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X-WR-CALNAME:The Tuberous Sclerosis Association
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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;VALUE=DATE:20260524
DTEND;VALUE=DATE:20260525
DTSTAMP:20261001T081618
CREATED:20260325T150937Z
LAST-MODIFIED:20260330T133356Z
UID:97814-1779580800-1779667199@tuberous-sclerosis.org
SUMMARY:TSA Get Together: Newport (24 May)
DESCRIPTION:Sunday 24 May 2026\, 11am – 1pm\nDolman Theatre\, Newport\nBook your tickets for this TSA Together event in NewportJoin our amazing TSA Ambassadors for a TSA Get Together. Come along\, grab a tea or coffee and meet with others in the TSC community\nThis event takes place on Sunday 24 May at the Dolman Theatre\, Newport\, 11am – 1pm. If you’re looking for a laid back and easy opportunity to meet other individuals and families with TSC\, this is it. Have a tea or coffee\, a plate of food and chat with others about all-things TSC. \nThis event is part of our TSA Together programme\, proudly organised by two of our amazing official TSA Ambassadors\, Lou and Darian – more from them below! \nRemember\, this is completely free to attend. \nBook your tickets for this TSA Together event in NewportAbout our TSA Ambassadors\, Lou and Darian\n“Our daughter Hallie has TSC. She was diagnosed at 2 months old and we were left to take in this information and learn to live with the diagnosis and all of the appointments\, medications and therapies on our own. We found out about the TSA and went to the Big Day that they hosted when Hallie was nearly a year old. It was the first time we met other people and families who understand the condition\, some were at the beginning of figuring it all out like us and some were old hands. It was so nice to not feel so alone in it all. Having the coffee mornings means that we are able to meet more local people living with TSC and to be able to talk to and share with people who understand.” \nWhat is TSA Get Together?\nTSA Get Together events are focused on getting people in the nearby TSC community together. They’re usually organised and ran by TSA Ambassadors\, with the support of the TSA. \nTSA Get Together meetings include things like coffee catchups\, talks about TSC and family events. At Newport\, we’re welcoming people to come along to meet others in the TSC community in a very relaxed atmosphere. \nWhen and where will TSA Get Together Newport take place\nIt’s happening on Sunday 24 May 2026 at the Dolman Theatre. Doors open at 11:00am and things will close at around 1pm\, but feel free to come at any time. \nThe Dolman Theatre is near the centre of Newport\, with local parking available (check before travelling). \nIs there an agenda?\nThe focus is on making the event free and easy\, and more of an opportunity for people to pop around and get to know others. \nDoes the TSA offer care support at this event?\nThe TSA does not offer care support or a creche for this event. If you require a carer\, we kindly ask that your carer comes with you. \nWho is this event for?\nTSA Get Together Newport is for everyone in the TSC community. In particular\, we’d love to see families and individuals getting to know each other\, comfortable in the knowledge that everyone in the room understands the impact of TSC. \nI want to help with TSA Get Together events\nFantastic! We have this event\, plus more planned around Wales later in the year and hopefully more across the UK after this. \nWe’re always looking for volunteers\, so get in touch by contacting support@tuberous-sclerosis.org. \nDo you offer travel support?\nFinancial problems should never be a barrier to people attending TSA events. We’ve got a small pot set aside for travel bursaries. Please get in touch to discuss this more with us: support@tuberous-sclerosis.org. \nBook your tickets for this TSA Together event in Newport
URL:https://tuberous-sclerosis.org/event/tsa-get-together-newport-24-may/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2025/01/TSA-Get-Together-Newport.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20261001T081618
CREATED:20260421T144807Z
LAST-MODIFIED:20260602T093238Z
UID:97858-1780704000-1780790399@tuberous-sclerosis.org
SUMMARY:**SOLD OUT** Big Day 2026 - Sat 6 June (Milton Keynes)
