BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Tuberous Sclerosis Association - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Tuberous Sclerosis Association X-ORIGINAL-URL:https://tuberous-sclerosis.org X-WR-CALDESC:Events for The Tuberous Sclerosis Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20190331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20191027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20221030T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20211211T150000 DTEND;TZID=Europe/London:20211211T171500 DTSTAMP:20260928T193832 CREATED:20211029T094201Z LAST-MODIFIED:20211029T094201Z UID:87515-1639234800-1639242900@tuberous-sclerosis.org SUMMARY:Virtual Outlook festive special 2021 DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nLast year\, Outlook – a special community for adults mildly affected by TSC – held a virtual festive special for the first time. The event went so well\, that we’re bringing it back for 2021! \nWhether you’ve been to Outlook before or if it’s your first time\, come along to meet with others virtually on Saturday 11 December\, 3pm – 5:15pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nOutlook festive special 2021 agenda: \n\n3pm – 3:05pm\, Welcome and introductions\n3:05pm – 3:20pm\, Update from the TSA\n3:20pm – 4pm\, Christmas quiz (courtesy of Phil Rogers)\n4pm – 4:10pm\, Break\n4:10pm – 5pm\, Group discussion: Reasons to be positive in 2021 and 2022\n5pm – 5:15pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 1pm Saturday 11 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible. URL:https://tuberous-sclerosis.org/event/outlook-festive-2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/outlookfestive2021.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211208T180000 DTEND;TZID=Europe/London:20211208T190000 DTSTAMP:20260928T193832 CREATED:20211110T114234Z LAST-MODIFIED:20211110T114234Z UID:87562-1638986400-1638990000@tuberous-sclerosis.org SUMMARY:Cardiff TSC Clinic update 2021 DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 8 December\, 6pm – 7pm\, the TSA welcomes Dr Jenny Gardener (Consultant Clinical Geneticist)\, Dr Anurag Saxena (Consultant Paediatric Neurologist) and Karen Bailey (TSC Specialist Nurse) to discuss the Cardiff NHS TSC clinic. Topics will include: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\nTSC treatment and management\, including access to everolimus in Wales\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm Saturday 8 December). URL:https://tuberous-sclerosis.org/event/cardiff-clinic-update-2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/11/cardiff-clinic-update-2021.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211123T180000 DTEND;TZID=Europe/London:20211123T190000 DTSTAMP:20260928T193832 CREATED:20211018T094655Z LAST-MODIFIED:20211018T094655Z UID:87436-1637690400-1637694000@tuberous-sclerosis.org SUMMARY:Virtual event: TSC and lymphangioleiomyomatosis (LAM) DESCRIPTION:Virtual event: TSC and lymphangioleiomyomatosis (LAM).\n \nAround three in every 10 women who live with TSC\, and a very small number of males\, also develop complications in the lungs\, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person varies significantly amongst individuals living with TSC\, with problems ranging from shortness of breath and coughing to chest pain or a collapsed lung. \nIn this free virtual event\, we welcome Professor Simon Johnson (LAM National Centre Director) to discuss the condition in more detail\, what it can mean for people who live with the condition day-to-day\, and what next steps people with TSC and LAM may have. \nTaking place on Tuesday 23 November\, 6pm – 7pm\, this free event will also include a question and answer section – giving you the chance to put your LAM questions to Professor Johnson. \n‘TSC and LAM’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and LAM can be found here\, or by contacting the TSA Support Line. URL:https://tuberous-sclerosis.org/event/tsc-and-lam/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/tsclamslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211118T190000 DTEND;TZID=Europe/London:20211118T200000 DTSTAMP:20260928T193832 CREATED:20211015T130557Z LAST-MODIFIED:20211118T104049Z UID:87372-1637262000-1637265600@tuberous-sclerosis.org SUMMARY:TSA Annual General Meeting 2021 DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2021 will take place Thursday 18 November\, 7pm – 8pm. The AGM will take place virtually\, via a video conferencing platform. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you. \nTo attend the AGM 2021\, please register your place below. Tickets will be available until 5pm on Thursday 18 November. \nTSA AGM 2021 materials can be read here: \n\nAGM 2021 Trustees letter\nAGM 2021 Notice\nA Year in Review: 2020 (including the latest Treasurer’s Report\, Strategic Report\, the 2020 Summarised Statement of Financial Activities and the Balance Sheet for 2020) URL:https://tuberous-sclerosis.org/event/agm2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211110T193000 DTEND;TZID=Europe/London:20211110T203000 DTSTAMP:20260928T193832 CREATED:20211019T100351Z LAST-MODIFIED:20211019T100351Z UID:87465-1636572600-1636576200@tuberous-sclerosis.org SUMMARY:Virtual event: Introduction to supporting siblings DESCRIPTION:Do you want to find out more about supporting siblings whose brothers or sisters live with TSC?