BEGIN:VCALENDAR VERSION:2.0 PRODID:-//The Tuberous Sclerosis Association - ECPv6.15.20//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:The Tuberous Sclerosis Association X-ORIGINAL-URL:https://tuberous-sclerosis.org X-WR-CALDESC:Events for The Tuberous Sclerosis Association REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20220327T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20221030T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20230326T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20231029T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20240518 DTEND;VALUE=DATE:20240519 DTSTAMP:20260928T232949 CREATED:20231208T145312Z LAST-MODIFIED:20240515T181458Z UID:92430-1715990400-1716076799@tuberous-sclerosis.org SUMMARY:Big Day 2024 - Sat 18 May (Reading) DESCRIPTION:Saturday 18 May 2024\, 10am – 4:30pm\nCrowne Plaza\, Reading\nRegistration for Big Day 2024 is now closed. Thank you to everyone who registered – we’ll see you on 18 May!\n\nEveryone in the TSC community is welcome to Big Day! Come along to share experiences\, make new friends and discuss life with TSC\nBig Day 2024 will take place on Saturday 18 May at the Crowne Plaza Reading\, 10am – 4:30pm. \nOn this page you’ll find lots of helpful information about what to expect at Big Day 2024 – our biggest annual event of the year. At Big Day\, we encourage everyone in the TSC community to attend\, giving us all the chance to connect and learn together. \nConcerned about the cost of Big Day? You might be eligible for the TSA Support Fund\, or you’re in financial difficulties you could apply for complementary tickets (please note that registration is now closed). \n\nThe Big Day 2024 agenda\n\n10:00 – 10:30. Doors open. Tea\, coffee and pastries\n10:30 – 10:45. Welcome and introductions (TSA staff)\n10:45 – 11:15. Finding a new way to treat TSC-related epilepsy (Dr Amanda Almacellas Barbanoj\, TSC researcher)\n11:15 – 12:15. TAND support update. Dr Fiona Senior (Consultant Psychologist\, All-Wales TSC Clinic)\n12:15 – 13:45. Lunch and networking\n13:45 – 14:30. Supporting siblings of children and adults with TSC. Claire Kassa (charity Sibs)\n14:30 – 15:15. The benefits of creativity and art therapy for people with TSC (Sarah Goy\, professional artist)\n15:15 – 15:30. Break\n15:30 – 16:30. Bitesize research updates (Early career TSC researchers)\n16:30. Thank you and close\n\nWhat is Big Day?\nBig Day is one of the TSA’s longest-running events. Everyone in the TSC community is invited to come along in-person and connect with others affected by TSC. It is a full-day event\, with talks\, opportunities to make new friends\, and the chance to speak with people from the TSA. \nAt Big Day you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nDiscuss a range of topics\, all focused on TSC\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\n\nWe try to keep Big Day as affordable for everyone. Tickets are priced £10 for adults and are free for children under 18. This helps us to get back a small amount of what it costs to run the event and to provide a free creche. \nWhen and where will Big Day 2024 take place?\nBig Day 2024 will take place on Saturday 18 May 10am – 4:30pm at the Crowne Plaza Hotel in Reading. \nCrowne Plaza Reading is in central Reading\, a very short taxi journey from Reading station or just a 15-minute walk. Secure parking is available at the hotel at £15\, with other car parking options around the area too. \nIs there an agenda for Big Day 2024?\nBig Day is always a busy event and this year is no different! However\, you can go at your own pace – there’s no pressure to be involved in any session that you would prefer to sit out. If you’d rather just spend the day talking to others in a quiet corner\, then you’re welcome to do so! \nThe Big Day 2024 agenda is now confirmed! As usual\, we’ve planned a full day with lots of opportunities to learn and connect: \n\n10:00 – 10:30. Doors open. Tea\, coffee and pastries\n10:30 – 10:45. Welcome and introductions (TSA staff)\n10:45 – 11:15. Finding a new way to treat TSC-related epilepsy (Dr Amanda Armacellas Barbanoj\, TSC researcher)\n11:15 – 12:15. TAND support update. Dr Fiona Senior (Consultant Psychologist\, All-Wales TSC Clinic)\n12:15 – 13:45. Lunch and networking\n13:45 – 14:30. Supporting siblings of children and adults with TSC. Claire Kassa (charity Sibs)\n14:30 – 15:15. The benefits of creativity and art therapy for people with TSC (Sarah Goy\, professional artist)\n15:15 – 15:30. Break\n15:30 – 16:30. Bitesize research updates (Early career TSC researchers)\n16:30. Thank you and close\n\nDoes the TSA organise accomodation?\nThe TSA does not organise accommodation for Big Day. Accommodation isn’t a requirement in order to attend. \nAttendees might wish to stay in the Crowne Plaza Reading hotel itself\, or to stay in another local hotel. Other nearby hotels include Premier Inn Reading Caversham\, and EasyHotel Reading. \nDoes the TSA provide a creche or carer support at Big Day 2024?\nWe’re delighted to provide a creche at this year’s Big Day for children aged under 18. We’ve partnered with the fantastic Event Childcare to offer this service. Event Childcare is a family-owned team who provide SEN nannies at events\, including Big Day. We were delighted to welcome Event Childcare to previous Big Days. \nThe creche will be available 10am – 4:30pm. The creche is provided in a room very close to the main Big Day meeting room. If you plan to make use of the creche facilities at Big Day\, please ensure that you include this on your booking form. \nOther than the creche\, the TSA will not provide any other form of care support at Big Day. If you require a carer at Big Day\, we kindly ask that your carer comes with you. If paying for care support to attend Big Day is a challenge for you\, you might want to consider applying to the TSA Support Fund. \nWhat sort of people go to Big Day?