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X-ORIGINAL-URL:https://tuberous-sclerosis.org
X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART:20180325T010000
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DTSTART;TZID=Europe/London:20200624T180000
DTEND;TZID=Europe/London:20200624T190000
DTSTAMP:20261008T061446
CREATED:20200615T093348Z
LAST-MODIFIED:20200615T094438Z
UID:21754-1593021600-1593025200@tuberous-sclerosis.org
SUMMARY:Virtual session: Managing aggression and violent behaviours
DESCRIPTION:Would you like to learn more about managing aggression and violent behaviours in TSC?\nRegister today for our aggression and violent behaviours virtual session\, in which we will cover topics including: \n\nTriggers for aggressive behaviour and how to help predict them\nStrategies to help the transition back to the ‘new normal’ following lockdown measures\nCommon changes in a child’s behaviour as they grow up\n\nThe TSA is delighted to be welcoming Dr Tanjala Gipson (TAND Clinic Director\, Le Bonheur Children’s Hospital) to the session – a world leader on TAND and behaviour management in TSC.
URL:https://tuberous-sclerosis.org/event/managebehaviours/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/06/Tanjala-slate-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200606T130000
DTEND;TZID=Europe/London:20200606T153000
DTSTAMP:20261008T061446
CREATED:20200513T153539Z
LAST-MODIFIED:20200520T152150Z
UID:21458-1591448400-1591457400@tuberous-sclerosis.org
SUMMARY:Welsh Info Day virtual meeting 2020
DESCRIPTION:Sign up below for your free tickets to the first ever virtual Welsh Info Day!\nDespite the coronavirus outbreak\, we’re determined to make sure that the TSC community can come together. That’s why this year’s Welsh Info Day will be virtual! Join us on Saturday 6 June via web conferencing platform Zoom for a session focused exclusively on being affected by TSC and living in Wales. \nFurther details on speakers and an agenda will be shared as soon as possible.
URL:https://tuberous-sclerosis.org/event/welsh-info-day-virtual-2020/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/WIDslate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200527T180000
DTEND;TZID=Europe/London:20200527T190000
DTSTAMP:20261008T061446
CREATED:20200513T145925Z
LAST-MODIFIED:20200526T114024Z
UID:21449-1590602400-1590606000@tuberous-sclerosis.org
SUMMARY:Virtual session: Managing anxiety and stress (with Anxiety UK)
DESCRIPTION:Do you want to know how to manage anxiety during the covid-19 pandemic? \nSign-up below for the free virtual session ‘TSC\, anxiety and covid-19’\, where the TSA and Anxiety UK will discuss living well during the coronavirus pandemic and coping strategies for anxiety and anxiety-related depression. \nThe session is for everyone in the TSC community\, including those living with the condition and family members/loved ones and TSC professionals. \nFor over 50 years\, Anxiety UK has worked to relieve and support those living with anxiety and anxiety-based depression by providing information\, support and understanding via an extensive range of services\, including one-to-one therapy.
URL:https://tuberous-sclerosis.org/event/anxietycovid19/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/anxiety-uk-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200520T180000
DTEND;TZID=Europe/London:20200520T190000
DTSTAMP:20261008T061446
CREATED:20200513T122643Z
LAST-MODIFIED:20200513T154707Z
UID:21440-1589997600-1590001200@tuberous-sclerosis.org
SUMMARY:Virtual session: TSC carer support and covid-19 (with Carers UK)
DESCRIPTION:Are you\, or is someone that you know\, caring for someone living with TSC? \nSign-up below for the free virtual session ‘TSC carer support and covid-19’. The TSA are delighted to be hosting the session alongside Carers UK\, the UK’s only national membership charity for carers. \nDuring the session\, we will discuss a range of topics including: \n\nCarers fatigue and how to ask for help\nAllowing carers into the home during lockdown\nKeeping in touch with loved ones in their residential or care home\nLooking after yourself\, as well as others\, during covid-19\nAccessing respite and other support\n\nDon’t miss out on this fantastic opportunity hear from one of the most prominent organisations for carers in the UK.
URL:https://tuberous-sclerosis.org/event/carersupport-covid19/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/carers-uk-webinar-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200515T180000
DTEND;TZID=Europe/London:20200515T190000
DTSTAMP:20261008T061446
CREATED:20200511T173400Z
LAST-MODIFIED:20200515T115259Z
UID:21384-1589565600-1589569200@tuberous-sclerosis.org
SUMMARY:Virtual session: TAND and covid-19
DESCRIPTION:Do you or does someone close to you live with a TSC-Associated Neuropsychiatric Disorder (TAND)? \nSign-up now for the free ‘TAND and covid-19’ virtual session below. The special session will be  hosted by TAND experts Professor Petrus de Vries (Professor of Child & Adolescent Psychiatry) and Professor Anna Jansen (Head of Child Neurology\, UZ Brussels). \nDuring the session\, we will discuss: \n\nTAND at the time of covid-19\nCoping with challenging behaviours\nThe upcoming research project\, The TANDem Project\n\nThe event is proudly taking place on Global TSC Awareness Day.
