BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Tuberous Sclerosis Association - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Tuberous Sclerosis Association X-ORIGINAL-URL:https://tuberous-sclerosis.org X-WR-CALDESC:Events for The Tuberous Sclerosis Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20221030T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20230326T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20231029T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20220601 DTEND;VALUE=DATE:20220701 DTSTAMP:20260928T152831 CREATED:20220530T110246Z LAST-MODIFIED:20220530T110932Z UID:89753-1654041600-1656633599@tuberous-sclerosis.org SUMMARY:TSC Clinics Virtual Challenge DESCRIPTION: URL:https://tuberous-sclerosis.org/event/tsc_cvc/ LOCATION:Anywhere CATEGORIES:Community Fundraising,Featured Events ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Untitled-design-8.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220529 DTEND;VALUE=DATE:20220530 DTSTAMP:20260928T152831 CREATED:20190930T191515Z LAST-MODIFIED:20211207T154942Z UID:8582-1653782400-1653868799@tuberous-sclerosis.org SUMMARY:Edinburgh Half Marathon DESCRIPTION:Edinburgh Half Marathon\nFast & flat\, the Edinburgh Half Marathon follows the marathon course which was voted the fastest marathon in the UK by Runners World\, ideal if it’s your first half marathon or you are looking for a PB. The Edinburgh Half Marathon has sold out every year since 2012 and is one of the largest half marathons in the UK. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below that you have place so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/edinburgh-half-marathon-2/ LOCATION:Edinburgh CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/EMF-BOX-e1571732902790.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220529 DTEND;VALUE=DATE:20220530 DTSTAMP:20260928T152831 CREATED:20190930T191514Z LAST-MODIFIED:20211207T155028Z UID:8581-1653782400-1653868799@tuberous-sclerosis.org SUMMARY:Edinburgh Marathon DESCRIPTION:Edinburgh Marathon\nFast & flat\, this course was voted the fastest marathon in the UK by Runners World\, ideal if it’s your first marathon or you are looking for a PB. The Edinburgh Marathon has sold out every year since 2008 and is the second largest marathon in the UK\, behind only London. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/edinburgh-marathon-2/ LOCATION:Edinburgh CATEGORIES:Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/EMF-BOX-e1571732902790.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220522 DTEND;VALUE=DATE:20220523 DTSTAMP:20260928T152831 CREATED:20190930T191514Z LAST-MODIFIED:20211207T154451Z UID:8580-1653177600-1653263999@tuberous-sclerosis.org SUMMARY:Great Manchester Run 10k DESCRIPTION:Manchester 10k\nFamous for its Bands on the Run programme to have regular music zones across  10k routes with local DJs\, live bands\, choirs\, drummers and cheering points! \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on JustGiving. URL:https://tuberous-sclerosis.org/event/great-manchester-run-10k-2/ CATEGORIES:10k ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/manchester-box-e1571733153572.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220522 DTEND;VALUE=DATE:20220523 DTSTAMP:20260928T152831 CREATED:20190930T191514Z LAST-MODIFIED:20211207T154527Z UID:8579-1653177600-1653263999@tuberous-sclerosis.org SUMMARY:Great Manchester Run Half Marathon DESCRIPTION:Manchester Half Marathon\nThe Great Manchester Run is firmly established as Europe’s largest half marathons . With live bands\, DJs and multiple music zones adding to the amazing atmosphere\, you’ll be sure have a good time – don’t miss out! \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/great-manchester-run-half-marathon-2/ LOCATION:Manchester CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/manchester-box-e1571733153572.