DESCRIPTION:***BIG DAY 2026 IS NOW AT CAPACITY. THANK YOU TO EVERYONE WHO HAS SIGNED UP\, WE LOOK FORWARD TO SEEING YOU THERE***\nBook your tickets for Big Day 2026 **BOOKINGS NOW CLOSED**Saturday 6 June 2026\, 10am – 4:30pm\nLeonardo Hotel\, Milton Keynes\n\nEveryone in the TSC community is welcome to Big Day! Come along to share experiences\, make new friends and discuss life with TSC\nBig Day 2026 will take place on Saturday 6 June at the Leonardo Hotel\, Milton Keynes\, 10am – 4:30pm. \nThis page has lots of helpful information about what to expect at Big Day\, our biggest annual event of the year. ‘Biggest’ might sound daunting\, but we encourage everyone in the TSC community to attend and to enjoy the day in any way that they prefer. This gives us all the chance to make friends\, connect and learn together. \nConcerned about the cost of Big Day? You might be eligible for the TSA Support Fund\, or you’re in financial difficulties you can apply for complementary tickets by contacting the TSA Support Line. \n\nBig Day 2026 agenda\n\n10:00-10:30: Welcome and introductions with teas and coffees\n10:30-11:10: Concurrent Sessions:\nEarly development for newly diagnosed – Dr Rana Mohamed\nTransition to adult care – Catherine Swales\nSiblings support chat – Nicola Daykin and Arlo Taylor-Osmond\nTSC and adult relationships – Kate Linden-Wyatt\n11:15-12:00: The benefits of mindfulness – Tony O’Shea-Poon\n12:00-13:30: Lunch\n13:30-14:15: Metformin trial update and the importance of a TSC registry – Dr Sam Amin\n14:15-15:00: Researcher panel – Dr Stacey Bissell\, Dr Lucas Gutierrez Lafrentz and Dr Felix Chan\n15:00-15:15: Community speaker: Life with TSC – Arlo Taylor-Osmond\n15:15-15:45: Coffee break and raffle\n15:45-16:30: Update on TSC and genetics research – Prof Andrew Tee\n16:30: Thank you and goodbye\n\nWhat is Big Day?\nBig Day is one of the TSA’s longest-running events. Everyone in the TSC community is invited to come along in-person and connect with others affected by TSC. It is a full-day event\, with talks\, opportunities to make new friends\, and the chance to speak with people from the TSA. \nAt Big Day you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nDiscuss a range of topics\, all focused on TSC\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\n\nWe try to keep Big Day as affordable for everyone. Tickets are priced £10 for adults and are free for children under 18. This helps us to get back a small amount of what it costs to run the event and to provide a free creche. \nWhen and where will Big Day 2026 take place?\nBig Day 2026 will take place on Saturday 6 June 10am – 4:30pm at the Leonardo Hotel\, Milton Keynes. \nLeonardo Hotel Milton Keynes is conveniently located near Milton Keynes Central Rail Station and easily accessible by car or public transport. \nOff-site parking is available opposite the hotel on Midsummer Boulevard\, approximately 50 metres away. The tariffs are: \n\nStandard tariff (purple bays) £1 per hour for the first two hours\, then 50p per hour (minimum stay two hours)\nPremium tariff (red bays) £2.50 for the first hour\, then £2 per hour\nLong stay tariff (blue bays) £10 all day\n\nParking charges apply from 7am to 6pm every day. For more details – Where to park | Milton Keynes City Council \n\n\n\n\n\n\n\n\n\n\n\nI'm nervous about Big Day 2026 being too busy\nBig Day can be a buzzing event. However\, you can go at your own pace – there’s no pressure to be involved in any session that you would prefer to sit out. If you’d rather just spend the day talking to others in a quiet corner\, then you’re welcome to do so! \nDoes the TSA organise accomodation?\nThe TSA does not organise accommodation directly. Accommodation isn’t a requirement in order to attend. To book a room at Big Day’s 2026 venue the Leonardo Hotel\, Milton Keynes you can click here. \nOther nearby hotels include: \n\neasyHotel Milton Keynes Central\nMoxy Milton Keynes\nHoliday Inn Express Milton Keynes\n\nDoes the TSA provide a creche or carer support at Big Day 2026?\nWe’re delighted to provide a creche at this year’s Big Day for children aged under 18. We’ve partnered once again with the fantastic Event Childcare to offer this service. Event Childcare is a family-owned team who provide SEN nannies at events\, including Big Day. We were delighted to welcome Event Childcare to previous Big Days. \nThe creche will be available 10am – 4:30pm. The creche is provided in a room very close to the main Big Day meeting room. If you plan to make use of the creche facilities at Big Day\, please ensure that you include this on your booking form. \nOther than the creche\, the TSA will not provide any other form of care support at Big Day. If you require a carer at Big Day\, we kindly ask that your carer comes with you. If paying for care support to attend Big Day is a challenge for you\, you might want to consider applying to the TSA Support Fund. \nWhat sort of people go to Big Day?