\n\n \nThe TSA is delighted to host ‘Introduction to supporting siblings’\, a special virtual workshop organised in partnership with siblings charity\, Sibs. \nPresented by Sibs\, this workshop is intended for parents and guardians of children living with TSC who want to know more about supporting siblings. The focus of the workshop will be on supporting siblings. This workshop is not for professional workers. \nThe workshop will give parents and guardians an insight into siblings’ needs and experiences\, and gives some ideas for giving siblings attention \n‘Introduction to supporting siblings’ is free to register and attend. Unlike other TSA events\, this event is presented by Sibs\, with the TSA facilitating the opportunity for the workshop to be focused on the TSC community. \nAttendance is limited to only a very small number of attendees – do not delay registering\, to help guarantee your place. \nOnce registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here. URL:https://tuberous-sclerosis.org/event/supporting-sibs/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/sibsslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211027T180000 DTEND;TZID=Europe/London:20211027T190000 DTSTAMP:20260928T193832 CREATED:20210928T110722Z LAST-MODIFIED:20210928T111332Z UID:87104-1635357600-1635361200@tuberous-sclerosis.org SUMMARY:Virtual event: TSC and its impact on skin DESCRIPTION:Virtual event: TSC and its impact on Skin\n \nIn this virtual event\, we welcome Dr Lea Solman (Consultant in Paediatric Dermatology\, Great Ormond Street Hospital) to discuss all-things skin-related in the world of TSC. \nSkin and dermatology issues are some of the most significant factors of living with TSC\, with around nine in every 10 people who live with TSC also experiencing skin problems as a result of the condition. Dr Solman will cover the key areas of TSC and skin\, including the most common ways that TSC affects the skin\, and treatment and management of TSC skin issues. The session will include opportunities to also ask Dr Solman questions in a Q&A portion of the event. \n‘TSC and its impact on skin’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here. URL:https://tuberous-sclerosis.org/event/tsc-and-skin/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/09/skinslate4.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260928T193832 CREATED:20200813T142009Z LAST-MODIFIED:20210802T143306Z UID:22362-1633219200-1633305599@tuberous-sclerosis.org SUMMARY:London Marathon 2021 DESCRIPTION:London Marathon 2021 (Sunday 3 October 2021)\nGot inspired by seeing the virtual London Marathon 2020 runners? Get a spot at the London Marathon 2021 and raise money to help the TSA improve lives in the TSC community! \nBy taking part in the London Marathon 2021\, you can make a real difference to individuals and families that are affected by TSC. \nTSA places in the London Marathon 2021\nApplications for TSA places in the London Marathon 2021 are now closed. \nHowever if you have secured your own place in the London Marathon 2021 via the official ballot or a deferred place\, You can still be part of #TeamTSA and raise money for the TSA. You also won’t have to pledge a minimum sponsorship amount – just raise what you can! \nWant to be part of the 2022 team? \nClick here for full details and to register. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose URL:https://tuberous-sclerosis.org/event/london-marathon-2021/ LOCATION:London CATEGORIES:Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/donate-by-easy-fundraising.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210919 DTEND;VALUE=DATE:20210920 DTSTAMP:20260928T193832 CREATED:20200218T160256Z LAST-MODIFIED:20211207T154109Z UID:19497-1632009600-1632095999@tuberous-sclerosis.org SUMMARY:Scottish 10K DESCRIPTION:The route starts and finishes just outside Edinburgh at Musselburgh Racecourse. The Scottish 10K route is seriously fast and flat! You’ll run out and back along the magnificent Golf Coast before finishing in the final furlong at Musselburgh Racecourse; Scotland’s oldest racecourse. \nTo secure a TSA place please contact us – Fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/scottish-10k/ LOCATION:Musselburgh Racecourse CATEGORIES:10k ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/02/c437aec7-f8f5-451e-a4a1-a8664a24cfea.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210912 DTEND;VALUE=DATE:20210913 DTSTAMP:20260928T193832 CREATED:20200804T142717Z LAST-MODIFIED:20200804T142823Z UID:22302-1631404800-1631491199@tuberous-sclerosis.org SUMMARY:Great North Run 2021 DESCRIPTION:For information on running the Great North Run in 2021 for the TSA please contact the team on Fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/great-north-run-2021/ LOCATION:Newcastle CATEGORIES:Featured Events,Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/gnr-finish-box-e1571734968927.