\nBig Day welcomes everyone in the TSC community. Whether you live with TSC yourself\, if you’re a family member or partner of someone who has TSC\, or a carer or other professional. \nBig Day is a chance for the entire TSC community as a whole to connect\, whoever you are and how much TSC affects you and your family. \nI want to help organise Big Day\n\n\n\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Big Day! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \n\n\n\nI want to come to Big Day 2024 but can't afford it\nAlthough the TSA always tries to keep the price of Big Day for attendees as low as possible\, all the costs associated with event – including travel\, accommodation and food – can quickly add up. \nTSA Support Fund might be able to help. Open to people affected by TSC and in receipt of benefits\, the TSA Support Fund offers grants to people when the financial impact of TSC becomes too much – including with costs towards paying for attending Big Day whether it’s costs towards travel\, accommodation or care support (or anything else). \nYou can also apply for complementary tickets for Big Day here. URL:https://tuberous-sclerosis.org/event/big-day-2024/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/12/Big-Day-2024-slate.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20240420 DTEND;VALUE=DATE:20240421 DTSTAMP:20260928T232949 CREATED:20230726T085404Z LAST-MODIFIED:20240321T121124Z UID:92067-1713571200-1713657599@tuberous-sclerosis.org SUMMARY:Outlook 2024 - Sat 20 April (Cardiff) DESCRIPTION:Saturday 20 April 2024\, 10am – 5pm\nCardiff Masonic Hall\, Cardiff\nClick here to book your free tickets for Outlook 2024Outlook is the TSA’s group for adults who are mildly affected by TSC. Come along to make new friends\, share experiences about TSC\, and attend interesting workshops and talks.\nOutlook 2024 takes place on Saturday 20 April at Cardiff Masonic Hall\, 10am – 5pm. \nAll adults mildly affected by TSC in the UK will receive a warm welcome at Outlook\, whether it’s your first time at Outlook or you come every year. If you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nWe know that seeing all of the talks might feel daunting\, but don’t worry! Everyone who attends Outlook can go at their own pace and get as involved as they want. If you’d rather take a step back\, that is no problem at all. However\, we’ve now got a great agenda for Outlook 2024: \nOutlook 2024 agenda\n\n10:00 – 10:30. Welcome with tea and coffee\n10:30 – 10:45. Icebreaker session\n10:45 – 11:00. Introduction and update from the TSA\n11:00 – 11:45. Researching sleep in TSC (Dr Stacey Bissell)\n12:00 – 13:30. Lunch\n13:30 – 14:30. TSC research update (Dr Chris Kingswood)\n14:30 – 15:00. Coffee break\n15:00 – 16:30. TSC and Art with Sarah Goy\n16:30 – 17:00. Discussions continue\, close\n\nWhat is Outlook?\nOutlook is an event hosted by the TSA\, where adults mildly affected by TSC can come together and connect. The next Outlook is taking place on Saturday 20 April 2024 at the Cardiff Masonic Hall. \nOffering a relaxed\, open and understanding environment of the impact that living with TSC can have on individuals and families\, Outlook is one of the longest-running events hosted by the TSC. \nAt Outlook\, you can be in an environment of over-18s who understand the impact that being mildly affected by Outlook can have on daily life. You can expect things like: \n\nOpportunities to meet and get to know the TSC community mildly affected by TSC\nA chance to hear about the work of the TSA and to speak to the team\nWorkshops and talks on topics that can help people mildly affected by TSC\n\nFood\, drinks\, tea and coffee is provided to all attendees. \nWhen and where will Outlook 2023 take place?\nOutlook 2023 will take place on Saturday 22 April 2023 in Leicester\, at the conference venue Devonshire Place. An agenda will be shared closer to the date with specific timings\, but Outlook typically starts at 10:30am and ends at 5pm. \nDevonshire Place is well located\, just two minutes walk from Leicester train station and with a large carpark. \nIs there an agenda for Outlook 2023?\nWe’ve got a great agenda organised for Outlook 2024: \n\n10:00 – 10:30. Welcome with tea and coffee\n10:30 – 10:45. Icebreaker session\n10:45 – 11:00. Introduction and update from the TSA\n11:00 – 11:45. Researching sleep in TSC (Dr Stacey Bissell)\n12:00 – 13:30. Lunch\n13:30 – 14:30. TSC research update (Dr Chris Kingswood)\n14:30 – 15:00. Coffee break\n15:00 – 16:30. TSC and Art with Sarah Goy\n16:30 – 17:00. Discussions continue\, close\n\n\nIf you’re not comfortable taking part in anything at Outlook\, there’s no pressure at all! Everyone at Outlook is encouraged to do things at their own pace and preference. If you don’t want to participate in any session\, it’s no problem. \nDoes the TSA organise accommodation?\nThe TSA does not organise accommodation for Outlook. However\, Outlook 2024 is taking place at the Cardiff Masonic Hall\, which is very close to lots of hotels for all budgets including: \n\nPremier Inn Cardiff City Centre (2 minutes by foot)\nPark Inn by Radisson Cardiff City Centre (4 minutes by foot)\nLeonardo Hotel Cardiff (5 minutes by foot)\nPremier Inn Cardiff Bay Hotel (30 minutes by foot\, 10 minutes by car)\nTravelodge Cardiff Atlantic Wharf (30 minutes by foot\, 10 minutes by car)\nFuture Inn Cardiff Hotel (30 minutes by foot\, 10 minutes by car)\n\nPlease note: The TSA does not hold any endorsements or agreements with any accommodation or hotel. \nDoes the TSA offer care support at Outlook?\nThe TSA does not offer care support at Outlook. If you require a carer at Outlook\, we kindly ask that your carer comes with you. \nWhat sort of people go to Outlook?