\nBig Day welcomes everyone in the TSC community. Whether you live with TSC yourself\, if you’re a family member or partner of someone who has TSC\, or a carer or other professional – we’ll be delighted to welcome you! \nBig Day is a chance for the entire TSC community as a whole to connect\, whoever you are and how much TSC affects you and your family. This includes TSA staff\, who will be in attendance too! \nI want to help organise Big Day\n\n\n\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Big Day! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \n\n\n\nI want to come to Big Day 2026 but can't afford it\nAlthough the TSA always tries to keep the price of Big Day for attendees as low as possible\, all the costs associated with event – including travel\, accommodation and food – can quickly add up. \nTSA Support Fund might be able to help. Open to people affected by TSC and in receipt of benefits\, the TSA Support Fund offers grants to people when the financial impact of TSC becomes too much – including with costs towards paying for attending Big Day whether it’s costs towards travel\, accommodation or care support (or anything else). \nYou can also apply for complementary tickets for Big Day by contacting the TSA Support Line. \nAre dogs allowed to attend Big Day?\nUnfortunately\, we do not allow dogs to attend Big Day. Assistance dogs are of course exempt and are welcome to attend. We apologise for any inconvenience or disappointment this may cause. \nBook your tickets for Big Day 2026 **BOOKINGS NOW CLOSED**
URL:https://tuberous-sclerosis.org/event/big-day-2026-sat-6-june-milton-keynes-2/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2025/12/CV242_TSA_250614.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260618T180000
DTEND;TZID=Europe/London:20260618T190000
DTSTAMP:20261001T081618
CREATED:20260608T154747Z
LAST-MODIFIED:20260608T154747Z
UID:97923-1781805600-1781809200@tuberous-sclerosis.org
SUMMARY:TSC Teens Art Club: 18 June 2026
DESCRIPTION:Click here to register for this event\nJoin professional artist Sarah Goy for the regular virtual TSC Teens Art Club!\nTSC Teen Art Club is a regular virtual creative event\, especially for teenagers in the TSC community. It’s focused on a playful approach to art. Sarah\, who also has TSC herself\, runs the events virtually on Zoom. \nThe hope is that each session will support mental health and help to build peer connections\, reducing isolation and encouraging togetherness. It’s a non-judgemental\, open and go-at-your-own-pace environment. \nThe next session will take place on Wednesday 18 June from 6:00pm.  \nSign-ups will receive an art kit\, completely free of charge! \nIf you’re a caregiver or parent\, you’re very welcome to join with your teen. Teens who are friends or family members of those affected by TSC are also welcome\, as TSC affects entire groups. \nIf you feel that you benefit from the events\, please consider donating to Sarah’s TSA fundraiser. \nSarah is a professional artist\, based in Bournemouth. She’s a visiting lecturer at Arts University Bournemouth (AUB) – BA and MA Animation. \nSince 2017\, Sarah also creates and runs online art therapy styled creative sessions\, encouraging a sense of play through which new skills are gained\, whilst encouraging a sense of community and inclusivity. \nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/tsc-teens-art-club-18-june-2026/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2025/11/Teen-art-club-slate-1.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260725T170000
DTEND;TZID=Europe/London:20260725T180000
DTSTAMP:20261001T081618
CREATED:20260516T093431Z
LAST-MODIFIED:20260516T093431Z
UID:97899-1784998800-1785002400@tuberous-sclerosis.org
SUMMARY:July 2026 Outlook Virtual Get Together:
DESCRIPTION:Click here to register for this event\nOutlook is the TSA’s group for adults affected by TSC. Come along to our virtual event to make new friends and share experiences about TSC\, all from the comfort of your home via Zoom.\nAll adults affected by TSC in the UK will receive a warm welcome at Outlook events\, whether it’s your first time at Outlook or you attend every event. \nEveryone who attends an Outlook virtual event can go at their own pace and get as involved as they want. If you’d rather have your camera off\, that is no problem at all. We will be ready to welcome you to the chat whenever you are ready! \n\nSATURDAY 25th JULY 5:00PM-6:00pm\nWEDNESDAY 2nd SEPTEMBER 6:45PM-7:45pm\nSATURDAY 28th NOVEMBER 11:00am-12:30pm (FESTIVE OUTLOOK)\n\nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/july-2026-outlook-virtual-get-together/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2025/02/Virtual-call-slate.png
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DTSTART;TZID=Europe/London:20260902T184500