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210602T180000 DTEND;TZID=Europe/London:20210602T190000 DTSTAMP:20260928T193832 CREATED:20210519T100304Z LAST-MODIFIED:20210519T100304Z UID:85928-1622656800-1622660400@tuberous-sclerosis.org SUMMARY:Virtual event: The importance of sleep in children with TSC DESCRIPTION:Do you want to know about the impact of sleep on wellbeing\, behaviour and managing TSC in children living with the condition?\n \nJoin us for this live session\, where sleep experts Dr Stacey Bissell (Research Fellow\, University of Birmingham)\, Dr Caroline Richards (Senior Lecturer\, University of Birmingham) and Dr Catherine Hill (Associate Professor\, University of Southampton) will discuss how sleep impacts on the daily lives of children affected by TSC. \nDuring the event\, we will cover: \n\nSleep studies in TSC (eSNORE)\nHow sleep can affect wellbeing\, behaviour and managing TSC\nA Q&A session to ask your important questions about sleep to the experts\n\nThis is the first TSA virtual session focused specifically on TSC and sleep – don’t miss it! URL:https://tuberous-sclerosis.org/event/virtual-event-importance-sleep-children/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/05/sleep-thumbnail.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210520T180000 DTEND;TZID=Europe/London:20210520T190000 DTSTAMP:20260928T193832 CREATED:20210429T123503Z LAST-MODIFIED:20210429T123713Z UID:85797-1621533600-1621537200@tuberous-sclerosis.org SUMMARY:Virtual event: A values-based approach to improving mental health (ACT) in TSC DESCRIPTION:TSC and mental health: A values-based approach to improving mental health (ACT)\n \nIn the webinar\, Dr Jennifer Black (Clinical Psychologist\, Bristol Royal Hospital for Children) will introduce skills that allow you to deal with difficult thoughts and feelings\, so they have less of an influence over you. \nLiving with a long-term physical health condition can have a significant impact on emotional wellbeing and quality of life. This webinar will focus on how people living with TSC can be supported to live well alongside ongoing health problems. It will focus on Acceptance and Commitment Therapy (ACT)\, a type of talking therapy that encourages openness to and awareness of the present moment in order to help people maintain behaviours consistent with their life goals. \nACT fosters engagement with\, rather than avoidance of\, painful experiences to move towards acceptance of unchangeable difficulties alongside building a rich and meaningful life despite the presence of ongoing difficulties. URL:https://tuberous-sclerosis.org/event/values-based-approach-to-improving-mental-health/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/04/Dr-Black-webinar-slate-2.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210515 DTEND;VALUE=DATE:20210517 DTSTAMP:20260928T193832 CREATED:20191003T162859Z LAST-MODIFIED:20210802T143218Z UID:8919-1621036800-1621209599@tuberous-sclerosis.org SUMMARY:Tea & SCones for TSC DESCRIPTION:Tea & SCones for TSC\nIt doesn’t matter when you you pop the kettle on but please do!\nGet your oven gloves ready and the tea pot out and organise a TSC community tea party \nTea & SCones for TSC\, our flagship event focused on baking (or just grabbing a biscuit) and having a brew\, all to raise funds to help improve lives in the TSC community\, went virtual last year for the first time. It was such a great success that for 2021\, at a time when we’re all keen to connect with others\, we’re doing it again! \nWhere should I hold my Tea & SCones event?\nYou can host your event anywhere – as long as you are following local government guidelines and restrictions. This might mean that you can host something in a garden\, or even virtually through Facebook\, WhatsApp or Zoom. \nSocially distanced event – Download our fundraising guide with some top tips\, but we ask everyone to make sure they follow local guidelines around social distancing. \nVirtual Tea and SCones event – Download our fundraising guide on how to make your virtual event a success – and even better when everyone does their own washing up! \nWhat’s new for 2021?\nWe are delighted to announce that we have a ‘Cuppa Quiz’. We’ve got together with some members of the TSC community to create a quiz ready for your Tea & SCones event! Whether you’re hosting an event in-person (in line with social distance guidelines) or virtually\, you can gather your guests for a quiz! For full details download our Cuppa Quiz Guide. \nSaturday 15 May 2021 is TSC Global Awareness Day\,  and marks the start of Tea & SCones for TSC season! We want you to get involved by getting family\, friends and colleagues involved in a Tea & SCones for TSC  event. But remember that you can do a Tea & SCones event at any time\, so don’t worry if you can’t make that day. Let’s get Tea & SCones for TSC happening all around the world! \nFor full details please visit the Tea & SCones for TSC homepage. \nIf you have any questions about Tea & SCones for TSC or any other fundraising opportunities we’d love to hear from you – either by emailing fundraising@tuberous-sclerosis.org or calling 0300 222 5737. URL:https://tuberous-sclerosis.org/event/tea-and-scones-for-tsc/ LOCATION:Anywhere CATEGORIES:Community Fundraising ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/03/scones.