The Tuberous Sclerosis Association

TSA Annual General Meeting 2022
2022-12-07 19:00 - 20:00 (Europe/London)
The TSA’s Annual General Meeting (AGM) 2022 is an important opportunity to hear more about the TSA’s strategic planning and goals. By attending the AGM, you can find out more about the inner-workings of the TSA and how our targets are developed.
The TSA’s Board of Trustees will discuss TSA finances, major achievements of the charity over the last 12 months, and our plans for 2023 and beyond. Plus, there’ll be the opportunity to put your questions and comments to TSA Trustees. Opening stages of the event will include Trustees voting on agenda points for the AGM.
The AGM 2022 will take place virtually on Wednesday 7 December, 7pm – 8pm. To attend the event, please register below. Registration will remain open until 6pm on the day of the event.
If you have a question that you would like to ask the TSA Board of Trustees as part of the TSA’s AGM 2022, please email the TSA’s Joint Chief Executives: admin@tuberous-sclerosis.org.

TSC and music therapy: Session 4
2022-11-23 18:00 - 19:00
Join us for a special series of virtual events, where we embrace the power of music therapy for children in the TSC community

Music therapy is a recognised health and therapeutic intervention, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC.
Whether you’ve been to music therapy classes before or if this is your first time, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required!
The four FREE music therapy sessions, exclusively for the TSC community, will take place Wednesday 6pm – 7pm 2, 9, 16 and 23 November.
More about Nordoff Robbins
As the UK’s largest music therapy charity, we stand for music and believe in the value of music for all people in our society. In particular, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools, care homes, hospices, hospitals, mental health services, and brain injury units.
More about the session leader, Jo Humphreys, BMus MMT (NR)
Jo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools, hospitals, community settings and more recently, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential, and make the social, cognitive, physical and emotional benefits of music accessible to everyone.
For any questions or comments, contact support@tuberous-sclerosis.org.

TSC and music therapy: Session 3
2022-11-16 18:00 - 19:00

TSC and music therapy: Session 2
2022-11-09 18:00 - 19:00

TSC and music therapy: Session 1
2022-11-02 18:00 - 19:00

Bournemouth Half Marathon
2022-10-09
The Bournemouth Half Marathon course takes in both Boscombe and Bournemouth piers along this coastal route. This is running as it should be!
The Bournemouth half marathon starts in Kings Park before making it’s way down onto the seafront. You continue to take in the beautiful coastal views as you hit mile 6 – standing mid way between Poole Harbour and Hurst Spit, Hengistbury Head forms the main division between Poole and Christchurch bays. You then turn west and at around mile 8, you run along the breathtaking Boscombe Pier. The Pier was first constructed in 1856. The Pier has undergone numerous transformations over the years, with the addition of the Bournemouth Pier Theatre in 1959. You then run past Lower Gardens at mile 10 before the final home stretch along the stunning coastal seafront and a grandstand finish.
Contact us for details on TSA Places available – fundraising@tuberous-sclerosis.org

RunBournemouth - The Supersonic 10K
2022-10-09
The Supersonic 10K is an increasingly popular race distance, a great step-up for those who have completed a 5K in the past, but aren’t quite ready for the half marathon distance.
The Supersonic 10K is a fantastic flat & fast course, great for setting a quick time or for a chance to take in the stunning Bournemouth coastline at your own pace. Starting and finishing near the Run Bournemouth Hub in the Lower Gardens, this beautiful coastal route heads along Undercliff Drive past some of the lovely Beach Huts, before turning back towards Bournemouth. The Supersonic 10K route allows runners the rare opportunity to run along the iconic Bournemouth Pier, before finishing in the gorgeous Lower Gardens for a well-deserved ice cream!
If your interested in a TSA place please contact the team – fundraising@tuberous-sclerosis.org

Run Bournemouth- The Supersonic 5k
2022-10-08 | Bournemouth
The Supersonic 5K is an increasingly popular race distance, for those who aren’t quite ready for the 10K distance. The Supersonic 5K event is the perfect way to get involved in Run Bournemouth with your family and friends. Starting on Bournemouth Prom and finishing near the Lower Gardens, this beautiful coastal route allows runners the rare opportunity to run along the iconic Bournemouth Pier.
If your interested in a TSA place please contact the team – fundraising@tuberous-sclerosis.org

TSC wellbeing and skin problems
2022-10-05 18:00 - 19:00
Many people with TSC face emotional and wellbeing challenges as a result of skin issues
On Wednesday 5 October, 6pm – 7pm, we’ll hear from Jules Carr, Senior Wellbeing Practitioner at Changing Faces, a charity supporting children, young people and adults with a visible difference.
The event will cover the link between skin conditions and emotional wellbeing, including actionable steps to support your wellbeing when living with TSC-related skin conditions, such as facial angiofibromas. Plus, your chance to put your questions to Jules.