\nOutlook is for adults (aged 18+) who are mildly affected by TSC\, but others are welcome too. This includes parents of children with TSC and carers. \nIf you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nOutlook is a friendly and understanding space. You’ll be given a very warm welcome\, from people who understand the impact that TSC can have on individuals and families. Whether you come to Outlook every year or if this is your first time\, we’ll be delighted to have you there! \nI want to help with Outlook\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Outlook! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \nIs there parking available?\nMasonic Hall Cardiff recommend that people driving to Outlook park at the St David’s Shopping Centre\, which is just 300 yards from their front door. There is also a Cardiff Park and Ride system in place. \nMore details can be found on the Masonic Hall’s website here. \nI can't afford to go to Outlook\nTSA Support Fund might be able to help. Open to anyone who lives with TSC and receives benefits\, the TSA Support Fund offers small grants to people when the financial impact of TSC becomes too much – including with grants towards paying for attending Outlook. \nThe TSA wants all adults mildly affected by TSC to attend Outlook if they’d like to\, which is one of the reasons why Outlook tickets are free. Although the TSA always tries to keep the financial impact of Outlook as low as possible\, the costs associated with Outlook – including travel\, accommodation and food – can quickly add up. \nIs there anything planned for the evening before Outlook 2024?\nOutlook officially begins on Saturday 20 April 2024 at the Cardiff Masonic Hall. However\, an unofficial evening meal organised by Outlookers themselves will take place on the Friday evening at a local restaurant. If you’re interested in joining this unofficial meal\, please email us (support@tuberous-sclerosis.org) and we’ll connect you with the meal organisers. \nPlease note: No TSA staff members will be on-hand before or after Outlook. The TSA holds no liability for unofficial meet-ups\, organised meals or connections made as a result of the Outlook event or at any time during the weekend. \nThe TSA provides services like Outlook only thanks to donations. If you’re able to do so\, please give to the TSA so that we can continue to be here for everyone with TSC URL:https://tuberous-sclerosis.org/event/outlook-2024/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/07/Copy-of-Virtual-event-slate-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20230809T180000 DTEND;TZID=Europe/London:20230809T190000 DTSTAMP:20260928T232949 CREATED:20230714T123816Z LAST-MODIFIED:20230725T093830Z UID:91996-1691604000-1691607600@tuberous-sclerosis.org SUMMARY:Wales TSC Clinic catchup 2023 DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Wales NHS TSC Clinic\nOn Wednesday 9 August\, 6pm – 7pm we’ll be delighted to speak with the Wales TSC Clinic. Join us as we hear from the clinic in their annual update and chat broadly with the TSC community in Wales. \nThe session will cover: \n\nRecent clinic updates\, including access and referrals\nBroad updates on TSC diagnosis\, treatment\, and management\nA live Q&A for your questions\n\nClinicians in attendance will include Dr Jennifer Gardner (Specialist Registrar Clinical Genetics). \nRegistration is free – click here to secure your place. \nIf you benefit from this event\, please consider making a donation to the TSA\, to allow us to continue to be here for the TSC community. \nTSA event calendar sponsors 2023: URL:https://tuberous-sclerosis.org/event/cardiff-catchup-2023/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/07/Copy-of-Virtual-event-slate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20230615T180000 DTEND;TZID=Europe/London:20230615T190000 DTSTAMP:20260928T232949 CREATED:20230607T073907Z LAST-MODIFIED:20230607T075514Z UID:91905-1686852000-1686855600@tuberous-sclerosis.org SUMMARY:Belfast TSC Clinic virtual catch-up DESCRIPTION:Join us at the Belfast TSC Clinic catch-up\, as we welcome clinicians and the TSC community in Northern Ireland to come together on all-things TSC!\n \nThe Belfast TSC catch-up 2023\, taking place on Thursday 15 June 6pm – 7pm\, is an opportunity to connect with others in the Northern Ireland TSC community and to learn more about the Belfast TSC Clinic. \nClick here to register your free place \nCome along to hear from TSC specialists at the Belfast clinic as we discuss and hear about: \n\nThe latest clinic updates and information\nTSC treatment and management\, with a focus on Northern Ireland\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Belfast team\n\nRegistration is free and open until 5pm on Thursday 15 June. URL:https://tuberous-sclerosis.org/event/belfast-tsc-clinic-virtual-catch-up/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/06/event-slate-belfast.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20230513 DTEND;VALUE=DATE:20230514 DTSTAMP:20260928T232949 CREATED:20230110T143359Z LAST-MODIFIED:20230320T143504Z UID:90819-1683936000-1684022399@tuberous-sclerosis.org SUMMARY:Big Day 2023 - Sat 13 May (Manchester) DESCRIPTION:Big Day is our biggest event of the year\, where we welcome everyone in the TSC community to get together\, make new friends and be in a place where everyone understands the impact that TSC can have on daily lives.\nBig Day 2023 will take place on Saturday 13 May at the Innside by Melia Hotel in Manchester. At Big Day you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\nDiscuss a range of TSC-related topics\nMore information about Big Day can be found here\n\nLunch and refreshments are provided as part of your ticket booking. Please consider providing a donation to the TSA\, to allow us to continue to run face-to-face events such as Big Day. \nPlease note that the TSA will offer a creche facility at Big Day but will not offer any other care support at the event\, such as personal care support. If you require a carer at Big Day\, we kindly ask that your carer comes with you. \nIf you would like to attend Big Day but are concerned about the financial cost\, you might want to apply for the TSA Support Fund. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/big-day-2023/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/04/Big-Day-logo-2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20230422T103000 DTEND;TZID=Europe/London:20230422T170000 DTSTAMP:20260928T232949 CREATED:20221214T174829Z LAST-MODIFIED:20230216T161713Z UID:90674-1682159400-1682182800@tuberous-sclerosis.org SUMMARY:Outlook 2023 - Sat 22 April (Leicester) DESCRIPTION:Are you mildly affected by TSC? Come to Outlook to make new friends\, be around people who understand the impact of TSC\, and attend interesting talks. \n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nOutlook 2023 will take place on Saturday 22 April 2023 at the Devonshire Place Conference Centre. If you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nA full agenda for Outlook 2023 is now confirmed. We know that seeing all of the talks might feel daunting\, but don’t worry! Everyone who attends Outlook can go at their own pace and get as involved as they want. If you’d rather take a step back\, that is no problem at all. \n\n10:00 – 10:30. Tea and coffee\n10:30 – 11:00. Welcome and icebreaker\n11:00 – 11:15. Update from the TSA (TSA staff)\n11:15 – 12:15. All about Gestalt Counselling (Katie Eliot\, TSC community member and Outlooker)\n12:15 – 13:30. Lunch\n13:30 – 14:30. Life as a TSC Researcher (Dr Felix Chan\, Aston University)\n14:30 – 14:45. Coffee break\n14:45 – 15:30. Living with TSC (Corinne Swainger\, TSC community member and Outlooker)\n15:30 – 16:00. How the TSA can help you (TSA staff)\n16:00. Thank you and close\, group chats continue\n\nMore information about Outlook can be found the main Outlook page here. URL:https://tuberous-sclerosis.org/event/outlook-2023/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/12/Outlook-2023-slate.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20230222T180000 DTEND;TZID=Europe/London:20230222T190000 DTSTAMP:20260928T232949 CREATED:20230207T120013Z LAST-MODIFIED:20230207T121654Z UID:90997-1677088800-1677092400@tuberous-sclerosis.org SUMMARY:TSC and pregnancy with Antenatal Results and Choices (ARC) DESCRIPTION:Our latest virtual event is aimed towards members of the TSC community who are experiencing or have questions around TSC\, family planning and pregnancy.\n \nJoin us for an informative and supportive discussion. This can be a challenging topic and one that we’re committed to doing justice. We’ll provide an opportunity for you to ask questions\, gain knowledge\, and connect with others who are facing similar challenges. \nTo ensure you get the right expertise and information\, we’re pleased to welcome Antenatal Results and Choices (ARC) as part of the event. ARC is a leader in offering support to families who receive a diagnosis of a genetic condition during pregnancy. Their experience will be a valuable resource to the event. \nThis virtual event will be the first of its kind for the TSC community. Virtual tickets are free and will be available until 5pm on the day of the event. \nIf you benefit from this event\, please consider making a donation to the TSA\, to allow us to continue to be here for the TSC community. URL:https://tuberous-sclerosis.org/event/tsc-pregnancy-arc/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/02/TSC-stories.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20230111T180000 DTEND;TZID=Europe/London:20230111T190000 DTSTAMP:20260928T232949 CREATED:20230104T110407Z LAST-MODIFIED:20230104T110407Z UID:90789-1673460000-1673463600@tuberous-sclerosis.org SUMMARY:Wills and future planning with The Money Charity DESCRIPTION:Thinking about finances for when you’re no longer around is an important area of money management\nThis 1-hour virtual workshop\, delivered by The Money Charity\, will help you have greater clarity on organising your finances and the finances of your loved ones\, should you pass away or when you grow older. \nThe workshop will cover: \n\nThe importance of wills\, trusts and planning for finances when you die\nSetting up a will\nPower of attorney\nHealth and social care provision for loved ones after you pass\n\nThis virtual workshop is free to attend and the recording will be available for a limited time only – be sure to sign up! URL:https://tuberous-sclerosis.org/event/wills-future-planning/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/the-money-charity-header.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221210T133000 DTEND;TZID=Europe/London:20221210T150000 DTSTAMP:20260928T232949 CREATED:20220517T125714Z LAST-MODIFIED:20221129T140303Z UID:89544-1670679000-1670684400@tuberous-sclerosis.org SUMMARY:Virtual Outlook festive special 2022 DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nOutlook is our group for adults who are mildly affected by TSC. Every year\, the Outlook group have different opportunities to meet up with others who understand the impact of being mildly affected by TSC. The festive special is a chance for ‘Outlookers’ – even if this is your first event – to get together for the festive season! \nWhether you’ve been to Outlook events before or if it’s your first time\, come along to meet with others virtually on Saturday 10 December\, 1:30pm – 3:00pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nAn agenda for the event can be found below\, but expect opportunities to meet other people mildly affected by TSC in a laid-back atmosphere. \n\n1:30pm – 1:45pm: Welcome and introductions\, update from the TSA\n1:45pm – 2:30pm: Christmas quiz\n2:30pm – 2:55pm: Group discussion: Reasons to be positive\n2:55pm – 3pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 11am Saturday 10 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible. URL:https://tuberous-sclerosis.org/event/virtual-outlook-festive-special-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Outlook-festive-2022.