The Tuberous Sclerosis Association

Tea & SCones for TSC
2021-05-15 - 2021-05-16 | Anywhere
Tea & SCones for TSC
It doesn’t matter when you you pop the kettle on but please do!
Get your oven gloves ready and the tea pot out and organise a TSC community tea party
Tea & SCones for TSC, our flagship event focused on baking (or just grabbing a biscuit) and having a brew, all to raise funds to help improve lives in the TSC community, went virtual last year for the first time. It was such a great success that for 2021, at a time when we’re all keen to connect with others, we’re doing it again!
Where should I hold my Tea & SCones event?
You can host your event anywhere – as long as you are following local government guidelines and restrictions. This might mean that you can host something in a garden, or even virtually through Facebook, WhatsApp or Zoom.
Socially distanced event – Download our fundraising guide with some top tips, but we ask everyone to make sure they follow local guidelines around social distancing.
Virtual Tea and SCones event – Download our fundraising guide on how to make your virtual event a success – and even better when everyone does their own washing up!
What’s new for 2021?
We are delighted to announce that we have a ‘Cuppa Quiz’. We’ve got together with some members of the TSC community to create a quiz ready for your Tea & SCones event! Whether you’re hosting an event in-person (in line with social distance guidelines) or virtually, you can gather your guests for a quiz! For full details download our Cuppa Quiz Guide.
Saturday 15 May 2021 is TSC Global Awareness Day, and marks the start of Tea & SCones for TSC season! We want you to get involved by getting family, friends and colleagues involved in a Tea & SCones for TSC event. But remember that you can do a Tea & SCones event at any time, so don’t worry if you can’t make that day. Let’s get Tea & SCones for TSC happening all around the world!
For full details please visit the Tea & SCones for TSC homepage.
If you have any questions about Tea & SCones for TSC or any other fundraising opportunities we’d love to hear from you – either by emailing fundraising@tuberous-sclerosis.org or calling 0300 222 5737.

Outlook 2021 virtual meeting
2021-04-17 13:30 - 16:00 (Europe/London)
Are you an adult mildly affected by TSC? Join us for the Outlook 2021 virtual event on 17 April and get to know others in the TSC community!

All adults mildly affected by TSC will receive a warm welcome at Outlook, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year.
There’ll be opportunities to:

Connect with others who understand the impact that TSC can have
Take part or watch interesting sessions about living with TSC
Learn more about the work of the TSA

Lockdowns and social distancing won’t stop the Outlook community from coming together – Outlook 2021 will take place via Zoom.
Registration will be open until 12pm Saturday 17 April.
Please find our agenda for Outlook 2021 below.
Outlook 2021 virtual meeting agenda

1:30pm – 1:35pm: Welcome, introductions and housekeeping
1:35pm – 1:50pm: TSA update
1:50pm – 3:00pm: Your life a year on with covid-19: Transforming yourself and your outlook (with Positive Psychologist Andrew Parsons, Reciprocal Minds
3:00pm – 3:15pm: Break
3:15pm – 3:55pm: Living with TSC: Looking forward to 2021 and beyond
3:55pm – 4pm: Thank you and stay safe

Covid-19 and children with TSC: Q&A special
2021-04-13 18:00 - 19:00
Many families in the TSC community have questions about next steps for themselves and their children who live with TSC, as we work through the covid-19 pandemic. Here, we hope to shed light on all-things related covid-19 and children who live with TSC.
Join us on Tuesday 13 April, as Dr Jill Cadwgan (Consultant in Paediatric Neurodisability, Evelina Children’s Hospital) discusses and answers the most important questions to you about children affected by TSC in relation to covid-19, including:

“Why are children not being routinely vaccinated?”
“What about children who are ‘clinically extremely vulnerable’ to covid-19?”
“Should we continue to shield?”

Register for the event by clicking below. Registration will be open until 4pm Tuesday 13 April.

TSC Clinics Virtual Challenge
2021-04-01 - 2021-04-30 | Anywhere
To find out about the clinic’s challenge please visit the the TSC Clinics challenge page!