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220511T180000 DTEND;TZID=Europe/London:20220511T190000 DTSTAMP:20260928T152831 CREATED:20220302T121016Z LAST-MODIFIED:20220302T121016Z UID:88846-1652292000-1652295600@tuberous-sclerosis.org SUMMARY:Respite for carers in the TSC community DESCRIPTION:Many people in the TSC community are carers for loved ones who live with TSC. Caring can be an exhausting\, selfless and incredibly challenging step – with little time for respite \n \nIn this free virtual event\, the TSA welcomes The Respite Association to discuss the importance of carer self-care and respite for carers. The Respite Association was founded by people all with first-hand experience of caring\, and the stress and hurdles that come with caring for loved ones. \nIf you’re a carer in the TSC community\, you’ll be welcomed into an understanding and warm virtual event\, focused on helping you and your family. \nThe virtual event will take place through Zoom on Wednesday 11 May\, 6pm – 7pm. Registration ends 5pm\, 11 May. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/respite-for-carers/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/carers-featured.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220508 DTEND;VALUE=DATE:20220509 DTSTAMP:20260928T152831 CREATED:20190930T191514Z LAST-MODIFIED:20211207T160716Z UID:8578-1651968000-1652054399@tuberous-sclerosis.org SUMMARY:Leeds Half Marathon DESCRIPTION:Leeds Half Marathon\nAs Yorkshire’s BIGGEST\, loudest and possibly proudest half marathon\, it’s time to get your pins to Leeds on Sunday 22 November 2020!\nThis much-loved run raises hundreds of thousands of pounds for charity every year and often attracts around 7\,500 runners to the city streets. \nLike all of our events\, Leeds Half attracts runners of ALL ABILITIES and ALL AGES! With a fun\, friendly atmosphere; this well supported run could be right up your street. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/leeds-half-marathon-2/ LOCATION:Leeds CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/leeds-half-box-e1571733482321.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220423T100000 DTEND;TZID=Europe/London:20220423T163000 DTSTAMP:20260928T152831 CREATED:20220112T095931Z LAST-MODIFIED:20220203T094814Z UID:88157-1650708000-1650731400@tuberous-sclerosis.org SUMMARY:Outlook 2022 DESCRIPTION:Are you an adult mildly affected by TSC? Come to Outlook – a chance to make new and meet old friends\, share experiences about TSC and attend interesting workshops and talks. \n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nIn 2022\, we are delighted to bring back a face-to-face Outlook event\, with Outlook 2022 taking place at the Radisson Blu Hotel\, Durham! \nAs with Outlook events\, for this year we have a varied and worthwhile agenda for adults mildly affected by TSC: \n\n10:00 – 10:45: Welcome and introductions\, plus icebreaker\n10:45 – 11:00: An update from the TSA\n11:00 – 11:15: Break\n11:15 – 12:45: Emotional Freedom Technique workshop with Heather Graham (Ready for Change Now)\n12:45 – 2:00: Lunch\n2:00 – 3:30: Looking After Our Sleep (Kerry Davies\, The Sleep Charity)\n3:30 – 3:45: Coffee break\n3:45 – 4:30: Challenges and opportunities of living with TSC\n4:30: Plans for Outlook 2023\, thank you and close\n\nMore information about Outlook can be found the main Outlook page here. URL:https://tuberous-sclerosis.org/event/outlook-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/Outlook-2022.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220410 DTEND;VALUE=DATE:20220411 DTSTAMP:20260928T152831 CREATED:20190930T191512Z LAST-MODIFIED:20211207T160829Z UID:8576-1649548800-1649635199@tuberous-sclerosis.org SUMMARY:Great Welsh Marathon DESCRIPTION:The Great Welsh Marathon\nOn April 5th 2020. The Great Welsh Marathon and The Great Welsh Half Marathon return. The race will start and finish at Pembrey Country Park in Carmarthenshire. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know you go a place below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/great-welsh-marathon-2/ CATEGORIES:Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/Great-welsh-mara-box-e1571732674171.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220410 DTEND;VALUE=DATE:20220411 DTSTAMP:20260928T152831 CREATED:20190930T191512Z LAST-MODIFIED:20220304T110302Z UID:8575-1649548800-1649635199@tuberous-sclerosis.org SUMMARY:Great Welsh Half Marathon DESCRIPTION:The Great Welsh Half Marathon\nOn April 5th 2020. The Great Welsh Marathon and The Great Welsh Half Marathon return. The race will start and finish at Pembrey Country Park in Carmarthenshire. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know what you’re doing so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/great-welsh-half-marathon-2/ CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/marie-run-box.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220406T180000 DTEND;TZID=Europe/London:20220406T190000 DTSTAMP:20260928T152831 CREATED:20220112T112121Z LAST-MODIFIED:20220119T094234Z UID:88161-1649268000-1649271600@tuberous-sclerosis.org SUMMARY:TSC and epilespy DESCRIPTION:Around 4 in every 5 people affected by TSC also have TSC-related epilepsy. Join us for this virtual session\, focused on one of the most common aspects of TSC\n \nEpilepsy can have a major impact on people’s lives\, whether mild or severe. During this free event\, Dr Sam Amin (Consultant Paediatric Neurologist\, University of Bristol) will discuss a wide range of TSC-related epilepsy topics\, including: \n\nThe most common epilepsy questions received by the TSA\nTreating and managing TSC-related epilepsy\, including which epilepsy medicines are currently in development\nThe latest in TSC-related epilepsy research\n\nThe virtual event will take place through Zoom on Wednesday 6 April\, 6pm – 7pm. Free registration ends 5pm\, 6 April. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/tsc-epilepsy-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/tscepilepsy2022slate_2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220323T180000 DTEND;TZID=Europe/London:20220323T190000 DTSTAMP:20260928T152831 CREATED:20220112T120821Z LAST-MODIFIED:20220112T120821Z UID:88179-1648058400-1648062000@tuberous-sclerosis.org SUMMARY:TSC and the kidneys DESCRIPTION:One of the most common ways that TSC can affect someone is problems with the kidneys. In this free virtual event\, kidney experts Dr Chris Kingswood and Dr Nicholas Annear (St George’s University Hospital) discuss TSC and kidneys in more depth\n \nAround eight in every 10 people living with TSC will experience some kidney problems at some stage of their life. Kidney problems are not common in early childhood\, but become more common as individuals get older. \nDuring this free event\, Dr Kingswood and Dr Annear will provide a broad overview of TSC and the kidneys\, including diagnosis\, treatment and management of kidney problems in TSC. There will also be time to put your kidney questions to the experts. \nMore information about TSC and the kidneys can be found here. This event will take place through Zoom\, with free registration open until 5pm 23 March. URL:https://tuberous-sclerosis.org/event/tsc-kidneys-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/tsckidneys2022slate.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220313 DTEND;VALUE=DATE:20220314 DTSTAMP:20260928T152831 CREATED:20190930T191511Z LAST-MODIFIED:20211207T160559Z UID:8573-1647129600-1647215999@tuberous-sclerosis.org SUMMARY:Bath Half Marathon DESCRIPTION:The Bath Half Marathon\n… or the ‘Bath Half’ as it is affectionately known\, is one of the longest established and most popular city centre road events in the UK. The course itself is fast and flat making it suitable for all abilities – for beginners whose key objective is to complete the course\, to more regular long-distance event runners\, looking to beat their personal best time. It covers a two lap 13.1 mile (21.1km) traffic-free course straddling both sides of the River Avon. The race starts and finishes in Great Pulteney Street\, in the heart of the World Heritage City of Bath. \nTaking part is easy… \nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/bath-half-marathon-2/ LOCATION:Bath CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/bath-half-shaped-e1571731020751.