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221207T190000 DTEND;TZID=Europe/London:20221207T200000 DTSTAMP:20260928T232949 CREATED:20220805T154510Z LAST-MODIFIED:20221019T101422Z UID:90064-1670439600-1670443200@tuberous-sclerosis.org SUMMARY:TSA Annual General Meeting 2022 DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2022 is an important opportunity to hear more about the TSA’s strategic planning and goals. By attending the AGM\, you can find out more about the inner-workings of the TSA and how our targets are developed. \nThe TSA’s Board of Trustees will discuss TSA finances\, major achievements of the charity over the last 12 months\, and our plans for 2023 and beyond. Plus\, there’ll be the opportunity to put your questions and comments to TSA Trustees. Opening stages of the event will include Trustees voting on agenda points for the AGM. \nThe AGM 2022 will take place virtually on Wednesday 7 December\, 7pm – 8pm. To attend the event\, please register below. Registration will remain open until 6pm on the day of the event. \nIf you have a question that you would like to ask the TSA Board of Trustees as part of the TSA’s AGM 2022\, please email the TSA’s Joint Chief Executives: admin@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/tsa-annual-general-meeting-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221123T180000 DTEND;TZID=Europe/London:20221123T190000 DTSTAMP:20260928T232949 CREATED:20220504T133151Z LAST-MODIFIED:20220504T133151Z UID:89599-1669226400-1669230000@tuberous-sclerosis.org SUMMARY:TSC and music therapy: Session 4 DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-4/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-4.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221116T180000 DTEND;TZID=Europe/London:20221116T190000 DTSTAMP:20260928T232949 CREATED:20220504T132958Z LAST-MODIFIED:20220504T132958Z UID:89595-1668621600-1668625200@tuberous-sclerosis.org SUMMARY:TSC and music therapy: Session 3 DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-3/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-3.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221109T180000 DTEND;TZID=Europe/London:20221109T190000 DTSTAMP:20260928T232949 CREATED:20220504T132654Z LAST-MODIFIED:20220504T132654Z UID:89584-1668016800-1668020400@tuberous-sclerosis.org SUMMARY:TSC and music therapy: Session 2 DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-2/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-2-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221102T180000 DTEND;TZID=Europe/London:20221102T190000 DTSTAMP:20260928T232949 CREATED:20220504T131029Z LAST-MODIFIED:20220504T131029Z UID:89578-1667412000-1667415600@tuberous-sclerosis.org SUMMARY:TSC and music therapy: Session 1 DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/music-therapy-session-1/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221009 DTEND;VALUE=DATE:20221010 DTSTAMP:20260928T232949 CREATED:20200218T154740Z LAST-MODIFIED:20211207T155300Z UID:19484-1665273600-1665359999@tuberous-sclerosis.org SUMMARY:Bournemouth Half Marathon DESCRIPTION:The Bournemouth Half Marathon course takes in both Boscombe and Bournemouth piers along this coastal route. This is running as it should be! \nThe Bournemouth half marathon starts in Kings Park before making it’s way down onto the seafront. You continue to take in the beautiful coastal views as you hit mile 6 – standing mid way between Poole Harbour and Hurst Spit\, Hengistbury Head forms the main division between Poole and Christchurch bays. You then turn west and at around mile 8\, you run along the breathtaking Boscombe Pier. The Pier was first constructed in 1856. The Pier has undergone numerous transformations over the years\, with the addition of the Bournemouth Pier Theatre in 1959. You then run past Lower Gardens at mile 10 before the final home stretch along the stunning coastal seafront and a grandstand finish. \nContact us for details on TSA Places available – fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/bournemouth-half-marathon/ CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/02/bhalf-e1582040771956.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221009 DTEND;VALUE=DATE:20221010 DTSTAMP:20260928T232949 CREATED:20200218T154219Z LAST-MODIFIED:20211207T154238Z UID:19480-1665273600-1665359999@tuberous-sclerosis.org SUMMARY:RunBournemouth - The Supersonic 10K DESCRIPTION:The Supersonic 10K is an increasingly popular race distance\, a great step-up for those who have completed a 5K in the past\, but aren’t quite ready for the half marathon distance. \nThe Supersonic 10K is a fantastic flat & fast course\, great for setting a quick time or for a chance to take in the stunning Bournemouth coastline at your own pace. Starting and finishing near the Run Bournemouth Hub in the Lower Gardens\, this beautiful coastal route heads along Undercliff Drive past some of the lovely Beach Huts\, before turning back towards Bournemouth. The Supersonic 10K route allows runners the rare opportunity to run along the iconic Bournemouth Pier\, before finishing in the gorgeous Lower Gardens for a well-deserved ice cream! \nIf your interested in a TSA place please contact the team – fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/runbournemouth-the-supersonic-10k/ CATEGORIES:10k ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/02/download-e1582040571572.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221008 DTEND;VALUE=DATE:20221009 DTSTAMP:20260928T232949 CREATED:20200218T124354Z LAST-MODIFIED:20211207T153048Z UID:19468-1665187200-1665273599@tuberous-sclerosis.org SUMMARY:Run Bournemouth- The Supersonic 5k DESCRIPTION:The Supersonic 5K is an increasingly popular race distance\, for those who aren’t quite ready for the 10K distance. The Supersonic 5K event is the perfect way to get involved in Run Bournemouth with your family and friends. Starting on Bournemouth Prom and finishing near the Lower Gardens\, this beautiful coastal route allows runners the rare opportunity to run along the iconic Bournemouth Pier. \nIf your interested in a TSA place please contact the team – fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/runbournemouth-5k/ LOCATION:Bournemouth CATEGORIES:5k ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/02/download-e1582040571572.