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X-WR-CALNAME:The Tuberous Sclerosis Association
X-ORIGINAL-URL:https://tuberous-sclerosis.org
X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;VALUE=DATE:20200427
DTEND;VALUE=DATE:20200504
DTSTAMP:20260928T190009
CREATED:20190930T175753Z
LAST-MODIFIED:20191023T160545Z
UID:8535-1587945600-1588550399@tuberous-sclerosis.org
SUMMARY:Tour de Yorkshire
DESCRIPTION:Tour De Yorkshire Ride\nThe Tour de Yorkshire Ride offers a unique mix of Tour de France delivery combined with Yorkshire hospitality and beauty resulting in a sportive dream day. This is your chance to ride many of the same roads as the pros before they do\, including the pro finish line\, complete with support from the waiting crowds. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n                 \n \n                        About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n			\n				\n				Yes\n			\n			\n				\n				No- not yet!\n			About youName\n                            \n                            \n                                                    \n                                                    First\n                                                \n                            \n                            \n                                                    \n                                                    Last\n                                                \n                            \n                        Address    \n                    \n                         \n                                        \n                                        Street Address\n                                    \n                                        \n                                        Address Line 2\n                                    \n                                    \n                                    City\n                                 \n                                    \n                                    Postcode\n                                \n                    \n                Date of birth\n                            \n                            MM slash DD slash YYYY\n                        \n                        Email*\n                            \n                        Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n			\n				\n				Yes\n			\n			\n				\n				No\n			Keeping in touch*\n						\n						Select All\n					\n								\n								I am happy to be contacted by email\n							\n								\n								I am happy to be contacted by post\n							\n								\n								I am happy to be contacted by phone\n							\n								\n								I am happy to be contacted by SMS\n							By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n          \n            \n            \n            \n            \n            \n            \n            \n            \n            \n        \n                        Δ \n                        \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.
URL:https://tuberous-sclerosis.org/event/tour-de-yorkshire/
LOCATION:Leeds
CATEGORIES:Cycling
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/yorkshire-tour.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200426
DTEND;VALUE=DATE:20200427
DTSTAMP:20260928T190009
CREATED:20190930T191518Z
LAST-MODIFIED:20191023T160209Z
UID:8586-1587859200-1587945599@tuberous-sclerosis.org
SUMMARY:Tour de Gwent
DESCRIPTION:The Tour de Gwent\nIs the annual cycling event for everyone! With 6 carefully designed routes to choose from\, each with their own unique features\, the event offers something for cyclists of all abilities. From hard-core cyclists looking for an epic leg-burning challenge to families who’d prefer a pleasant ‘there-and-back’ along the River Usk\, you won’t be disappointed. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n                 \n \n                        About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n			\n				\n				Yes\n			\n			\n				\n				No- not yet!\n			About youName\n                            \n                            \n                                                    \n                                                    First\n                                                \n                            \n                            \n                                                    \n                                                    Last\n                                                \n                            \n                        Address    \n                    \n                         \n                                        \n                                        Street Address\n                                    \n                                        \n                                        Address Line 2\n                                    \n                                    \n                                    City\n                                 \n                                    \n                                    Postcode\n                                \n                    \n                Date of birth\n                            \n                            MM slash DD slash YYYY\n                        \n                        Email*\n                            \n                        Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n			\n				\n				Yes\n			\n			\n				\n				No\n			Keeping in touch*\n						\n						Select All\n					\n								\n								I am happy to be contacted by email\n							\n								\n								I am happy to be contacted by post\n							\n								\n								I am happy to be contacted by phone\n							\n								\n								I am happy to be contacted by SMS\n							By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n          \n            \n            \n            \n            \n            \n            \n            \n            \n            \n        \n                        Δ \n                        \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving.
URL:https://tuberous-sclerosis.org/event/tour-de-gwent-2/
CATEGORIES:Cycling
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/cycle-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200418T130000
DTEND;TZID=Europe/London:20200418T153000
DTSTAMP:20260928T190009
CREATED:20200408T091233Z
LAST-MODIFIED:20200408T091233Z
UID:21184-1587214800-1587223800@tuberous-sclerosis.org
SUMMARY:Join us at the Outlook virtual meeting on 18 April
DESCRIPTION:Sign-up now for free tickets to the Outlook virtual meeting\, taking place via web conferencing on Saturday 18 April 2020! \nAre you an adult mildly affected by TSC? Join us to make new friends\, share experiences about living with TSC\, and enjoy unique workshops. \nTickets are available for adults aged 18+ who are mildly affected by TSC. \nInformation on how to join the Outlook virtual meeting will be provided to you after registering for the event. Any questions should go to comms@tuberous-sclerosis.org. \nMore information about the Outlook virtual meeting is available here.