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220310T180000 DTEND;TZID=Europe/London:20220310T190000 DTSTAMP:20260928T152831 CREATED:20220112T114450Z LAST-MODIFIED:20220309T092234Z UID:88171-1646935200-1646938800@tuberous-sclerosis.org SUMMARY:Belfast TSC Clinic virtual catch-up DESCRIPTION:Join the Belfast TSC Clinic catch-up 2022\, as we welcome the TSC community in Northern Ireland to come together on all-things TSC in the nation\n \nThe Belfast TSC catch-up 2022\, taking place on Thursday 10 March 6pm – 7pm\, is an opportunity to connect with others in the Northern Ireland TSC community and to learn more about the Belfast TSC Clinic. \nCome along to hear from TSC specialists at the Belfast clinic as we discuss: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\, including a look over the last year\nTSC treatment and management\, with a focus on Northern Ireland\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Belfast team\n\nRegistration is free and open until 5pm on Thursday 10 March. URL:https://tuberous-sclerosis.org/event/belfast-clinic-catchup-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/belfast-tsc-clinic-catchup-2022.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220227 DTEND;VALUE=DATE:20220228 DTSTAMP:20260928T152831 CREATED:20190930T191506Z LAST-MODIFIED:20211207T160918Z UID:8571-1645920000-1646006399@tuberous-sclerosis.org SUMMARY:The Grand Brighton Half Marathon DESCRIPTION:The Brighton Half\nOh we do like to run beside the seaside… The Brighton Half 2020 is on Sunday 23rd February when we celebrate 30 years of the event. A sell out race with a beautiful seafront course\, amazing crowd support and flat course. \nTaking part is easy… \nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAPhoneThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/the-grand-brighton-half-marathon-2/ LOCATION:Brighton CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/brighton-box-e1571733941834.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220112T180000 DTEND;TZID=Europe/London:20220112T190000 DTSTAMP:20260928T152831 CREATED:20211210T111911Z LAST-MODIFIED:20211210T112035Z UID:88066-1642010400-1642014000@tuberous-sclerosis.org SUMMARY:Financial wellbeing with The Money Charity DESCRIPTION:Would you like to feel more confident about money?\nThis 1-hour virtual workshop\, delivered by The Money Charity and trainer Emma Waller (financial wellbeing consultant and co-author of Martin Lewis book ‘Your Money Matters’)\, is designed to help attendees manage their money better\, stay on top of their finances and plan for the future. It also offers the latest in money saving tips. \nThe workshop will cover: \n\nThe importance of financial resilience\nBudgeting & planning\nCredit & borrowing & your credit score\nWhere to access support for debt\nWays to save money in everyday life\nHow to make your money work harder\n\nAll attendees will receive a free digital copy of The Money Manual – a handy guide to making the most of your money. Attendees will never be offered financial products or services during or after our workshops. \nThis virtual workshop is free to attend but is restricted to a maximum of 20 registrations – so be quick! URL:https://tuberous-sclerosis.org/event/financial-wellbeing/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/the-money-charity-header.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211211T150000 DTEND;TZID=Europe/London:20211211T171500 DTSTAMP:20260928T152831 CREATED:20211029T094201Z LAST-MODIFIED:20211029T094201Z UID:87515-1639234800-1639242900@tuberous-sclerosis.org SUMMARY:Virtual Outlook festive special 2021 DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nLast year\, Outlook – a special community for adults mildly affected by TSC – held a virtual festive special for the first time. The event went so well\, that we’re bringing it back for 2021! \nWhether you’ve been to Outlook before or if it’s your first time\, come along to meet with others virtually on Saturday 11 December\, 3pm – 5:15pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nOutlook festive special 2021 agenda: \n\n3pm – 3:05pm\, Welcome and introductions\n3:05pm – 3:20pm\, Update from the TSA\n3:20pm – 4pm\, Christmas quiz (courtesy of Phil Rogers)\n4pm – 4:10pm\, Break\n4:10pm – 5pm\, Group discussion: Reasons to be positive in 2021 and 2022\n5pm – 5:15pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 1pm Saturday 11 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible. URL:https://tuberous-sclerosis.org/event/outlook-festive-2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/outlookfestive2021.