Northern Ireland Get Together 2021
2021-03-13 13:00 - 15:00
We welcome in the TSC community who live in Northern Ireland to the virtual Northern Ireland Get Together 2021
The Northern Ireland Get Together 2021, taking place on Saturday 13 March 1pm – 3pm, is an opportunity to connect with others in the TSC community who understand the challenges of living in Northern Ireland and being affected by TSC.
Come along to hear from the TSA team, meet your fellow Northern Ireland TSC community and to discuss topics important to you. The event will also feature a special Q&A session with the Belfast TSC Clinic.
Join the meeting through Zoom to:

Hear about the work of the TSC Belfast Clinic
Meet your fellow TSC community members in Northern Ireland
Catch-up on the work of the TSA

Registration, open until 11am Saturday 13 March, is free – so, register today!

Epidiolex (cannabidiol) and TSC
2021-03-08 18:00 - 19:00
There has been a lot of interest in the possibility of Epidiolex (cannabidiol) as a treatment option for TSC-related epilepsy. In this virtual session, we look at the topic more closely.
Join us for this virtual session, where we are delighted to welcome Dr Sam Amin (Consultant Paediatric Neurologist, University of Bristol) to discuss Epidiolex (cannabidiol), TSC and the potential treatment’s journey so far.
As part of the event, Dr Amin will be pleased to answer questions from the community regarding Epidiolex.
Registration will be open until 4pm Monday 8 March.

In Conversation with Sir David Suchet CBE
2021-02-18 18:00 - 19:00
This event has now passed. However, you can still watch ‘In Conversation with Sir David Suchet CBE‘ by purchasing access to the recording of the event (click here). Everyone at the TSA would like to thank Sir David for taking part in this fantastic fundraising event.
The TSA is delighted to welcome the TSC community and beyond to join us for ‘In Conversation with Sir David Suchet CBE’ via Zoom. This is a unique opportunity to hear from one of Britain’s best-loved performers and ask the questions you’ve always longed to ask him.

At this very special virtual fundraising event, Sir David will discuss his incredible career across stage, television and film, as well as his passions and interests away from performing. You can send us your questions for Sir David, and we’ll ask as many as we can fit into the hour!
Whether bringing to life the iconic Hercule Poirot, portraying an expansive list of Shakespearean characters or even lending his voice in the recent BBC production of His Dark Materials, Sir David Suchet CBE’s award-winning work has led him to be one of Britain’s most celebrated actors.
‘In Conversation with Sir David Suchet CBE’ will take place through Zoom on Thursday 18 February, with details shared to registered attendees before the event. Don’t miss out on this unique opportunity to hear from Sir David, as he talks directly with the TSA.
Standard tickets for this virtual event are priced at £25 to raise funds for the Tuberous Sclerosis Association.
Expanded access tickets for the event are priced at £10 for members of the TSC community in the UK who receive benefits or whose income has been affected by coronavirus, to make sure that everyone can come together for this exciting fundraising event.
Attendees who can afford to do so are encouraged to give an additional donation to the charity when booking their ticket to help the TSA continue its vital work to improve the lives of people living with TSC and their families.
Tickets are available via Eventbrite until 4pm 18 February: https://www.eventbrite.co.uk/e/in-conversation-with-sir-david-suchet-cbe-tickets-140974497517
Those who previously registered for this event through our website’s booking form are still registered and will receive information about accessing the event as usual.

Covid-19 vaccines and TSC: Q&A with experts
2021-02-10 18:00 - 19:00
With covid-19 vaccines being rolled out across the UK, we know that many people in the TSC community will have questions about their suitability and use in people living with TSC
The TSA is pleased to welcome Dr Frances Elmslie (Consultant Geneticist, St George’s University Hospital and TSA Trustee) and Prof Julian Sampson (Professor of Medical Genetics, Cardiff University) to a special Q&A session focused on covid-19 vaccines and TSC.
During the event, we will explore questions such as:

When might people living with TSC receive the vaccine?
Is the vaccine safe for the TSC community?
How can I keep up-to-date with vaccine information?

Registration will be open until 4pm 10 February.