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20221005T180000 DTEND;TZID=Europe/London:20221005T190000 DTSTAMP:20260928T232949 CREATED:20220909T095135Z LAST-MODIFIED:20220909T095135Z UID:90125-1664992800-1664996400@tuberous-sclerosis.org SUMMARY:TSC wellbeing and skin problems DESCRIPTION:Many people with TSC face emotional and wellbeing challenges as a result of skin issues\nOn Wednesday 5 October\, 6pm – 7pm\, we’ll hear from Jules Carr\, Senior Wellbeing Practitioner at Changing Faces\, a charity supporting children\, young people and adults with a visible difference. \nThe event will cover the link between skin conditions and emotional wellbeing\, including actionable steps to support your wellbeing when living with TSC-related skin conditions\, such as facial angiofibromas. Plus\, your chance to put your questions to Jules. URL:https://tuberous-sclerosis.org/event/tsc-wellbeing-skin-problems/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/09/og-img.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20221002 DTEND;VALUE=DATE:20221003 DTSTAMP:20260928T232949 CREATED:20210706T152610Z LAST-MODIFIED:20220909T095522Z UID:86387-1664668800-1664755199@tuberous-sclerosis.org SUMMARY:London Marathon 2022 DESCRIPTION:London Marathon 2022 (Sunday 2 October 2022)\nRun for #TeamTSA in the most iconic and exciting running events of the calendar year\, the TCS London Marathon. \nOur charity places\nApplications for #TeamTSA places in the 2022 event are now closed. If your interested in taking part in 2023 please email fundraising@tuberous-sclerosis.org to register your interest. \nDo you have a ballot place?\nIf you’re lucky enough to get a ballot place in the London Marathon 2022 we would love to have you as part of #TeamTSA. Take on the 26.2 miles in a TSA vest and help us and families affected by TSC. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nAny questions\nOur fundraising team is here for you! Just get in contact with us at fundraising@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/london-marathon-2022/ LOCATION:London CATEGORIES:Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/07/Marathon-Daniel-Marks-e1625731269423.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220918 DTEND;VALUE=DATE:20220919 DTSTAMP:20260928T232949 CREATED:20200218T160004Z LAST-MODIFIED:20211207T155126Z UID:19492-1663459200-1663545599@tuberous-sclerosis.org SUMMARY:Scottish Half Marathon DESCRIPTION:The route is seriously flat & rapid – if you want to set a personal best for a half marathon\, then this is the event for you. Starting conveniently at 11am just outside Edinburgh\, you will run along the magnificent East Lothian Golf Coast before finishing in the final furlong at Musselburgh Racecourse; Scotland’s oldest racecourse. \nWe have TSA places available – please enquire at fundraising@tuberous-sclerosis.org URL:https://tuberous-sclerosis.org/event/scottish-half-marathon/ LOCATION:Musselburgh Racecourse CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/02/Scottish-Half-Marathon-White-3-e1582041594532.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220918 DTEND;VALUE=DATE:20220919 DTSTAMP:20260928T232950 CREATED:20190930T191512Z LAST-MODIFIED:20211207T154136Z UID:8577-1663459200-1663545599@tuberous-sclerosis.org SUMMARY:Sheffield Half Marathon DESCRIPTION:Sheffield Half Marathon\nA major event in the UK’s running calendar\, the Sheffield Half Marathon attracts thousands of runners of all abilities and spectators to the city’s streets and raises many thousands of pounds for good causes.\nWith a city centre start and finish\, the event boasts a super scenic route with stunning views of the Peak District for those who conquer the climb to Ringinglow. \nThe race even incorporates a ‘triple test’ giving entrants a chance to be crowned ‘King of the Hill’ or ‘Queen of the Hill’ in a timed hill climb\, triumph in a 10K downhill sprint section and cross the finish line first to lift the Sheffield Half Marathon title. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHANameThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on JustGiving. URL:https://tuberous-sclerosis.org/event/sheffield-half-marathon-2/ CATEGORIES:Half Marathon ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/sheff-box-e1571733545841.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220911 DTEND;VALUE=DATE:20220912 DTSTAMP:20260928T232950 CREATED:20211207T151206Z LAST-MODIFIED:20211207T151237Z UID:87951-1662854400-1662940799@tuberous-sclerosis.org SUMMARY:London to Brighton Cycle Ride DESCRIPTION:This event is delivered by TSA charity partners Skyline Promotions\, the TSA acts only the benefitting charity from any sponsorship raised.  \nEvent Overview\nOn this iconic London to Brighton Cycle Ride\, leave the buzz of the city behind and join thousands of your fellow cyclists as you face the challenge of a 55-mile.  Journey on two wheels from the heart of London to the buzzing Brighton seafront! \n\nEvent Details\n\n\n\nWhen: 11 September 2022\nWhere: London to Brighton\nDistance: 55 miles\nRegistration fee: £55\nMinimum sponsorship: £150 \n\n\nBook your place\n\n\nPlease click the link below for full event details\, terms and conditions and to book your place. \n\n\nBook your cycle URL:https://tuberous-sclerosis.org/event/london_brighton_cycle/ LOCATION:London CATEGORIES:Cycling ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/L2B-Social-Media-.