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210417T133000 DTEND;TZID=Europe/London:20210417T160000 DTSTAMP:20260928T193832 CREATED:20210107T112646Z LAST-MODIFIED:20210414T110027Z UID:54602-1618666200-1618675200@tuberous-sclerosis.org SUMMARY:Outlook 2021 virtual meeting DESCRIPTION:Are you an adult mildly affected by TSC? Join us for the Outlook 2021 virtual event on 17 April and get to know others in the TSC community!\n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nThere’ll be opportunities to: \n\nConnect with others who understand the impact that TSC can have\nTake part or watch interesting sessions about living with TSC\nLearn more about the work of the TSA\n\nLockdowns and social distancing won’t stop the Outlook community from coming together – Outlook 2021 will take place via Zoom. \nRegistration will be open until 12pm Saturday 17 April. \nPlease find our agenda for Outlook 2021 below. \nOutlook 2021 virtual meeting agenda\n\n1:30pm – 1:35pm: Welcome\, introductions and housekeeping\n1:35pm – 1:50pm: TSA update\n1:50pm – 3:00pm: Your life a year on with covid-19: Transforming yourself and your outlook (with Positive Psychologist Andrew Parsons\, Reciprocal Minds\n3:00pm – 3:15pm: Break\n3:15pm – 3:55pm: Living with TSC: Looking forward to 2021 and beyond\n3:55pm – 4pm: Thank you and stay safe URL:https://tuberous-sclerosis.org/event/outlook2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/Outlook-logo-2021.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210413T180000 DTEND;TZID=Europe/London:20210413T190000 DTSTAMP:20260928T193832 CREATED:20210323T115634Z LAST-MODIFIED:20210401T101516Z UID:85523-1618336800-1618340400@tuberous-sclerosis.org SUMMARY:Covid-19 and children with TSC: Q&A special DESCRIPTION:Many families in the TSC community have questions about next steps for themselves and their children who live with TSC\, as we work through the covid-19 pandemic. Here\, we hope to shed light on all-things related covid-19 and children who live with TSC.\nJoin us on Tuesday 13 April\, as Dr Jill Cadwgan (Consultant in Paediatric Neurodisability\, Evelina Children’s Hospital) discusses and answers the most important questions to you about children affected by TSC in relation to covid-19\, including: \n\n“Why are children not being routinely vaccinated?”\n“What about children who are ‘clinically extremely vulnerable’ to covid-19?”\n“Should we continue to shield?”\n\nRegister for the event by clicking below. Registration will be open until 4pm Tuesday 13 April. URL:https://tuberous-sclerosis.org/event/covid19-children-qa/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/03/Tanjala-webinar-slate2.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210401 DTEND;VALUE=DATE:20210501 DTSTAMP:20260928T193832 CREATED:20210305T093843Z LAST-MODIFIED:20210928T110842Z UID:85264-1617235200-1619827199@tuberous-sclerosis.org SUMMARY:TSC Clinics Virtual Challenge DESCRIPTION:To find out about the clinic’s challenge please visit the the TSC Clinics challenge page! URL:https://tuberous-sclerosis.org/event/tsc-clinics-virtual-challenge/ LOCATION:Anywhere CATEGORIES:Community Fundraising ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/08/tsa-t-shirt-Drew-Kirby-Thames-Walk.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210313T130000 DTEND;TZID=Europe/London:20210313T150000 DTSTAMP:20260928T193832 CREATED:20210208T111658Z LAST-MODIFIED:20210301T113651Z UID:81334-1615640400-1615647600@tuberous-sclerosis.org SUMMARY:Northern Ireland Get Together 2021 DESCRIPTION:We welcome in the TSC community who live in Northern Ireland to the virtual Northern Ireland Get Together 2021\nThe Northern Ireland Get Together 2021\, taking place on Saturday 13 March 1pm – 3pm\, is an opportunity to connect with others in the TSC community who understand the challenges of living in Northern Ireland and being affected by TSC. \nCome along to hear from the TSA team\, meet your fellow Northern Ireland TSC community and to discuss topics important to you. The event will also feature a special Q&A session with the Belfast TSC Clinic. \nJoin the meeting through Zoom to: \n\nHear about the work of the TSC Belfast Clinic\nMeet your fellow TSC community members in Northern Ireland\nCatch-up on the work of the TSA\n\nRegistration\, open until 11am Saturday 13 March\, is free – so\, register today! URL:https://tuberous-sclerosis.org/event/ni-get-together-21/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/02/Northern-Ireland-Get-Together-logo-2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210308T180000 DTEND;TZID=Europe/London:20210308T190000 DTSTAMP:20260928T193832 CREATED:20210106T163510Z LAST-MODIFIED:20210118T125131Z UID:54431-1615226400-1615230000@tuberous-sclerosis.org SUMMARY:Epidiolex (cannabidiol) and TSC DESCRIPTION:There has been a lot of interest in the possibility of Epidiolex (cannabidiol) as a treatment option for TSC-related epilepsy. In this virtual session\, we look at the topic more closely.