Women's health, menopause and TSC: Virtual session
2021-01-13 18:00 - 19:00
Do you, or someone close to you, live with TSC and have questions around women’s health, including menopause?
Depending on how TSC affects you, the condition may impact on the way you experience menopause or other women’s health issues.
The TSA is delighted to welcome Debra Holloway (Gynaecology Nurse Consultant, Guy’s and St. Thomas’ NHS Foundation) to a closed event focused on questions and more information on women’s health and menopause whilst living with TSC.
The TSA understands that this is the first event of its type to be hosted exclusively for the TSC community.
We welcome all women to this event for an inclusive, understanding and warm environment. Participants in the event will not be recorded, with the meeting also hosted and led by female members of the TSA team.
Registration will be open until 4pm 13 January.

Christmas 'Book at bedtime' with Sir David Suchet CBE
2020-12-11 18:30 - 19:30
Start your preparation for Christmas with a magical reading of ‘The Night Before Christmas’

Gather around, put on your Christmas jumper or PJs and get comfy. We have a very special festive treat for all of you, as world-renowned actor Sir David Suchet CBE reads the traditional poem ‘The Night Before Christmas’ for the TSC community!
Families, individuals, little ones and grandchildren alike – this gift is for everyone, and gives us all the chance to come together virtually in the festive spirit, as Sir David’s reading is premiered. We’ll also try to squeeze in time to sing a couple of festive favourites before saying ‘Goodnight, sleep tight!’ and ‘only 14 sleeps until Christmas!’
We’ll also have time for some singalong Christmas carols, to get you into the festive mood.
Tickets are free and will be available until 4pm on Friday 11 December.

Virtual Outlook Festive Special
2020-12-05 13:00 - 15:30
Grab a minced pie, a cracker and your winter jumper – Outlook is looking festive!
With the TSC community facing a festive season when it will be difficult to meet with loved ones, the TSA is delighted to organise a festive edition of Outlook, the TSA group for adults mildly affected by TSC.
Whether you’ve been to Outlook before or if it’s your first time, come along to meet with others virtually through Zoom on Saturday 5 December, 1pm – 3:30pm for some festive cheer and to connect with others in the TSC community.
The fantastic agenda for our festive Outlook special:

1pm – 1:05pm, Welcome and introductions
1:05pm – 1:20pm, Update from the TSA
1:20pm – 2pm, Christmas quiz
2pm – 2:10pm, Break
2:10pm – 3pm, Group discussion: Keeping connected and safe over winter
3pm – 3:15pm: Christmas carols
3:15pm – 3:30pm: Thank yous, jumper competition, close

Register below for this free session (registration open until 11am Saturday 5 December).
The TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible.

TSA Annual General Meeting 2020
2020-11-26 18:00 - 19:00
The TSA’s Annual General Meeting (AGM) 2020 will take place Thursday 26 November, 6pm – 7pm. The AGM will take place virtually this year to keep everyone safe and well. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you.
To attend the AGM 2020, please register your place below. Tickets will be available until 4pm on Thursday 26 November.
TSA AGM 2020 materials can be read here:

AGM 2020 Trustees letter
AGM 2020 Notice
Impact Report 2019 (including the latest Treasurer’s Report, Strategic Report, the 2019 Summarised Statement of Financial Activities and the Balance Sheet for 2019)

Latest TSC research update: COVID-19, LAM, renal and TAND
2020-11-25 18:00 - 19:00
Are you interested in finding out about the latest discoveries in TSC research?
The TSA and St George’s University Hospitals are proud to be hosting ‘Latest TSC research update: COVID-19, LAM, renal and TAND‘ on 25 November. Chaired by Dr Frances Elmslie (Consultant Clinical Geneticist, St George’s University Hospitals and TSA Trustee), the event will see Professor Julian Sampson (Professor of Medical Genetics, Cardiff University) unpick the latest research and discoveries of TSC, explaining what the findings could mean for the TSC community’s day-to-day lives.
Join the free event to find more about things such as TSC in relation to:

COVID-19
Lymphangioleiomyomatosis (LAM).
Kidney/renal function
TSC-Associated Neuropsychiatric Disorders (TAND)

Tickets (free to all) will be available until 4pm on 25 November.