URL:https://tuberous-sclerosis.org/event/virtual-session-tand-and-covid-19/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2020/05/TAND-webinar-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200418T130000
DTEND;TZID=Europe/London:20200418T153000
DTSTAMP:20261008T061446
CREATED:20200408T091233Z
LAST-MODIFIED:20200408T091233Z
UID:21184-1587214800-1587223800@tuberous-sclerosis.org
SUMMARY:Join us at the Outlook virtual meeting on 18 April
DESCRIPTION:Sign-up now for free tickets to the Outlook virtual meeting\, taking place via web conferencing on Saturday 18 April 2020! \nAre you an adult mildly affected by TSC? Join us to make new friends\, share experiences about living with TSC\, and enjoy unique workshops. \nTickets are available for adults aged 18+ who are mildly affected by TSC. \nInformation on how to join the Outlook virtual meeting will be provided to you after registering for the event. Any questions should go to comms@tuberous-sclerosis.org. \nMore information about the Outlook virtual meeting is available here.
URL:https://tuberous-sclerosis.org/event/virtual-outlook/
CATEGORIES:Community Event,Outlook
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/12/Outlook-2019-2-e1581522154314.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200314
DTEND;VALUE=DATE:20200315
DTSTAMP:20261008T061446
CREATED:20200129T170020Z
LAST-MODIFIED:20200213T080856Z
UID:18035-1584144000-1584230399@tuberous-sclerosis.org
SUMMARY:Family Fun Day Portsmouth - Tickets now on sale!
DESCRIPTION:. \nPurchase tickets below for the TSA Family Fun Day at Blue Reef Aquarium Portsmouth on Saturday 14 March 2020! \nSubsidised tickets purchased through the TSA will be ordered by the charity through Blue Reef Aquarium. Your tickets will be available from the aquarium on the day of the event. \nTickets are limited to x2 adult and x2 child tickets per family\, so that as many families as possible can have the opportunity to come along. Families requiring more tickets can contact Blue Reef Aquarium to purchase standard tickets. \nMore information about the day is available here.
URL:https://tuberous-sclerosis.org/event/family-fun-day-march-2020/
LOCATION:Blue Reef Aquarium Portsmouth\, United Kingdom
CATEGORIES:Community Event,Family Fun Day
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/01/FFD-2020-blue-reef-7.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190928
DTEND;VALUE=DATE:20190929
DTSTAMP:20261008T061446
CREATED:20191003T180214Z
LAST-MODIFIED:20191024T163623Z
UID:8946-1569628800-1569715199@tuberous-sclerosis.org
SUMMARY:Welsh Info Day 2019
DESCRIPTION:Welsh Info Day 2020\nDo you live in Wales and are affected by Tuberous Sclerosis Complex (TSC)?\nCome along to the Welsh Info Day\, our annual flagship event especially for the TSC community in Wales! \nEvery year\, at the Welsh Info Day you can: \n\nMeet and get to know your fellow TSC community in Wales\, including individuals and families affected by the condition\nTalk with the TSA about our upcoming plans and projects\, with a Welsh focus\nHear external Wales organisations talk about how they might be able to help you and your family\n\nPrevious events have included talks and workshops by: \n\nWales Gene Park / Genetic Alliance UK\nMencap Cymru\nCardiff TSC Clinic\n\nThe Welsh Info Day typically takes place early Autumn\, with a date and further information about the Welsh Info Day 2020 expected by Spring 2020. \nWould you like to be involved in organising the Welsh Info Day\, or have some ideas on how it could be improved?\nWe would love to have you involved! Contact us to ask about helping us to organise and manage the day. \nRelated pages\nOutlook 2020\n\nBig Day\n\nFamily Fun Day\n\nScottish Get Together\n\n• Northern Ireland Info Day
URL:https://tuberous-sclerosis.org/event/welsh-info-day-2020/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/08/wales-flag.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190831
DTEND;VALUE=DATE:20190908
DTSTAMP:20261008T061446
CREATED:20191003T180937Z
LAST-MODIFIED:20191024T164806Z
UID:8949-1567209600-1567900799@tuberous-sclerosis.org
SUMMARY:Scottish Get Together 2019
DESCRIPTION:Scottish Get Together 2020\nDo you live in Scotland and are affected by Tuberous Sclerosis Complex (TSC)?\n The Scottish Get Together is for you! \nThe Scottish Get Together is an opportunity for Scotland-based members of the TSC community – including people living with the condition\, their family and carers – to: \n\nMeet and get to know people living in TSC who also live in Scotland\nTalk with the TSA about projects and plans\, all with a Scotland-focus\nHear external Scotland organisations and charities about how they might be able to help you and your family with a range of services\n\nPrevious speakers at the Scottish Get Together 2019 have included: \n\nCerebra\nContact\nEpilepsy Scotland\nFamily Fund\nScottish Association for Mental Health\n\nThe Scottish Get Together typically takes place late Summer\, with a date and further information about the Scottish Get Together 2020 expected by Spring 2020. \nWould you like to be involved in organising the Scottish Get Together\, or have some ideas on how it could be improved? We would love to have you involved! Contact us to ask about helping us to organise and manage the day.
URL:https://tuberous-sclerosis.org/event/scottish-get-together/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2019/10/SGT.jpg
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