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211208T180000 DTEND;TZID=Europe/London:20211208T190000 DTSTAMP:20260928T152831 CREATED:20211110T114234Z LAST-MODIFIED:20211110T114234Z UID:87562-1638986400-1638990000@tuberous-sclerosis.org SUMMARY:Cardiff TSC Clinic update 2021 DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 8 December\, 6pm – 7pm\, the TSA welcomes Dr Jenny Gardener (Consultant Clinical Geneticist)\, Dr Anurag Saxena (Consultant Paediatric Neurologist) and Karen Bailey (TSC Specialist Nurse) to discuss the Cardiff NHS TSC clinic. Topics will include: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\nTSC treatment and management\, including access to everolimus in Wales\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm Saturday 8 December). URL:https://tuberous-sclerosis.org/event/cardiff-clinic-update-2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/11/cardiff-clinic-update-2021.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211123T180000 DTEND;TZID=Europe/London:20211123T190000 DTSTAMP:20260928T152831 CREATED:20211018T094655Z LAST-MODIFIED:20211018T094655Z UID:87436-1637690400-1637694000@tuberous-sclerosis.org SUMMARY:Virtual event: TSC and lymphangioleiomyomatosis (LAM) DESCRIPTION:Virtual event: TSC and lymphangioleiomyomatosis (LAM).\n \nAround three in every 10 women who live with TSC\, and a very small number of males\, also develop complications in the lungs\, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person varies significantly amongst individuals living with TSC\, with problems ranging from shortness of breath and coughing to chest pain or a collapsed lung. \nIn this free virtual event\, we welcome Professor Simon Johnson (LAM National Centre Director) to discuss the condition in more detail\, what it can mean for people who live with the condition day-to-day\, and what next steps people with TSC and LAM may have. \nTaking place on Tuesday 23 November\, 6pm – 7pm\, this free event will also include a question and answer section – giving you the chance to put your LAM questions to Professor Johnson. \n‘TSC and LAM’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and LAM can be found here\, or by contacting the TSA Support Line. URL:https://tuberous-sclerosis.org/event/tsc-and-lam/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/tsclamslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211118T190000 DTEND;TZID=Europe/London:20211118T200000 DTSTAMP:20260928T152831 CREATED:20211015T130557Z LAST-MODIFIED:20211118T104049Z UID:87372-1637262000-1637265600@tuberous-sclerosis.org SUMMARY:TSA Annual General Meeting 2021 DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2021 will take place Thursday 18 November\, 7pm – 8pm. The AGM will take place virtually\, via a video conferencing platform. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you. \nTo attend the AGM 2021\, please register your place below. Tickets will be available until 5pm on Thursday 18 November. \nTSA AGM 2021 materials can be read here: \n\nAGM 2021 Trustees letter\nAGM 2021 Notice\nA Year in Review: 2020 (including the latest Treasurer’s Report\, Strategic Report\, the 2020 Summarised Statement of Financial Activities and the Balance Sheet for 2020) URL:https://tuberous-sclerosis.org/event/agm2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211110T193000 DTEND;TZID=Europe/London:20211110T203000 DTSTAMP:20260928T152831 CREATED:20211019T100351Z LAST-MODIFIED:20211019T100351Z UID:87465-1636572600-1636576200@tuberous-sclerosis.org SUMMARY:Virtual event: Introduction to supporting siblings DESCRIPTION:Do you want to find out more about supporting siblings whose brothers or sisters live with TSC?