\nJoin us for this virtual session\, where we are delighted to welcome Dr Sam Amin (Consultant Paediatric Neurologist\, University of Bristol) to discuss Epidiolex (cannabidiol)\, TSC and the potential treatment’s journey so far. \nAs part of the event\, Dr Amin will be pleased to answer questions from the community regarding Epidiolex. \nRegistration will be open until 4pm Monday 8 March. URL:https://tuberous-sclerosis.org/event/epidiolex-cannabidiol-and-tsc/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/epidiolexslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210218T180000 DTEND;TZID=Europe/London:20210218T190000 DTSTAMP:20260928T193832 CREATED:20210121T143600Z LAST-MODIFIED:20210223T140650Z UID:63660-1613671200-1613674800@tuberous-sclerosis.org SUMMARY:In Conversation with Sir David Suchet CBE DESCRIPTION:This event has now passed. However\, you can still watch ‘In Conversation with Sir David Suchet CBE‘ by purchasing access to the recording of the event (click here). Everyone at the TSA would like to thank Sir David for taking part in this fantastic fundraising event. \nThe TSA is delighted to welcome the TSC community and beyond to join us for ‘In Conversation with Sir David Suchet CBE’ via Zoom. This is a unique opportunity to hear from one of Britain’s best-loved performers and ask the questions you’ve always longed to ask him.  \n\nAt this very special virtual fundraising event\, Sir David will discuss his incredible career across stage\, television and film\, as well as his passions and interests away from performing. You can send us your questions for Sir David\, and we’ll ask as many as we can fit into the hour! \nWhether bringing to life the iconic Hercule Poirot\, portraying an expansive list of Shakespearean characters or even lending his voice in the recent BBC production of His Dark Materials\, Sir David Suchet CBE’s award-winning work has led him to be one of Britain’s most celebrated actors. \n‘In Conversation with Sir David Suchet CBE’ will take place through Zoom on Thursday 18 February\, with details shared to registered attendees before the event. Don’t miss out on this unique opportunity to hear from Sir David\, as he talks directly with the TSA. \nStandard tickets for this virtual event are priced at £25 to raise funds for the Tuberous Sclerosis Association. \nExpanded access tickets for the event are priced at £10 for members of the TSC community in the UK who receive benefits or whose income has been affected by coronavirus\, to make sure that everyone can come together for this exciting fundraising event. \nAttendees who can afford to do so are encouraged to give an additional donation to the charity when booking their ticket to help the TSA continue its vital work to improve the lives of people living with TSC and their families. \nTickets are available via Eventbrite until 4pm 18 February: https://www.eventbrite.co.uk/e/in-conversation-with-sir-david-suchet-cbe-tickets-140974497517 \nThose who previously registered for this event through our website’s booking form are still registered and will receive information about accessing the event as usual. URL:https://tuberous-sclerosis.org/event/conv-with-sir-david/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/In-conversation-with-Sir-David-Suchet-slate-jan21.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210210T180000 DTEND;TZID=Europe/London:20210210T190000 DTSTAMP:20260928T193832 CREATED:20210106T153011Z LAST-MODIFIED:20210126T164558Z UID:54368-1612980000-1612983600@tuberous-sclerosis.org SUMMARY:Covid-19 vaccines and TSC: Q&A with experts DESCRIPTION:With covid-19 vaccines being rolled out across the UK\, we know that many people in the TSC community will have questions about their suitability and use in people living with TSC\nThe TSA is pleased to welcome Dr Frances Elmslie (Consultant Geneticist\, St George’s University Hospital and TSA Trustee) and Prof Julian Sampson (Professor of Medical Genetics\, Cardiff University) to a special Q&A session focused on covid-19 vaccines and TSC. \nDuring the event\, we will explore questions such as: \n\nWhen might people living with TSC receive the vaccine?\nIs the vaccine safe for the TSC community?\nHow can I keep up-to-date with vaccine information?\n\nRegistration will be open until 4pm 10 February. URL:https://tuberous-sclerosis.org/event/covid-19-vaccines-and-tsc-qa-with-experts/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/covid-19-vaccines-qa-slate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210113T180000 DTEND;TZID=Europe/London:20210113T190000 DTSTAMP:20260928T193832 CREATED:20201203T120407Z LAST-MODIFIED:20201203T120407Z UID:42639-1610560800-1610564400@tuberous-sclerosis.org SUMMARY:Women's health\, menopause and TSC: Virtual session DESCRIPTION:Do you\, or someone close to you\, live with TSC and have questions around women’s health\, including menopause?