London Marathon 2020 - Cancelled
2020-10-04 | London
London Marathon 2020 (Sunday 4 October 2020)
Due to Covid-19 restriction the postponed event has now been cancelled.
The #TeamTSA runners will have their places deferred to one of the next 3 London Marathon events. We would like to thank our runner for their amazing efforts in training and fundraising to date.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.

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Jeans for Genes 2020
2020-09-14 - 2020-09-20
Jeans for Genes
Jeans for Genes Day is an annual fundraising campaign by Genetic Disorders UK, the national charity that supports individuals and families affected by genetic disorders.
The Tuberous Sclerosis Association (TSA) are a proud partner of Genetic Disorders UK, meaning that you can get involved in Jeans for Genes and help raise funds and awareness to support people affected by Tuberous Sclerosis Complex (TSC)!
What is Jeans for Genes Day?
Between Monday 14 – Sunday 20 September 2020, thousands of people around the UK help raise funds for people affected by genetic disorders by asking schools, workplaces or community groups to wear jeans for the week.
If you get involved on behalf of the TSA, half of the proceeds that you raise will go to the TSA!*
*Jeans for Genes Day is a fundraising initiative organised by the UK Genetic Disorders Partnership Network. We are a member of the Partnership, so if you organise for your school or workplace to hold a Jeans for Genes day and they haven’t held one in the last three years, the Tuberous Sclerosis Association receives 50% of the money raised. It’s as simple as that!
How to register for Jeans for Genes and raise money for people living with TSC
To ensure that the Tuberous Sclerosis Association receives 50% of the money you raise, just follow these three simple instructions:

Sign-up and order your fundraising pack from the Jeans for Genes website here
Fill in the free fundraising pack form on the Jeans for Genes website
For the question “Are you affiliated to one of our partners?” choose the Tuberous Sclerosis Association from the drop-down menu.

This ensures that the TSA and Jeans for Genes know that you want to fundraise for us!
Once you’ve collected those fantastic funds, just send them back to Jeans for Genes and they’ll take it from there.
Remember to let us know about your fundraising
Don’t forget to tell us about your brilliant Jeans for Genes event, so that our fundraising team can help to support you. Either email fundraising@tuberous-sclerosis.org or ring the team on 0300 222 5737

Virtual Great North Run 2020
2020-09-13 | Anywhere
Virtual Great North Run 2020 (Sunday 13 September)
While everyone can’t gather together to run the famous 13.1 mile route, you can still ‘Be Your Greatest’ and support people living with TSC.
The Virtual Great North Run is a free to enter half marathon challenge. There’s no minimum sponsorship pledge, we simply ask you to raise what you can.
With their partners ViRACE, the Great North Run organisers are creating an app to bring you an innovative virtual experience with audio clips from the event so that you will hear the sounds of the Great North Run. From an upbeat warm-up led by the legendary Roy Gayle, to chants of OGGY OGGY OGGY, and the iconic roar of the Red Arrows fly-past, they are making it feel as much like the real event as we can!
The event will mimic a race format so that all runners start their Virtual Great North Run at the same time on 13 September 2020 and complete the same 13.1 mile distance. Runners will be tracked throughout the virtual race and will be able to view results after the race has finished.
To register please visit : https://www.greatrun.org/great-north-run

Northern Ireland Get Together Virtual Meeting 2020
2020-09-12 13:00 - 15:30
Sign up below for your free tickets to the first ever virtual Northern Ireland Get Together!
This year’s Northern Ireland Get Together is going virtual! Join us on Saturday 12 September 1pm – 3pm via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Northern Ireland.
What you can expect at the Northern Ireland Get Together 2020

Issues important to those living in Northern Ireland and affected by TSC
A look at the impact that covid-19 has had on TSC-affected families in Northern Ireland
Opportunities to speak to the Belfast TSC Clinic about what matters to you
The chance to get to know your fellow Northern Ireland community

Register for the event below and get ready for a great day. Tickets will be available until 11am Saturday 12 September.

