 CREATED:20190930T191518Z LAST-MODIFIED:20191023T160209Z UID:8586-1587859200-1587945599@tuberous-sclerosis.org SUMMARY:Tour de Gwent DESCRIPTION:The Tour de Gwent\nIs the annual cycling event for everyone! With 6 carefully designed routes to choose from\, each with their own unique features\, the event offers something for cyclists of all abilities. From hard-core cyclists looking for an epic leg-burning challenge to families who’d prefer a pleasant ‘there-and-back’ along the River Usk\, you won’t be disappointed. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/tour-de-gwent-2/ CATEGORIES:Cycling ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/cycle-2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200418T130000 DTEND;TZID=Europe/London:20200418T153000 DTSTAMP:20260928T174434 CREATED:20200408T091233Z LAST-MODIFIED:20200408T091233Z UID:21184-1587214800-1587223800@tuberous-sclerosis.org SUMMARY:Join us at the Outlook virtual meeting on 18 April DESCRIPTION:Sign-up now for free tickets to the Outlook virtual meeting\, taking place via web conferencing on Saturday 18 April 2020! \nAre you an adult mildly affected by TSC? Join us to make new friends\, share experiences about living with TSC\, and enjoy unique workshops. \nTickets are available for adults aged 18+ who are mildly affected by TSC. \nInformation on how to join the Outlook virtual meeting will be provided to you after registering for the event. Any questions should go to comms@tuberous-sclerosis.org. \nMore information about the Outlook virtual meeting is available here. URL:https://tuberous-sclerosis.org/event/virtual-outlook/ CATEGORIES:Community Event,Outlook ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/12/Outlook-2019-2-e1581522154314.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200314 DTEND;VALUE=DATE:20200315 DTSTAMP:20260928T174434 CREATED:20200129T170020Z LAST-MODIFIED:20200213T080856Z UID:18035-1584144000-1584230399@tuberous-sclerosis.org SUMMARY:Family Fun Day Portsmouth - Tickets now on sale! DESCRIPTION:. \nPurchase tickets below for the TSA Family Fun Day at Blue Reef Aquarium Portsmouth on Saturday 14 March 2020! \nSubsidised tickets purchased through the TSA will be ordered by the charity through Blue Reef Aquarium. Your tickets will be available from the aquarium on the day of the event. \nTickets are limited to x2 adult and x2 child tickets per family\, so that as many families as possible can have the opportunity to come along. Families requiring more tickets can contact Blue Reef Aquarium to purchase standard tickets. \nMore information about the day is available here. URL:https://tuberous-sclerosis.org/event/family-fun-day-march-2020/ LOCATION:Blue Reef Aquarium Portsmouth\, United Kingdom CATEGORIES:Community Event,Family Fun Day ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/01/FFD-2020-blue-reef-7.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20190928 DTEND;VALUE=DATE:20190929 DTSTAMP:20260928T174434 CREATED:20191003T180214Z LAST-MODIFIED:20191024T163623Z UID:8946-1569628800-1569715199@tuberous-sclerosis.org SUMMARY:Welsh Info Day 2019 DESCRIPTION:Welsh Info Day 2020\nDo you live in Wales and are affected by Tuberous Sclerosis Complex (TSC)?\nCome along to the Welsh Info Day\, our annual flagship event especially for the TSC community in Wales! \nEvery year\, at the Welsh Info Day you can: \n\nMeet and get to know your fellow TSC community in Wales\, including individuals and families affected by the condition\nTalk with the TSA about our upcoming plans and projects\, with a Welsh focus\nHear external Wales organisations talk about how they might be able to help you and your family\n\nPrevious events have included talks and workshops by: \n\nWales Gene Park / Genetic Alliance UK\nMencap Cymru\nCardiff TSC Clinic\n\nThe Welsh Info Day typically takes place early Autumn\, with a date and further information about the Welsh Info Day 2020 expected by Spring 2020. \nWould you like to be involved in organising the Welsh Info Day\, or have some ideas on how it could be improved?\nWe would love to have you involved! Contact us to ask about helping us to organise and manage the day. \nRelated pages\nOutlook 2020\n\nBig Day\n\nFamily Fun Day\n\nScottish Get Together\n\n• Northern Ireland Info Day URL:https://tuberous-sclerosis.org/event/welsh-info-day-2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/08/wales-flag.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20190831 DTEND;VALUE=DATE:20190908 DTSTAMP:20260928T174434 CREATED:20191003T180937Z LAST-MODIFIED:20191024T164806Z UID:8949-1567209600-1567900799@tuberous-sclerosis.org SUMMARY:Scottish Get Together 2019 DESCRIPTION:Scottish Get Together 2020\nDo you live in Scotland and are affected by Tuberous Sclerosis Complex (TSC)?\n The Scottish Get Together is for you! \nThe Scottish Get Together is an opportunity for Scotland-based members of the TSC community – including people living with the condition\, their family and carers – to: \n\nMeet and get to know people living in TSC who also live in Scotland\nTalk with the TSA about projects and plans\, all with a Scotland-focus\nHear external Scotland organisations and charities about how they might be able to help you and your family with a range of services\n\nPrevious speakers at the Scottish Get Together 2019 have included: \n\nCerebra\nContact\nEpilepsy Scotland\nFamily Fund\nScottish Association for Mental Health\n\nThe Scottish Get Together typically takes place late Summer\, with a date and further information about the Scottish Get Together 2020 expected by Spring 2020. \nWould you like to be involved in organising the Scottish Get Together\, or have some ideas on how it could be improved? We would love to have you involved! Contact us to ask about helping us to organise and manage the day. URL:https://tuberous-sclerosis.org/event/scottish-get-together/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/SGT.jpg END:VEVENT END:VCALENDAR