\nDepending on how TSC affects you\, the condition may impact on the way you experience menopause or other women’s health issues. \nThe TSA is delighted to welcome Debra Holloway (Gynaecology Nurse Consultant\, Guy’s and St. Thomas’ NHS Foundation) to a closed event focused on questions and more information on women’s health and menopause whilst living with TSC. \nThe TSA understands that this is the first event of its type to be hosted exclusively for the TSC community. \nWe welcome all women to this event for an inclusive\, understanding and warm environment. Participants in the event will not be recorded\, with the meeting also hosted and led by female members of the TSA team. \nRegistration will be open until 4pm 13 January. URL:https://tuberous-sclerosis.org/event/womens-health-tsc/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/12/womenshealthslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201211T183000 DTEND;TZID=Europe/London:20201211T193000 DTSTAMP:20260928T193832 CREATED:20201201T145114Z LAST-MODIFIED:20201201T145618Z UID:41681-1607711400-1607715000@tuberous-sclerosis.org SUMMARY:Christmas 'Book at bedtime' with Sir David Suchet CBE DESCRIPTION:Start your preparation for Christmas with a magical reading of ‘The Night Before Christmas’\n \nGather around\, put on your Christmas jumper or PJs and get comfy. We have a very special festive treat for all of you\, as world-renowned actor Sir David Suchet CBE reads the traditional poem ‘The Night Before Christmas’ for the TSC community! \nFamilies\, individuals\, little ones and grandchildren alike – this gift is for everyone\, and gives us all the chance to come together virtually in the festive spirit\, as Sir David’s reading is premiered. We’ll also try to squeeze in time to sing a couple of festive favourites before saying ‘Goodnight\, sleep tight!’ and ‘only 14 sleeps until Christmas!’ \nWe’ll also have time for some singalong Christmas carols\, to get you into the festive mood. \nTickets are free and will be available until 4pm on Friday 11 December. URL:https://tuberous-sclerosis.org/event/nightbeforexmas/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/12/suchet3.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201205T130000 DTEND;TZID=Europe/London:20201205T153000 DTSTAMP:20260928T193832 CREATED:20201030T112129Z LAST-MODIFIED:20201030T112129Z UID:28980-1607173200-1607182200@tuberous-sclerosis.org SUMMARY:Virtual Outlook Festive Special DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is looking festive!\nWith the TSC community facing a festive season when it will be difficult to meet with loved ones\, the TSA is delighted to organise a festive edition of Outlook\, the TSA group for adults mildly affected by TSC. \nWhether you’ve been to Outlook before or if it’s your first time\, come along to meet with others virtually through Zoom on Saturday 5 December\, 1pm – 3:30pm for some festive cheer and to connect with others in the TSC community. \nThe fantastic agenda for our festive Outlook special: \n\n1pm – 1:05pm\, Welcome and introductions\n1:05pm – 1:20pm\, Update from the TSA\n1:20pm – 2pm\, Christmas quiz\n2pm – 2:10pm\, Break\n2:10pm – 3pm\, Group discussion: Keeping connected and safe over winter\n3pm – 3:15pm: Christmas carols\n3:15pm – 3:30pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 11am Saturday 5 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible. URL:https://tuberous-sclerosis.org/event/virtual-outlook-festive-special/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/10/Outlook-christmas.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201126T180000 DTEND;TZID=Europe/London:20201126T190000 DTSTAMP:20260928T193832 CREATED:20201028T104442Z LAST-MODIFIED:20201102T160606Z UID:28368-1606413600-1606417200@tuberous-sclerosis.org SUMMARY:TSA Annual General Meeting 2020 DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2020 will take place Thursday 26 November\, 6pm – 7pm. The AGM will take place virtually this year to keep everyone safe and well. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you. \nTo attend the AGM 2020\, please register your place below. Tickets will be available until 4pm on Thursday 26 November. \nTSA AGM 2020 materials can be read here: \n\nAGM 2020 Trustees letter\nAGM 2020 Notice\nImpact Report 2019 (including the latest Treasurer’s Report\, Strategic Report\, the 2019 Summarised Statement of Financial Activities and the Balance Sheet for 2019) URL:https://tuberous-sclerosis.org/event/agm2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201125T180000 DTEND;TZID=Europe/London:20201125T190000 DTSTAMP:20260928T193832 CREATED:20201103T143015Z LAST-MODIFIED:20201125T155833Z UID:30629-1606327200-1606330800@tuberous-sclerosis.org SUMMARY:Latest TSC research update: COVID-19\, LAM\, renal and TAND DESCRIPTION:Are you interested in finding out about the latest discoveries in TSC research?