London Marathon 2022
2022-10-02 | London
London Marathon 2022 (Sunday 2 October 2022)
Run for #TeamTSA in the most iconic and exciting running events of the calendar year, the TCS London Marathon.
Our charity places
Applications for #TeamTSA places in the 2022 event are now closed. If your interested in taking part in 2023 please email fundraising@tuberous-sclerosis.org to register your interest.
Do you have a ballot place?
If you’re lucky enough to get a ballot place in the London Marathon 2022 we would love to have you as part of #TeamTSA. Take on the 26.2 miles in a TSA vest and help us and families affected by TSC.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.

Close
Any questions
Our fundraising team is here for you! Just get in contact with us at fundraising@tuberous-sclerosis.org.

Scottish Half Marathon
2022-09-18 | Musselburgh Racecourse
The route is seriously flat & rapid – if you want to set a personal best for a half marathon, then this is the event for you. Starting conveniently at 11am just outside Edinburgh, you will run along the magnificent East Lothian Golf Coast before finishing in the final furlong at Musselburgh Racecourse; Scotland’s oldest racecourse.
We have TSA places available – please enquire at fundraising@tuberous-sclerosis.org

Sheffield Half Marathon
2022-09-18
Sheffield Half Marathon
A major event in the UK’s running calendar, the Sheffield Half Marathon attracts thousands of runners of all abilities and spectators to the city’s streets and raises many thousands of pounds for good causes.
With a city centre start and finish, the event boasts a super scenic route with stunning views of the Peak District for those who conquer the climb to Ringinglow.
The race even incorporates a ‘triple test’ giving entrants a chance to be crowned ‘King of the Hill’ or ‘Queen of the Hill’ in a timed hill climb, triumph in a 10K downhill sprint section and cross the finish line first to lift the Sheffield Half Marathon title.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on JustGiving.

London to Brighton Cycle Ride
2022-09-11 | London
This event is delivered by TSA charity partners Skyline Promotions, the TSA acts only the benefitting charity from any sponsorship raised.
Event Overview
On this iconic London to Brighton Cycle Ride, leave the buzz of the city behind and join thousands of your fellow cyclists as you face the challenge of a 55-mile. Journey on two wheels from the heart of London to the buzzing Brighton seafront!

Event Details

When: 11 September 2022
Where: London to Brighton
Distance: 55 miles
Registration fee: £55
Minimum sponsorship: £150

Book your place

Please click the link below for full event details, terms and conditions and to book your place.

Book your cycle

Great North Run 2022
2022-09-11 | Newcastle
Great North Run 2022 (Sunday 11 September 2022)

The Great North Run, the UK’s biggest half marathon, is back to its iconic ‘city to sea’ route for 2022. If you fancy taking on the challenge on Sunday 11 September 2022, contact us today for your free TSA place and be part of #TeamTSA at the starting line!
All we ask for is a minimum fundraising commitment of £250 (excluding Gift Aid). In return, we’ll support you with:

A free #TeamTSA running top
Support emails and lots of fundraising tips
A TSA fundraising pack, online sponsorship page and all other materials you might require
A dedicated member of the TSA team to help with any queries that you might have
A loud cheer point on race day!
Plus, you get the satisfaction of knowing you’re helping support everyone in the UK affected by TSC

To secure your place at the Great North Run, email fundraising@tuberous-sclerosis.org, call 0300 222 5737 or fill in the form below.

Secure your TSA place

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Do you have a ballot place?
If you’re lucky enough to get a ballot place we would love to have you as part of #TeamTSA. Take on the Great North Run in a TSA vest and help us and families affected by TSC.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.