\n\n \nThe TSA is delighted to host ‘Introduction to supporting siblings’\, a special virtual workshop organised in partnership with siblings charity\, Sibs. \nPresented by Sibs\, this workshop is intended for parents and guardians of children living with TSC who want to know more about supporting siblings. The focus of the workshop will be on supporting siblings. This workshop is not for professional workers. \nThe workshop will give parents and guardians an insight into siblings’ needs and experiences\, and gives some ideas for giving siblings attention \n‘Introduction to supporting siblings’ is free to register and attend. Unlike other TSA events\, this event is presented by Sibs\, with the TSA facilitating the opportunity for the workshop to be focused on the TSC community. \nAttendance is limited to only a very small number of attendees – do not delay registering\, to help guarantee your place. \nOnce registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here. URL:https://tuberous-sclerosis.org/event/supporting-sibs/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/sibsslate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211027T180000 DTEND;TZID=Europe/London:20211027T190000 DTSTAMP:20260928T152831 CREATED:20210928T110722Z LAST-MODIFIED:20210928T111332Z UID:87104-1635357600-1635361200@tuberous-sclerosis.org SUMMARY:Virtual event: TSC and its impact on skin DESCRIPTION:Virtual event: TSC and its impact on Skin\n \nIn this virtual event\, we welcome Dr Lea Solman (Consultant in Paediatric Dermatology\, Great Ormond Street Hospital) to discuss all-things skin-related in the world of TSC. \nSkin and dermatology issues are some of the most significant factors of living with TSC\, with around nine in every 10 people who live with TSC also experiencing skin problems as a result of the condition. Dr Solman will cover the key areas of TSC and skin\, including the most common ways that TSC affects the skin\, and treatment and management of TSC skin issues. The session will include opportunities to also ask Dr Solman questions in a Q&A portion of the event. \n‘TSC and its impact on skin’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here. URL:https://tuberous-sclerosis.org/event/tsc-and-skin/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/09/skinslate4.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260928T152831 CREATED:20200813T142009Z LAST-MODIFIED:20210802T143306Z UID:22362-1633219200-1633305599@tuberous-sclerosis.org SUMMARY:London Marathon 2021 DESCRIPTION:London Marathon 2021 (Sunday 3 October 2021)\nGot inspired by seeing the virtual London Marathon 2020 runners? Get a spot at the London Marathon 2021 and raise money to help the TSA improve lives in the TSC community! \nBy taking part in the London Marathon 2021\, you can make a real difference to individuals and families that are affected by TSC. \nTSA places in the London Marathon 2021\nApplications for TSA places in the London Marathon 2021 are now closed. \nHowever if you have secured your own place in the London Marathon 2021 via the official ballot or a deferred place\, You can still be part of #TeamTSA and raise money for the TSA. You also won’t have to pledge a minimum sponsorship amount – just raise what you can! \nWant to be part of the 2022 team? \nClick here for full details and to register. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose URL:https://tuberous-sclerosis.org/event/london-marathon-2021/ LOCATION:London CATEGORIES:Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/donate-by-easy-fundraising.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210919 DTEND;VALUE=DATE:20210920 DTSTAMP:20260928T152831 CREATED:20200218T160256Z LAST-MODIFIED:20211207T154109Z UID:19497-1632009600-1632095999@tuberous-sclerosis.org SUMMARY:Scottish 10K DESCRIPTION:The route starts and finishes just outside Edinburgh at Musselburgh Racecourse. The Scottish 10K route is seriously fast and flat! You’ll run out and back along the magnificent Golf Coast before finishing in the final furlong at Musselburgh Racecourse; Scotland’s oldest racecourse. \nTo secure a TSA place please contact us – Fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/scottish-10k/ LOCATION:Musselburgh Racecourse CATEGORIES:10k ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/02/c437aec7-f8f5-451e-a4a1-a8664a24cfea.