\nThe TSA and St George’s University Hospitals are proud to be hosting ‘Latest TSC research update: COVID-19\, LAM\, renal and TAND‘ on 25 November. Chaired by Dr Frances Elmslie (Consultant Clinical Geneticist\, St George’s University Hospitals and TSA Trustee)\, the event will see Professor Julian Sampson (Professor of Medical Genetics\, Cardiff University) unpick the latest research and discoveries of TSC\, explaining what the findings could mean for the TSC community’s day-to-day lives. \nJoin the free event to find more about things such as TSC in relation to: \n\nCOVID-19\nLymphangioleiomyomatosis (LAM).\nKidney/renal function\nTSC-Associated Neuropsychiatric Disorders (TAND)\n\nTickets (free to all) will be available until 4pm on 25 November. URL:https://tuberous-sclerosis.org/event/research-update-nov20/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/11/researchnov20-2.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20201004 DTEND;VALUE=DATE:20201005 DTSTAMP:20260928T193832 CREATED:20190930T191505Z LAST-MODIFIED:20200813T142933Z UID:8568-1601769600-1601855999@tuberous-sclerosis.org SUMMARY:London Marathon 2020 - Cancelled DESCRIPTION:London Marathon 2020 (Sunday 4 October 2020)\nDue to Covid-19 restriction the postponed event has now been cancelled.\nThe #TeamTSA runners will have their places deferred to one of the next 3 London Marathon events. We would like to thank our runner for their amazing efforts in training and fundraising to date. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose URL:https://tuberous-sclerosis.org/event/london-marathon-2020-2/ LOCATION:London CATEGORIES:Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/donate-by-easy-fundraising.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200914 DTEND;VALUE=DATE:20200921 DTSTAMP:20260928T193832 CREATED:20191003T163828Z LAST-MODIFIED:20210603T080323Z UID:8923-1600041600-1600646399@tuberous-sclerosis.org SUMMARY:Jeans for Genes 2020 DESCRIPTION:Jeans for Genes\nJeans for Genes Day is an annual fundraising campaign by Genetic Disorders UK\, the national charity that supports individuals and families affected by genetic disorders.\nThe Tuberous Sclerosis Association (TSA) are a proud partner of Genetic Disorders UK\, meaning that you can get involved in Jeans for Genes and help raise funds and awareness to support people affected by Tuberous Sclerosis Complex (TSC)! \nWhat is Jeans for Genes Day?\nBetween Monday 14 – Sunday 20 September 2020\, thousands of people around the UK help raise funds for people affected by genetic disorders by asking schools\, workplaces or community groups to wear jeans for the week. \nIf you get involved on behalf of the TSA\, half of the proceeds that you raise will go to the TSA!* \n*Jeans for Genes Day is a fundraising initiative organised by the UK Genetic Disorders Partnership Network. We are a member of the Partnership\, so if you organise for your school or workplace to hold a Jeans for Genes day and they haven’t held one in the last three years\, the Tuberous Sclerosis Association receives 50% of the money raised. It’s as simple as that! \nHow to register for Jeans for Genes and raise money for people living with TSC\nTo ensure that the Tuberous Sclerosis Association receives 50% of the money you raise\, just follow these three simple instructions: \n\nSign-up and order your fundraising pack from the Jeans for Genes website here\nFill in the free fundraising pack form on the Jeans for Genes website\nFor the question “Are you affiliated to one of our partners?” choose the Tuberous Sclerosis Association from the drop-down menu.\n\nThis ensures that the TSA and Jeans for Genes know that you want to fundraise for us! \nOnce you’ve collected those fantastic funds\, just send them back to Jeans for Genes and they’ll take it from there. \nRemember to let us know about your fundraising\nDon’t forget to tell us about your brilliant Jeans for Genes event\, so that our fundraising team can help to support you. Either email fundraising@tuberous-sclerosis.org or ring the team on 0300 222 5737 URL:https://tuberous-sclerosis.org/event/jeans-for-genes-2020/ CATEGORIES:Community Fundraising,Featured Events ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/J4G-BOX-e1571743313228.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200913 DTEND;VALUE=DATE:20200914 DTSTAMP:20260928T193832 CREATED:20190930T191505Z LAST-MODIFIED:20200804T141745Z UID:8569-1599955200-1600041599@tuberous-sclerosis.org SUMMARY:Virtual Great North Run 2020 DESCRIPTION:Virtual Great North Run 2020 (Sunday 13 September)\nWhile everyone can’t gather together to run the famous 13.1 mile route\, you can still ‘Be Your Greatest’ and support people living with TSC. \nThe Virtual Great North Run is a free to enter half marathon challenge. There’s no minimum sponsorship pledge\, we simply ask you to raise what you can. \nWith their partners ViRACE\, the Great North Run organisers are creating an app to bring you an innovative virtual experience with audio clips from the event so that you will hear the sounds of the Great North Run. From an upbeat warm-up led by the legendary Roy Gayle\, to chants of OGGY OGGY OGGY\, and the iconic roar of the Red Arrows fly-past\, they are making it feel as much like the real event as we can! \nThe event will mimic a race format so that all runners start their Virtual Great North Run at the same time on 13 September 2020 and complete the same 13.1 mile distance. Runners will be tracked throughout the virtual race and will be able to view results after the race has finished. \nTo register please visit : https://www.greatrun.org/great-north-run URL:https://tuberous-sclerosis.org/event/great-north-run-2020-2/ LOCATION:Anywhere CATEGORIES:Featured Events,Half Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/GNR_Virtual_FacebookGraphic4-thumbnail.