DTEND;TZID=Europe/London:20260902T194500
DTSTAMP:20261001T081618
CREATED:20260714T181855Z
LAST-MODIFIED:20260714T182405Z
UID:97969-1788374700-1788378300@tuberous-sclerosis.org
SUMMARY:September 2026 Outlook Virtual Get Together:
DESCRIPTION:Click here to register for this event\nOutlook is the TSA’s group for adults affected by TSC. Come along to our virtual event to make new friends and share experiences about TSC\, all from the comfort of your home via Zoom.\nAll adults affected by TSC in the UK will receive a warm welcome at Outlook events\, whether it’s your first time at Outlook or you attend every event. \nEveryone who attends an Outlook virtual event can go at their own pace and get as involved as they want. If you’d rather have your camera off\, that is no problem at all. We will be ready to welcome you to the chat whenever you are ready! \n\nWEDNESDAY 2nd SEPTEMBER 6:45PM-7:45pm\nSATURDAY 28th NOVEMBER 11:00am-12:30pm (FESTIVE OUTLOOK)\n\nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/september-2026-outlook-virtual-get-together/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2025/02/Virtual-call-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261003T100000
DTEND;TZID=Europe/London:20261003T150000
DTSTAMP:20261001T081618
CREATED:20260902T142008Z
LAST-MODIFIED:20260909T083802Z
UID:98072-1791021600-1791039600@tuberous-sclerosis.org
SUMMARY:Welsh TSC Support and Information Day (03.10.26)
DESCRIPTION:Saturday 3rd October 2026\, 10am-3pm\nAll Wales Medical Genomics Service\, Cardiff Edge Business Park\, Cardiff\, CF14 7YU\nBook your tickets for this free event in CardiffJoin the amazing Welsh TSC Clinic for a Welsh TSC Support and Information Day. Come along to learn more about a range of TSC topics\, grab a tea or coffee and meet with others in the TSC community\nDate: Saturday 3 October\, 10:00am–3:00pm\n\n\nVenue: All Wales Medical Genomics Service\, Cardiff Edge Business Park\, Cardiff\, CF14 7YU\n\n\nEvent Summary\nThe Welsh TSC Support and Information Day will bring together individuals and families affected by TSC\, healthcare professionals\, support organisations and researchers for a day of information\, support and networking.\n\n\nRemember\, this is completely free to attend. Everyone affected by TSC is welcome\, even if you live outside of Wales. \nThere is plenty of free parking available at the venue. \nWelsh TSC Support and Information Day \nDate: Saturday 3 October\, 10:00am–3:00pm \nVenue: All Wales Medical Genomics Service\, Cardiff Edge Business Park\, Cardiff\, CF14 7YU \nEvent Summary \nThe Welsh TSC Support and Information Day will bring together individuals and families affected by TSC\, healthcare professionals\, support organisations and researchers for a day of information\, support and networking. \nProvisional programme will consist of refreshments\, updates from TSC experts\, lunch\, support and information sessions and the opportunity to network. \nInformation and Support Stands\, including the TSA \nWales Clinical Staff on hand to talk: \nClinical Nurse Specialist\, Genetic Consultant\, Neurologist and Clinical Psychologist available throughout the day. \nThere is plenty of free parking available at the venue and the event is open to everyone affected by TSC. \nBook your tickets for this event in Cardiff
URL:https://tuberous-sclerosis.org/event/welsh-tsc-support-and-information-day-03-10-26/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2026/09/Welsh-TSC-Support-and-Information-Day-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20261128T110000
DTEND;TZID=Europe/London:20261128T123000
DTSTAMP:20261001T081618
CREATED:20260905T135409Z
LAST-MODIFIED:20260905T135914Z
UID:98096-1795863600-1795869000@tuberous-sclerosis.org
SUMMARY:November 2026 Festive Outlook Virtual Get Together:
DESCRIPTION:Click here to register for this event\nOutlook is the TSA’s group for adults affected by TSC. Come along to our virtual event to make new friends and share experiences about TSC\, all from the comfort of your home via Zoom. This session is festive themed\, so will also feature a festive quiz.\nAll adults affected by TSC in the UK will receive a warm welcome at Outlook events\, whether it’s your first time at Outlook or you attend every event. \nEveryone who attends an Outlook virtual event can go at their own pace and get as involved as they want. If you’d rather have your camera off\, that is no problem at all. We will be ready to welcome you to the chat whenever you are ready! \nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/november-2026-outlook-virtual-get-together-2/
CATEGORIES:Community Event
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