Close
Any questions
Our fundraising team is here for you! Just get in contact with us at fundraising@tuberous-sclerosis.org.

Glasgow TSC clinic virtual update 2022
2022-09-07 18:00 - 19:00
Do you live in Scotland and are affected by TSC? Join us for an important annual update from the Glasgow NHS TSC Clinic
On Wednesday 7 September, 6pm – 7pm, the TSA welcomes the Glasgow TSC clinic to discuss all-things TSC, and the clinic as a whole. Topics will include:

Important clinic updates, such as accessing the clinic and referrals
TSC diagnosis, treatment and management (including access to Epidyolex for TSC-related epilepsy)
Next steps for the clinic
A Q&A where you can put your questions to the Glasgow team

Register below for this free session (registration open until 4pm 7 September).

Great North 5K 2022
2022-09-01 | Newcastle
Great North 5K
The Great North 5k kicks off the Great North Run weekend celebrations in style. Soak up the party atmosphere on a fun and fast 5k route on the Newcastle Gateshead Quayside.
The event starts early enough to allow plenty of time to shut down from work and refuel on the Quayside after you cross that finish line!
If your interested in taking part for the TSA please secure your own place here.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.

CloseStep 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

St George's London TSC clinic virtual update 2022
2022-08-10 18:00 - 19:00
Join us for an important annual update from the St George’s (London) TSC Clinic, one of the largest TSC clinics in the UK
On Wednesday 10 August, 6pm – 7pm, the TSA welcomes clinicians from the St George’s TSC clinic to discuss all-things TSC, and the clinic as a whole. Topics will include:

Important clinic updates, such as accessing the clinic and referrals
TSC diagnosis, treatment and management
Next steps for the clinic
A Q&A where you can put your questions to the St George’s team

Register below for this free session (registration open until 5pm, 10 August).

London to Paris Tour de France 2022
2022-07-20 - 2022-07-24 | Crystal Palace
This event is delivered by TSA charity partners Skyline Promotions, the TSA acts only the benefitting charity from any sponsorship raised.
Event Overview
This incredible cycle connects two of the world’s most chic capital cities! You will make your way through beautiful English villages and into the stunning countryside of rural France, passing historical landmarks and famous battlefields until you reach Paris – which is undoubtedly one of the most magical places on earth – and you will have the opportunity to soak up the Tour de France atmosphere on the Champs Elysees before arriving back to London! What an experience!

Event Details

When: 20-24 July 2022
Where: London start and Paris finish
Distance: 300 miles
Registration fee: £149
Minimum sponsorship: £1,650

Download your ride pack

Please use the form below to download your London to Paris cycle ride pack (pdf). The pack contains all the information you need to know before booking.

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Book your place

Once you have read through your London to Paris cycle ride pack, you can book your place below. Spaces are filling up quickly so don’t delay!

Book your cycle

TSC and neurodivergence
2022-07-06 18:00 - 19:00
Around one in two people who live with TSC are neurodivergent. In this virtual event, we meet The Brain Charity to discuss neurodiversity in more detail

Neurodivergence is the term for when someone’s brain processes, learns, and/or behaves differently from what is considered ‘typical’. Examples of neurodivergence includes autism spectrum disorder and Attention deficit hyperactivity disorder (ADHD).
It is normal and quite common to be neurodivergent – whether that means you have only a small number of support needs, or require support needs that a very high. On Wednesday 6 July, we welcome The Brain Charity, who offer emotional support, practical help and social activities to anyone with a neurological condition
Tickets registration for this free event closes at 5pm, Wednesday 6 July.
For any questions or comments, contact support@tuberous-sclerosis.org.

Leeds 10k
2022-07-03 | Leeds
Leeds 10k
Throughout the route that takes in many of the city’s historic landmarks, crowds come out in force. A fantastic atmosphere and friendly volunteers make the event unforgettable for all.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Cardiff TSC clinic update 2022
2022-06-15 18:00 - 19:00
Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic
On Wednesday 15 June, 6pm – 7pm, the TSA welcomes clinicians from the Cardiff TSC clinic to discuss all-things TSC, and the clinic as a whole. Topics will include:

Important clinic updates, such as accessing the clinic and referrals
TSC diagnosis, treatment and management
Next steps for the clinic
A Q&A where you can put your questions to the Cardiff team

Register below for this free session (registration open until 4pm 15 June).