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200912T130000 DTEND;TZID=Europe/London:20200912T153000 DTSTAMP:20260928T193832 CREATED:20200902T093442Z LAST-MODIFIED:20200902T094000Z UID:22501-1599915600-1599924600@tuberous-sclerosis.org SUMMARY:Northern Ireland Get Together Virtual Meeting 2020 DESCRIPTION:Sign up below for your free tickets to the first ever virtual Northern Ireland Get Together!\nThis year’s Northern Ireland Get Together is going virtual! Join us on Saturday 12 September 1pm – 3pm via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Northern Ireland. \nWhat you can expect at the Northern Ireland Get Together 2020 \n\nIssues important to those living in Northern Ireland and affected by TSC\nA look at the impact that covid-19 has had on TSC-affected families in Northern Ireland\nOpportunities to speak to the Belfast TSC Clinic about what matters to you\nThe chance to get to know your fellow Northern Ireland community\n\nRegister for the event below and get ready for a great day. Tickets will be available until 11am Saturday 12 September. URL:https://tuberous-sclerosis.org/event/northern-ireland-get-together-2020/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/09/PSNI_Map_Northern_Ireland3.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200815 DTEND;VALUE=DATE:20200817 DTSTAMP:20260928T193832 CREATED:20190930T191506Z LAST-MODIFIED:20200804T115703Z UID:8570-1597449600-1597622399@tuberous-sclerosis.org SUMMARY:Virtual MyRideLondon DESCRIPTION:My RideLondon (15 -16 August 2020)\nJoin the nationwide virtual challenge\, My Prudential RideLondon\, and be part of the world’s greatest festival of cycling. Choose your distance\, plan your route and get cycling! \nSo RideCardiff\, RideManchester\, RideRoundThePark…..the opportunities are endless! \nMy RideLondon is your chance to get on your bike – or scooter\, skateboard\, trike\, tandem\, penny farthing\, roller skates\, unicycle – and take part in the world’s greatest festival of cycling\, wherever you live and with whoever you like – family\, friends or by yourself. It’s your ride\, your way\, for the TSA! \nVisit myridelondon.co.uk to register \,choose your distance and set up a fundraising page for the TSA. Then before the event weekend of 15 and 16 August\, you’ll be able to download the My Prudential RideLondon app – from here you can track and log your ride. \nYou are invited to complete one (or more!) of four challenges over the weekend: 19 miles for riders in search of a challenge\, 46 miles for riders who want to push the boundaries\, a more taxing 100 miles for those who want to go all-out or the distance of your choice at My Prudential RideLondon FreeCycle. \nTo get involved please visit : https://myridelondon.co.uk/  \nThe event is free to enter and there is no minimum sponsorship pledge\, we simply ask you to raise what you can. URL:https://tuberous-sclerosis.org/event/ride-100-2/ LOCATION:Anywhere CATEGORIES:Cycling,Featured Events ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/Prudentail-My-Ride-London_Email-Banner-600x400-thumbnail.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200729T180000 DTEND;TZID=Europe/London:20200729T190000 DTSTAMP:20260928T193832 CREATED:20200720T144730Z LAST-MODIFIED:20200720T150122Z UID:22154-1596045600-1596049200@tuberous-sclerosis.org SUMMARY:Virtual session: Young people\, epilepsy and the 'new normal' DESCRIPTION:Are you a parent\, carer or guardian of a young person who lives with TSC-related epilepsy?\nJoin the TSA’s virtual session ‘Epilepsy\, young people and the ‘new normal” on Wednesday 29 July at 6pm\, where we are delighted to be welcoming Lisa O’Brien (Head of Health\, Young Epilepsy) to discuss epilepsy-related key issues for young people as lockdown and shielding begin to ease. \nTopics to be covered include: \n\nAccessing medicine and clinical support as we transition to the ‘new normal’\nHow stress can impact on seizures and how it might be possible to help manage this\nKey issues and strategies for young people living with epilepsy as we enter the ‘new normal’\nA refresher on ‘Key things to remember’ about being out and about and living with epilepsy\n\nTickets will be available until 4pm on 29 July. URL:https://tuberous-sclerosis.org/event/epilepsy-transition/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/07/ye5.png END:VEVENT END:VCALENDAR