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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;VALUE=DATE:20200913
DTEND;VALUE=DATE:20200914
DTSTAMP:20260929T211637
CREATED:20190930T191505Z
LAST-MODIFIED:20200804T141745Z
UID:8569-1599955200-1600041599@tuberous-sclerosis.org
SUMMARY:Virtual Great North Run 2020
DESCRIPTION:Virtual Great North Run 2020 (Sunday 13 September)\nWhile everyone can’t gather together to run the famous 13.1 mile route\, you can still ‘Be Your Greatest’ and support people living with TSC. \nThe Virtual Great North Run is a free to enter half marathon challenge. There’s no minimum sponsorship pledge\, we simply ask you to raise what you can. \nWith their partners ViRACE\, the Great North Run organisers are creating an app to bring you an innovative virtual experience with audio clips from the event so that you will hear the sounds of the Great North Run. From an upbeat warm-up led by the legendary Roy Gayle\, to chants of OGGY OGGY OGGY\, and the iconic roar of the Red Arrows fly-past\, they are making it feel as much like the real event as we can! \nThe event will mimic a race format so that all runners start their Virtual Great North Run at the same time on 13 September 2020 and complete the same 13.1 mile distance. Runners will be tracked throughout the virtual race and will be able to view results after the race has finished. \nTo register please visit : https://www.greatrun.org/great-north-run
URL:https://tuberous-sclerosis.org/event/great-north-run-2020-2/
LOCATION:Anywhere
CATEGORIES:Featured Events,Half Marathon
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DTSTART;VALUE=DATE:20200914
DTEND;VALUE=DATE:20200921
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SUMMARY:Jeans for Genes 2020
DESCRIPTION:Jeans for Genes\nJeans for Genes Day is an annual fundraising campaign by Genetic Disorders UK\, the national charity that supports individuals and families affected by genetic disorders.\nThe Tuberous Sclerosis Association (TSA) are a proud partner of Genetic Disorders UK\, meaning that you can get involved in Jeans for Genes and help raise funds and awareness to support people affected by Tuberous Sclerosis Complex (TSC)! \nWhat is Jeans for Genes Day?\nBetween Monday 14 – Sunday 20 September 2020\, thousands of people around the UK help raise funds for people affected by genetic disorders by asking schools\, workplaces or community groups to wear jeans for the week. \nIf you get involved on behalf of the TSA\, half of the proceeds that you raise will go to the TSA!* \n*Jeans for Genes Day is a fundraising initiative organised by the UK Genetic Disorders Partnership Network. We are a member of the Partnership\, so if you organise for your school or workplace to hold a Jeans for Genes day and they haven’t held one in the last three years\, the Tuberous Sclerosis Association receives 50% of the money raised. It’s as simple as that! \nHow to register for Jeans for Genes and raise money for people living with TSC\nTo ensure that the Tuberous Sclerosis Association receives 50% of the money you raise\, just follow these three simple instructions: \n\nSign-up and order your fundraising pack from the Jeans for Genes website here\nFill in the free fundraising pack form on the Jeans for Genes website\nFor the question “Are you affiliated to one of our partners?” choose the Tuberous Sclerosis Association from the drop-down menu.\n\nThis ensures that the TSA and Jeans for Genes know that you want to fundraise for us! \nOnce you’ve collected those fantastic funds\, just send them back to Jeans for Genes and they’ll take it from there. \nRemember to let us know about your fundraising\nDon’t forget to tell us about your brilliant Jeans for Genes event\, so that our fundraising team can help to support you. Either email fundraising@tuberous-sclerosis.org or ring the team on 0300 222 5737
URL:https://tuberous-sclerosis.org/event/jeans-for-genes-2020/
CATEGORIES:Community Fundraising,Featured Events
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