URL:https://tuberous-sclerosis.org/event/virtual-outlook/
CATEGORIES:Community Event,Outlook
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/12/Outlook-2019-2-e1581522154314.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200314
DTEND;VALUE=DATE:20200315
DTSTAMP:20260928T190009
CREATED:20200129T170020Z
LAST-MODIFIED:20200213T080856Z
UID:18035-1584144000-1584230399@tuberous-sclerosis.org
SUMMARY:Family Fun Day Portsmouth - Tickets now on sale!
DESCRIPTION:. \nPurchase tickets below for the TSA Family Fun Day at Blue Reef Aquarium Portsmouth on Saturday 14 March 2020! \nSubsidised tickets purchased through the TSA will be ordered by the charity through Blue Reef Aquarium. Your tickets will be available from the aquarium on the day of the event. \nTickets are limited to x2 adult and x2 child tickets per family\, so that as many families as possible can have the opportunity to come along. Families requiring more tickets can contact Blue Reef Aquarium to purchase standard tickets. \nMore information about the day is available here.
URL:https://tuberous-sclerosis.org/event/family-fun-day-march-2020/
LOCATION:Blue Reef Aquarium Portsmouth\, United Kingdom
CATEGORIES:Community Event,Family Fun Day
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/01/FFD-2020-blue-reef-7.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190928
DTEND;VALUE=DATE:20190929
DTSTAMP:20260928T190009
CREATED:20191003T180214Z
LAST-MODIFIED:20191024T163623Z
UID:8946-1569628800-1569715199@tuberous-sclerosis.org
SUMMARY:Welsh Info Day 2019
DESCRIPTION:Welsh Info Day 2020\nDo you live in Wales and are affected by Tuberous Sclerosis Complex (TSC)?\nCome along to the Welsh Info Day\, our annual flagship event especially for the TSC community in Wales! \nEvery year\, at the Welsh Info Day you can: \n\nMeet and get to know your fellow TSC community in Wales\, including individuals and families affected by the condition\nTalk with the TSA about our upcoming plans and projects\, with a Welsh focus\nHear external Wales organisations talk about how they might be able to help you and your family\n\nPrevious events have included talks and workshops by: \n\nWales Gene Park / Genetic Alliance UK\nMencap Cymru\nCardiff TSC Clinic\n\nThe Welsh Info Day typically takes place early Autumn\, with a date and further information about the Welsh Info Day 2020 expected by Spring 2020. \nWould you like to be involved in organising the Welsh Info Day\, or have some ideas on how it could be improved?\nWe would love to have you involved! Contact us to ask about helping us to organise and manage the day. \nRelated pages\nOutlook 2020\n\nBig Day\n\nFamily Fun Day\n\nScottish Get Together\n\n• Northern Ireland Info Day
URL:https://tuberous-sclerosis.org/event/welsh-info-day-2020/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/08/wales-flag.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190831
DTEND;VALUE=DATE:20190908
DTSTAMP:20260928T190009
CREATED:20191003T180937Z
LAST-MODIFIED:20191024T164806Z
UID:8949-1567209600-1567900799@tuberous-sclerosis.org
SUMMARY:Scottish Get Together 2019
DESCRIPTION:Scottish Get Together 2020\nDo you live in Scotland and are affected by Tuberous Sclerosis Complex (TSC)?\n The Scottish Get Together is for you! \nThe Scottish Get Together is an opportunity for Scotland-based members of the TSC community – including people living with the condition\, their family and carers – to: \n\nMeet and get to know people living in TSC who also live in Scotland\nTalk with the TSA about projects and plans\, all with a Scotland-focus\nHear external Scotland organisations and charities about how they might be able to help you and your family with a range of services\n\nPrevious speakers at the Scottish Get Together 2019 have included: \n\nCerebra\nContact\nEpilepsy Scotland\nFamily Fund\nScottish Association for Mental Health\n\nThe Scottish Get Together typically takes place late Summer\, with a date and further information about the Scottish Get Together 2020 expected by Spring 2020. \nWould you like to be involved in organising the Scottish Get Together\, or have some ideas on how it could be improved? We would love to have you involved! Contact us to ask about helping us to organise and manage the day.
URL:https://tuberous-sclerosis.org/event/scottish-get-together/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/SGT.jpg
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