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210912 DTEND;VALUE=DATE:20210913 DTSTAMP:20260928T152831 CREATED:20200804T142717Z LAST-MODIFIED:20200804T142823Z UID:22302-1631404800-1631491199@tuberous-sclerosis.org SUMMARY:Great North Run 2021 DESCRIPTION:For information on running the Great North Run in 2021 for the TSA please contact the team on Fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/great-north-run-2021/ LOCATION:Newcastle CATEGORIES:Featured Events,Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/gnr-finish-box-e1571734968927.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210602T180000 DTEND;TZID=Europe/London:20210602T190000 DTSTAMP:20260928T152831 CREATED:20210519T100304Z LAST-MODIFIED:20210519T100304Z UID:85928-1622656800-1622660400@tuberous-sclerosis.org SUMMARY:Virtual event: The importance of sleep in children with TSC DESCRIPTION:Do you want to know about the impact of sleep on wellbeing\, behaviour and managing TSC in children living with the condition?\n \nJoin us for this live session\, where sleep experts Dr Stacey Bissell (Research Fellow\, University of Birmingham)\, Dr Caroline Richards (Senior Lecturer\, University of Birmingham) and Dr Catherine Hill (Associate Professor\, University of Southampton) will discuss how sleep impacts on the daily lives of children affected by TSC. \nDuring the event\, we will cover: \n\nSleep studies in TSC (eSNORE)\nHow sleep can affect wellbeing\, behaviour and managing TSC\nA Q&A session to ask your important questions about sleep to the experts\n\nThis is the first TSA virtual session focused specifically on TSC and sleep – don’t miss it! URL:https://tuberous-sclerosis.org/event/virtual-event-importance-sleep-children/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/05/sleep-thumbnail.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210520T180000 DTEND;TZID=Europe/London:20210520T190000 DTSTAMP:20260928T152831 CREATED:20210429T123503Z LAST-MODIFIED:20210429T123713Z UID:85797-1621533600-1621537200@tuberous-sclerosis.org SUMMARY:Virtual event: A values-based approach to improving mental health (ACT) in TSC DESCRIPTION:TSC and mental health: A values-based approach to improving mental health (ACT)\n \nIn the webinar\, Dr Jennifer Black (Clinical Psychologist\, Bristol Royal Hospital for Children) will introduce skills that allow you to deal with difficult thoughts and feelings\, so they have less of an influence over you. \nLiving with a long-term physical health condition can have a significant impact on emotional wellbeing and quality of life. This webinar will focus on how people living with TSC can be supported to live well alongside ongoing health problems. It will focus on Acceptance and Commitment Therapy (ACT)\, a type of talking therapy that encourages openness to and awareness of the present moment in order to help people maintain behaviours consistent with their life goals. \nACT fosters engagement with\, rather than avoidance of\, painful experiences to move towards acceptance of unchangeable difficulties alongside building a rich and meaningful life despite the presence of ongoing difficulties. URL:https://tuberous-sclerosis.org/event/values-based-approach-to-improving-mental-health/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/04/Dr-Black-webinar-slate-2.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210515 DTEND;VALUE=DATE:20210517 DTSTAMP:20260928T152831 CREATED:20191003T162859Z LAST-MODIFIED:20210802T143218Z UID:8919-1621036800-1621209599@tuberous-sclerosis.org SUMMARY:Tea & SCones for TSC DESCRIPTION:Tea & SCones for TSC\nIt doesn’t matter when you you pop the kettle on but please do!\nGet your oven gloves ready and the tea pot out and organise a TSC community tea party \nTea & SCones for TSC\, our flagship event focused on baking (or just grabbing a biscuit) and having a brew\, all to raise funds to help improve lives in the TSC community\, went virtual last year for the first time. It was such a great success that for 2021\, at a time when we’re all keen to connect with others\, we’re doing it again! \nWhere should I hold my Tea & SCones event?