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220911 DTEND;VALUE=DATE:20220912 DTSTAMP:20260928T232950 CREATED:20210909T101921Z LAST-MODIFIED:20220314T093036Z UID:86978-1662854400-1662940799@tuberous-sclerosis.org SUMMARY:Great North Run 2022 DESCRIPTION:Great North Run 2022 (Sunday 11 September 2022)\n\nThe Great North Run\, the UK’s biggest half marathon\, is back to its iconic ‘city to sea’ route for 2022. If you fancy taking on the challenge on Sunday 11 September 2022\, contact us today for your free TSA place and be part of #TeamTSA at the starting line! \nAll we ask for is a minimum fundraising commitment of £250 (excluding Gift Aid). In return\, we’ll support you with: \n\nA free #TeamTSA running top\nSupport emails and lots of fundraising tips\nA TSA fundraising pack\, online sponsorship page and all other materials you might require\nA dedicated member of the TSA team to help with any queries that you might have\nA loud cheer point on race day!\nPlus\, you get the satisfaction of knowing you’re helping support everyone in the UK affected by TSC\n\n\n\nTo secure your place at the Great North Run\, email fundraising@tuberous-sclerosis.org\, call 0300 222 5737 or fill in the form below. \n\nSecure your TSA place \n\n Notice: JavaScript is required for this content.\n\n\n \n\n\n \n \n \nDo you have a ballot place?\nIf you’re lucky enough to get a ballot place we would love to have you as part of #TeamTSA. Take on the Great North Run in a TSA vest and help us and families affected by TSC. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nAny questions\nOur fundraising team is here for you! Just get in contact with us at fundraising@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/gnr2022/ LOCATION:Newcastle CATEGORIES:Featured Events,Half Marathon ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/09/LIAD7410.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220907T180000 DTEND;TZID=Europe/London:20220907T190000 DTSTAMP:20260928T232950 CREATED:20220304T150938Z LAST-MODIFIED:20220304T150938Z UID:88900-1662573600-1662577200@tuberous-sclerosis.org SUMMARY:Glasgow TSC clinic virtual update 2022 DESCRIPTION:Do you live in Scotland and are affected by TSC? Join us for an important annual update from the Glasgow NHS TSC Clinic\nOn Wednesday 7 September\, 6pm – 7pm\, the TSA welcomes the Glasgow TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management (including access to Epidyolex for TSC-related epilepsy)\nNext steps for the clinic\nA Q&A where you can put your questions to the Glasgow team\n\nRegister below for this free session (registration open until 4pm 7 September). URL:https://tuberous-sclerosis.org/event/glasgow-tsc-clinic-update-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/Glasgow-clinic-virtual-update.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220901 DTEND;VALUE=DATE:20220902 DTSTAMP:20260928T232950 CREATED:20190930T191518Z LAST-MODIFIED:20211207T160431Z UID:8585-1661990400-1662076799@tuberous-sclerosis.org SUMMARY:Great North 5K 2022 DESCRIPTION:Great North 5K\nThe Great North 5k kicks off the Great North Run weekend celebrations in style. Soak up the party atmosphere on a fun and fast 5k route on the Newcastle Gateshead Quayside. \nThe event starts early enough to allow plenty of time to shut down from work and refuel on the Quayside after you cross that finish line! \nIf your interested in taking part for the TSA please secure your own place here. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHACommentsThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nCloseStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/great-north-5k-2/ LOCATION:Newcastle CATEGORIES:5k ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2019/09/5k-image3.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220810T180000 DTEND;TZID=Europe/London:20220810T190000 DTSTAMP:20260928T232950 CREATED:20220517T110426Z LAST-MODIFIED:20220517T110426Z UID:89705-1660154400-1660158000@tuberous-sclerosis.org SUMMARY:St George's London TSC clinic virtual update 2022 DESCRIPTION:Join us for an important annual update from the St George’s (London) TSC Clinic\, one of the largest TSC clinics in the UK\nOn Wednesday 10 August\, 6pm – 7pm\, the TSA welcomes clinicians from the St George’s TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the St George’s team\n\nRegister below for this free session (registration open until 5pm\, 10 August). URL:https://tuberous-sclerosis.org/event/st-georges-catchup-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/St-Georges-clinic-update-2022-1.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220720 DTEND;VALUE=DATE:20220725 DTSTAMP:20260928T232950 CREATED:20211207T150321Z LAST-MODIFIED:20211207T150450Z UID:87933-1658275200-1658707199@tuberous-sclerosis.org SUMMARY:London to Paris Tour de France 2022 DESCRIPTION:This event is delivered by TSA charity partners Skyline Promotions\, the TSA acts only the benefitting charity from any sponsorship raised.  \nEvent Overview\nThis incredible cycle connects two of the world’s most chic capital cities! You will make your way through beautiful English villages and into the stunning countryside of rural France\, passing historical landmarks and famous battlefields until you reach Paris – which is undoubtedly one of the most magical places on earth – and you will have the opportunity to soak up the Tour de France atmosphere on the Champs Elysees before arriving back to London! What an experience! \n\nEvent Details\n\n\n\nWhen: 20-24 July 2022\nWhere: London start and Paris finish\nDistance: 300 miles\nRegistration fee: £149\nMinimum sponsorship: £1\,650 \n\nDownload your ride pack\n\n\n\nPlease use the form below to download your London to Paris cycle ride pack (pdf). The pack contains all the information you need to know before booking. \n\n\n\n\n\n Notice: JavaScript is required for this content.