Virtual MyRideLondon
2020-08-15 - 2020-08-16 | Anywhere
My RideLondon (15 -16 August 2020)
Join the nationwide virtual challenge, My Prudential RideLondon, and be part of the world’s greatest festival of cycling. Choose your distance, plan your route and get cycling!
So RideCardiff, RideManchester, RideRoundThePark…..the opportunities are endless!
My RideLondon is your chance to get on your bike – or scooter, skateboard, trike, tandem, penny farthing, roller skates, unicycle – and take part in the world’s greatest festival of cycling, wherever you live and with whoever you like – family, friends or by yourself. It’s your ride, your way, for the TSA!
Visit myridelondon.co.uk to register ,choose your distance and set up a fundraising page for the TSA. Then before the event weekend of 15 and 16 August, you’ll be able to download the My Prudential RideLondon app – from here you can track and log your ride.
You are invited to complete one (or more!) of four challenges over the weekend: 19 miles for riders in search of a challenge, 46 miles for riders who want to push the boundaries, a more taxing 100 miles for those who want to go all-out or the distance of your choice at My Prudential RideLondon FreeCycle.
To get involved please visit : https://myridelondon.co.uk/
The event is free to enter and there is no minimum sponsorship pledge, we simply ask you to raise what you can.

Virtual session: Young people, epilepsy and the 'new normal'
2020-07-29 18:00 - 19:00
Are you a parent, carer or guardian of a young person who lives with TSC-related epilepsy?
Join the TSA’s virtual session ‘Epilepsy, young people and the ‘new normal” on Wednesday 29 July at 6pm, where we are delighted to be welcoming Lisa O’Brien (Head of Health, Young Epilepsy) to discuss epilepsy-related key issues for young people as lockdown and shielding begin to ease.
Topics to be covered include:

Accessing medicine and clinical support as we transition to the ‘new normal’
How stress can impact on seizures and how it might be possible to help manage this
Key issues and strategies for young people living with epilepsy as we enter the ‘new normal’
A refresher on ‘Key things to remember’ about being out and about and living with epilepsy

Tickets will be available until 4pm on 29 July.

Scottish Get Together virtual meeting 2020
2020-07-25 13:00 - 15:30
Sign up below for your free tickets to the first ever virtual Scottish Get Together!
Despite the coronavirus outbreak, we’re determined to make sure that the TSC community can come together. That’s why this year’s Scottish Get Together will be virtual!
Join us on Saturday 25 July via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Scotland.
Scottish Get Together 2020 agenda
* 13:00 – 13:10. Welcome and introductions, housekeeping
* 13:10 – 13:45. An overview of the TSA Support Line
* 13:45 – 13:50. Break
* 13:50 – 14:45. Q&A with Dr Shelagh Joss (Glasgow TSC Clinic)
* 14:45 – 14:50. Break
* 14:50 – 15:20. Scottish Association for Mental Health – Let’s Talk project
* 15:20 – 15:30. Thank you and close
Our thanks go to the Bank of Scotland Foundation, for kindly providing a grant towards this event.

Virtual session: Strategies for better sleep
2020-07-15 18:00 - 2020-07-28 19:00
Are you or your family struggling to get a good night’s sleep?
For the TSC community, many of us find it hard to have regular and restful sleep. With everything happening in the world, this is now harder than ever. Register today for our ‘Strategies for better sleep’ virtual session to find out more about:

The importance of sleep
Why and how sleep can be disturbed in stressful environments
Practical guidance on getting a good night’s sleep

The TSA is delighted to be welcoming Kerry Davies to the session – a certified sleep practitioner and learning disabilities nurse, who has experience of roles within mental health, hospital settings, schools and with families of children with SEN, providing her with extensive knowledge on how to help almost any family.

Virtual session: Managing aggression and violent behaviours
2020-06-24 18:00 - 19:00
Would you like to learn more about managing aggression and violent behaviours in TSC?
Register today for our aggression and violent behaviours virtual session, in which we will cover topics including:

Triggers for aggressive behaviour and how to help predict them
Strategies to help the transition back to the ‘new normal’ following lockdown measures
Common changes in a child’s behaviour as they grow up

The TSA is delighted to be welcoming Dr Tanjala Gipson (TAND Clinic Director, Le Bonheur Children’s Hospital) to the session – a world leader on TAND and behaviour management in TSC.