Hull 10k
2022-06-12
Hull 10k
It will be the 11th running of this fantastic event, which was launched in 2010 and showcases the very best this vibrant East Riding city has to offer. With a flat route making it suitable for both Novice and seasoned runners alike, it’s easy to see why it has grown into one of the region’s most popular 10Ks.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Hull Half
2022-06-12
Hull Half Marathon
The Hull Half Marathon is a fantastic addition to the region’s running calendar, staged on the same day as the Hull 10K.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know what you’re doing so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Nightrider London
2022-06-11 | London
This event is delivered by TSA charity partners Skyline Promotions, the TSA acts only the benefitting charity from any sponsorship raised.
Event Overview
Nightrider is a fun, exciting charity cycle ride where you can see London under the moonlit night sky, cycling past iconic landmarks and through historic streets with 50 or 100km route options to choose from.
The first ever Nightrider took place in 2010 on the streets of London with 300 cyclists and since then has gained tremendous success with over 21,000 participants having taken up the challenge to date.

Event Details

When: Saturday 11 June 2022
Where: London
Distance: 50 km / 100km
Registration fee: £55
Minimum sponsorship: £150

Book your place

Please click the link below for full event details, terms and conditions and to book your place.

Book your Night Ride

Great Swim Series
2022-06-10 - 2022-06-18
Great Swim
With events in Windermere and Alton Waters and distances to suit all levels and abilities you can enjoy a weekend in the great outdoors with friends and family. Take your pick from 250 metres, 1/2 a mile, 1 mile, 2 miles, 5k or a 10k…

Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.

TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.

Close

Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on JustGiving.

TSC Clinics Virtual Challenge
2022-06-01 - 2022-06-30 | Anywhere

Edinburgh Half Marathon
2022-05-29 | Edinburgh
Edinburgh Half Marathon
Fast & flat, the Edinburgh Half Marathon follows the marathon course which was voted the fastest marathon in the UK by Runners World, ideal if it’s your first half marathon or you are looking for a PB. The Edinburgh Half Marathon has sold out every year since 2012 and is one of the largest half marathons in the UK.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below that you have place so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Edinburgh Marathon
2022-05-29 | Edinburgh
Edinburgh Marathon
Fast & flat, this course was voted the fastest marathon in the UK by Runners World, ideal if it’s your first marathon or you are looking for a PB. The Edinburgh Marathon has sold out every year since 2008 and is the second largest marathon in the UK, behind only London.
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.

Great Manchester Run 10k
2022-05-22
Manchester 10k
Famous for its Bands on the Run programme to have regular music zones across 10k routes with local DJs, live bands, choirs, drummers and cheering points!
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on JustGiving.

Great Manchester Run Half Marathon
2022-05-22 | Manchester
Manchester Half Marathon
The Great Manchester Run is firmly established as Europe’s largest half marathons . With live bands, DJs and multiple music zones adding to the amazing atmosphere, you’ll be sure have a good time – don’t miss out!
Taking part is easy…
Step 1 – sign up for your running challenge
Choose your event (like this one) and sign up with the event organisers directly here.
Step 2 – let us know about your running challenge
Once you have registered for your challenge, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice.
TELL US ABOUT YOUR PLACE
×Tell us about your place in an event
Get your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed, fill in the form below.
Why get your own place instead of a charity place?
If you buy your own place directly with the event organisers, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target!
You will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC.
If you have any questions about booking your own place, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org

About the eventWhat event are you taking part in?* Do you have your own place in this event?*

Yes

No- not yet!
About youName

First

Last

Address

Street Address

Address Line 2

City

Postcode

Date of birth

MM slash DD slash YYYY

Email*

Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.

Yes

No
Keeping in touch*

Select All

I am happy to be contacted by email

I am happy to be contacted by post

I am happy to be contacted by phone

I am happy to be contacted by SMS
By providing your details we will keep you up-to date with our latest news about the work we do, the research we sponsor and other ways you can get involved, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes.

For full details on how we use your information please visit www.tuberous-sclerosis.org/privacy
You are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.

Close
Step 3 – set up your fundraising page
Once you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.