\nYou can host your event anywhere – as long as you are following local government guidelines and restrictions. This might mean that you can host something in a garden\, or even virtually through Facebook\, WhatsApp or Zoom. \nSocially distanced event – Download our fundraising guide with some top tips\, but we ask everyone to make sure they follow local guidelines around social distancing. \nVirtual Tea and SCones event – Download our fundraising guide on how to make your virtual event a success – and even better when everyone does their own washing up! \nWhat’s new for 2021?\nWe are delighted to announce that we have a ‘Cuppa Quiz’. We’ve got together with some members of the TSC community to create a quiz ready for your Tea & SCones event! Whether you’re hosting an event in-person (in line with social distance guidelines) or virtually\, you can gather your guests for a quiz! For full details download our Cuppa Quiz Guide. \nSaturday 15 May 2021 is TSC Global Awareness Day\,  and marks the start of Tea & SCones for TSC season! We want you to get involved by getting family\, friends and colleagues involved in a Tea & SCones for TSC  event. But remember that you can do a Tea & SCones event at any time\, so don’t worry if you can’t make that day. Let’s get Tea & SCones for TSC happening all around the world! \nFor full details please visit the Tea & SCones for TSC homepage. \nIf you have any questions about Tea & SCones for TSC or any other fundraising opportunities we’d love to hear from you – either by emailing fundraising@tuberous-sclerosis.org or calling 0300 222 5737. URL:https://tuberous-sclerosis.org/event/tea-and-scones-for-tsc/ LOCATION:Anywhere CATEGORIES:Community Fundraising ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/03/scones.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210417T133000 DTEND;TZID=Europe/London:20210417T160000 DTSTAMP:20260928T152831 CREATED:20210107T112646Z LAST-MODIFIED:20210414T110027Z UID:54602-1618666200-1618675200@tuberous-sclerosis.org SUMMARY:Outlook 2021 virtual meeting DESCRIPTION:Are you an adult mildly affected by TSC? Join us for the Outlook 2021 virtual event on 17 April and get to know others in the TSC community!\n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nThere’ll be opportunities to: \n\nConnect with others who understand the impact that TSC can have\nTake part or watch interesting sessions about living with TSC\nLearn more about the work of the TSA\n\nLockdowns and social distancing won’t stop the Outlook community from coming together – Outlook 2021 will take place via Zoom. \nRegistration will be open until 12pm Saturday 17 April. \nPlease find our agenda for Outlook 2021 below. \nOutlook 2021 virtual meeting agenda\n\n1:30pm – 1:35pm: Welcome\, introductions and housekeeping\n1:35pm – 1:50pm: TSA update\n1:50pm – 3:00pm: Your life a year on with covid-19: Transforming yourself and your outlook (with Positive Psychologist Andrew Parsons\, Reciprocal Minds\n3:00pm – 3:15pm: Break\n3:15pm – 3:55pm: Living with TSC: Looking forward to 2021 and beyond\n3:55pm – 4pm: Thank you and stay safe URL:https://tuberous-sclerosis.org/event/outlook2021/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/Outlook-logo-2021.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210413T180000 DTEND;TZID=Europe/London:20210413T190000 DTSTAMP:20260928T152831 CREATED:20210323T115634Z LAST-MODIFIED:20210401T101516Z UID:85523-1618336800-1618340400@tuberous-sclerosis.org SUMMARY:Covid-19 and children with TSC: Q&A special DESCRIPTION:Many families in the TSC community have questions about next steps for themselves and their children who live with TSC\, as we work through the covid-19 pandemic. Here\, we hope to shed light on all-things related covid-19 and children who live with TSC.\nJoin us on Tuesday 13 April\, as Dr Jill Cadwgan (Consultant in Paediatric Neurodisability\, Evelina Children’s Hospital) discusses and answers the most important questions to you about children affected by TSC in relation to covid-19\, including: \n\n“Why are children not being routinely vaccinated?”\n“What about children who are ‘clinically extremely vulnerable’ to covid-19?”\n“Should we continue to shield?”\n\nRegister for the event by clicking below. Registration will be open until 4pm Tuesday 13 April. URL:https://tuberous-sclerosis.org/event/covid19-children-qa/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/03/Tanjala-webinar-slate2.png END:VEVENT END:VCALENDAR