Welsh Info Day virtual meeting 2020
2020-06-06 13:00 - 15:30
Sign up below for your free tickets to the first ever virtual Welsh Info Day!
Despite the coronavirus outbreak, we’re determined to make sure that the TSC community can come together. That’s why this year’s Welsh Info Day will be virtual! Join us on Saturday 6 June via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Wales.
Further details on speakers and an agenda will be shared as soon as possible.

Virtual session: Managing anxiety and stress (with Anxiety UK)
2020-05-27 18:00 - 19:00
Do you want to know how to manage anxiety during the covid-19 pandemic?
Sign-up below for the free virtual session ‘TSC, anxiety and covid-19’, where the TSA and Anxiety UK will discuss living well during the coronavirus pandemic and coping strategies for anxiety and anxiety-related depression.
The session is for everyone in the TSC community, including those living with the condition and family members/loved ones and TSC professionals.
For over 50 years, Anxiety UK has worked to relieve and support those living with anxiety and anxiety-based depression by providing information, support and understanding via an extensive range of services, including one-to-one therapy.

Virtual session: TSC carer support and covid-19 (with Carers UK)
2020-05-20 18:00 - 19:00
Are you, or is someone that you know, caring for someone living with TSC?
Sign-up below for the free virtual session ‘TSC carer support and covid-19’. The TSA are delighted to be hosting the session alongside Carers UK, the UK’s only national membership charity for carers.
During the session, we will discuss a range of topics including:

Carers fatigue and how to ask for help
Allowing carers into the home during lockdown
Keeping in touch with loved ones in their residential or care home
Looking after yourself, as well as others, during covid-19
Accessing respite and other support

Don’t miss out on this fantastic opportunity hear from one of the most prominent organisations for carers in the UK.

Virtual session: TAND and covid-19
2020-05-15 18:00 - 19:00
Do you or does someone close to you live with a TSC-Associated Neuropsychiatric Disorder (TAND)?
Sign-up now for the free ‘TAND and covid-19’ virtual session below. The special session will be hosted by TAND experts Professor Petrus de Vries (Professor of Child & Adolescent Psychiatry) and Professor Anna Jansen (Head of Child Neurology, UZ Brussels).
During the session, we will discuss:

TAND at the time of covid-19
Coping with challenging behaviours
The upcoming research project, The TANDem Project

The event is proudly taking place on Global TSC Awareness Day.

City of Norwich Half Marathon
2020-05-03 | Norwich
City of Norwich Half Marathon
The race starts and finishes within the Norfolk Showground and follows a rural single lap route through the parishes of Easton, Honingham, Colton, Barnham Broom, Marlingford and close to Easton College. The first half of the course is pretty flat with one or two little bumps in the second half. All roads along the race route are closed to through traffic while the race is in progress.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Tour de Yorkshire
2020-04-27 - 2020-05-03 | Leeds
Tour De Yorkshire Ride
The Tour de Yorkshire Ride offers a unique mix of Tour de France delivery combined with Yorkshire hospitality and beauty resulting in a sportive dream day. This is your chance to ride many of the same roads as the pros before they do, including the pro finish line, complete with support from the waiting crowds.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Tour de Gwent
2020-04-26
The Tour de Gwent
Is the annual cycling event for everyone! With 6 carefully designed routes to choose from, each with their own unique features, the event offers something for cyclists of all abilities. From hard-core cyclists looking for an epic leg-burning challenge to families who’d prefer a pleasant ‘there-and-back’ along the River Usk, you won’t be disappointed.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Join us at the Outlook virtual meeting on 18 April
2020-04-18 13:00 - 15:30
Sign-up now for free tickets to the Outlook virtual meeting, taking place via web conferencing on Saturday 18 April 2020!
Are you an adult mildly affected by TSC? Join us to make new friends, share experiences about living with TSC, and enjoy unique workshops.
Tickets are available for adults aged 18+ who are mildly affected by TSC.
Information on how to join the Outlook virtual meeting will be provided to you after registering for the event. Any questions should go to comms@tuberous-sclerosis.org.
More information about the Outlook virtual meeting is available here.