\n\n\n \n\n\n \n \n \nBook your place\n\n\nOnce you have read through your London to Paris cycle ride pack\, you can book your place below. Spaces are filling up quickly so don’t delay! \n\n\nBook your cycle URL:https://tuberous-sclerosis.org/event/london-to-paris-tour-de-france-2022/ LOCATION:Crystal Palace CATEGORIES:Cycling ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/08/cycle-vest.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220706T180000 DTEND;TZID=Europe/London:20220706T190000 DTSTAMP:20260928T232950 CREATED:20220504T150646Z LAST-MODIFIED:20220617T113314Z UID:89605-1657130400-1657134000@tuberous-sclerosis.org SUMMARY:TSC and neurodivergence DESCRIPTION:Around one in two people who live with TSC are neurodivergent. In this virtual event\, we meet The Brain Charity to discuss neurodiversity in more detail\n \nNeurodivergence is the term for when someone’s brain processes\, learns\, and/or behaves differently from what is considered ‘typical’. Examples of neurodivergence includes autism spectrum disorder and Attention deficit hyperactivity disorder (ADHD). \nIt is normal and quite common to be neurodivergent – whether that means you have only a small number of support needs\, or require support needs that a very high. On Wednesday 6 July\, we welcome The Brain Charity\, who offer emotional support\, practical help and social activities to anyone with a neurological condition \nTickets registration for this free event closes at 5pm\, Wednesday 6 July. \nFor any questions or comments\, contact support@tuberous-sclerosis.org. URL:https://tuberous-sclerosis.org/event/tsc-and-neurodivergence/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Brain-charity.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20220703 DTEND;VALUE=DATE:20220704 DTSTAMP:20260928T232950 CREATED:20211207T161748Z LAST-MODIFIED:20211207T161748Z UID:87995-1656806400-1656892799@tuberous-sclerosis.org SUMMARY:Leeds 10k DESCRIPTION:Leeds 10k\nThroughout the route that takes in many of the city’s historic landmarks\, crowds come out in force. A fantastic atmosphere and friendly volunteers make the event unforgettable for all. \nTaking part is easy…\nStep 1 – sign up for your running challenge\nChoose your event (like this one) and sign up with the event organisers directly here. \nStep 2 – let us know about your running challenge\nOnce you have registered for your challenge\, let us know below so we can send you a free TSA running top and a fundraising pack. We’ll be with you at every step to provide useful tips and advice. \n TELL US ABOUT YOUR PLACE \n×Tell us about your place in an event\nGet your own place in an event and you can still join #TeamTSA for all the same perks and support – just sign up with the relevant event organiser and once you have your place confirmed\, fill in the form below. \nWhy get your own place instead of a charity place? \nIf you buy your own place directly with the event organisers\, 100% of your fundraising goes to the TSA and we won’t ask you to set a fundraising target! \nYou will of course still be part of #TeamTSA and receive the same personal support throughout your fundraising journey\, ensuring you reach the finish line in the knowledge you’re providing help for today and a cure for tomorrow for every affected by TSC. \nIf you have any questions about booking your own place\, please call us on 0300 222 5737 or email fundraising@tubeorus-sclerosis.org \n\n \n \n About the eventWhat event are you taking part in?* Do you have your own place in this event?*\n \n \n Yes\n \n \n \n No- not yet!\n About youName\n \n \n \n First\n \n \n \n \n Last\n \n \n Address \n \n \n \n Street Address\n \n \n Address Line 2\n \n \n City\n \n \n Postcode\n \n \n Date of birth\n \n MM slash DD slash YYYY\n \n Email*\n \n Phone number About your fundraisingHow much are you hoping to raise?* Why have you chosen to support the TSA?*Running vest size (all our vests are unisex)Extra smallSmallMediumLargeExtra largeDouble extra largeWould you be happy for your story to be featured in the media/social media?*Coverage in the media and online can really help with raising awareness of the charity. We will never do this without contacting you first.\n \n \n Yes\n \n \n \n No\n Keeping in touch*\n \n Select All\n \n \n I am happy to be contacted by email\n \n \n I am happy to be contacted by post\n \n \n I am happy to be contacted by phone\n \n \n I am happy to be contacted by SMS\n By providing your details we will keep you up-to date with our latest news about the work we do\, the research we sponsor and other ways you can get involved\, including fundraising. We promise never to share your personal information with any other organisation outside of Tuberous Sclerosis Association for their marketing purposes. \n\nFor full details on how we use your information please visit www.tuberous-sclerosis.org/privacy \nYou are free to change your mind at any time.CAPTCHAEmailThis field is for validation purposes and should be left unchanged.\n \n \n \n \n \n \n \n \n \n \n \n Δ \n \nClose\nStep 3 – set up your fundraising page\nOnce you’ve told us about your challenge we will send you a fundraising pack full of ideas on how to raise vital funds. The quickest and easiest way is to setup an online fundraising page on Just Giving. URL:https://tuberous-sclerosis.org/event/leeds-10k/ LOCATION:Leeds CATEGORIES:10k ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/logo-2.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20220615T180000 DTEND;TZID=Europe/London:20220615T190000 DTSTAMP:20260928T232950 CREATED:20220304T122306Z LAST-MODIFIED:20220304T122306Z UID:88893-1655316000-1655319600@tuberous-sclerosis.org SUMMARY:Cardiff TSC clinic update 2022 DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 15 June\, 6pm – 7pm\, the TSA welcomes clinicians from the Cardiff TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm 15 June). URL:https://tuberous-sclerosis.org/event/cardiff-tsc-clinic-update-2022/ CATEGORIES:Community Event ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/cardiff-clinic-update-2021.png END:VEVENT END:VCALENDAR