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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221210T133000
DTEND;TZID=Europe/London:20221210T150000
DTSTAMP:20261008T031009
CREATED:20220517T125714Z
LAST-MODIFIED:20221129T140303Z
UID:89544-1670679000-1670684400@tuberous-sclerosis.org
SUMMARY:Virtual Outlook festive special 2022
DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nOutlook is our group for adults who are mildly affected by TSC. Every year\, the Outlook group have different opportunities to meet up with others who understand the impact of being mildly affected by TSC. The festive special is a chance for ‘Outlookers’ – even if this is your first event – to get together for the festive season! \nWhether you’ve been to Outlook events before or if it’s your first time\, come along to meet with others virtually on Saturday 10 December\, 1:30pm – 3:00pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nAn agenda for the event can be found below\, but expect opportunities to meet other people mildly affected by TSC in a laid-back atmosphere. \n\n1:30pm – 1:45pm: Welcome and introductions\, update from the TSA\n1:45pm – 2:30pm: Christmas quiz\n2:30pm – 2:55pm: Group discussion: Reasons to be positive\n2:55pm – 3pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 11am Saturday 10 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible.
URL:https://tuberous-sclerosis.org/event/virtual-outlook-festive-special-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Outlook-festive-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221207T190000
DTEND;TZID=Europe/London:20221207T200000
DTSTAMP:20261008T031009
CREATED:20220805T154510Z
LAST-MODIFIED:20221019T101422Z
UID:90064-1670439600-1670443200@tuberous-sclerosis.org
SUMMARY:TSA Annual General Meeting 2022
DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2022 is an important opportunity to hear more about the TSA’s strategic planning and goals. By attending the AGM\, you can find out more about the inner-workings of the TSA and how our targets are developed. \nThe TSA’s Board of Trustees will discuss TSA finances\, major achievements of the charity over the last 12 months\, and our plans for 2023 and beyond. Plus\, there’ll be the opportunity to put your questions and comments to TSA Trustees. Opening stages of the event will include Trustees voting on agenda points for the AGM. \nThe AGM 2022 will take place virtually on Wednesday 7 December\, 7pm – 8pm. To attend the event\, please register below. Registration will remain open until 6pm on the day of the event. \nIf you have a question that you would like to ask the TSA Board of Trustees as part of the TSA’s AGM 2022\, please email the TSA’s Joint Chief Executives: admin@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsa-annual-general-meeting-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221123T180000
DTEND;TZID=Europe/London:20221123T190000
DTSTAMP:20261008T031009
CREATED:20220504T133151Z
LAST-MODIFIED:20220504T133151Z
UID:89599-1669226400-1669230000@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 4
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-4/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221116T180000
DTEND;TZID=Europe/London:20221116T190000
DTSTAMP:20261008T031009
CREATED:20220504T132958Z
LAST-MODIFIED:20220504T132958Z
UID:89595-1668621600-1668625200@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 3
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-3/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221109T180000
DTEND;TZID=Europe/London:20221109T190000
DTSTAMP:20261008T031009
CREATED:20220504T132654Z
LAST-MODIFIED:20220504T132654Z
UID:89584-1668016800-1668020400@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 2
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-2/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221102T180000
DTEND;TZID=Europe/London:20221102T190000
DTSTAMP:20261008T031009
CREATED:20220504T131029Z
LAST-MODIFIED:20220504T131029Z
UID:89578-1667412000-1667415600@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 1
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/music-therapy-session-1/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221005T180000
DTEND;TZID=Europe/London:20221005T190000
DTSTAMP:20261008T031009
CREATED:20220909T095135Z
LAST-MODIFIED:20220909T095135Z
UID:90125-1664992800-1664996400@tuberous-sclerosis.org
SUMMARY:TSC wellbeing and skin problems
DESCRIPTION:Many people with TSC face emotional and wellbeing challenges as a result of skin issues\nOn Wednesday 5 October\, 6pm – 7pm\, we’ll hear from Jules Carr\, Senior Wellbeing Practitioner at Changing Faces\, a charity supporting children\, young people and adults with a visible difference. \nThe event will cover the link between skin conditions and emotional wellbeing\, including actionable steps to support your wellbeing when living with TSC-related skin conditions\, such as facial angiofibromas. Plus\, your chance to put your questions to Jules.
URL:https://tuberous-sclerosis.org/event/tsc-wellbeing-skin-problems/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/09/og-img.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220907T180000
DTEND;TZID=Europe/London:20220907T190000
DTSTAMP:20261008T031009
CREATED:20220304T150938Z
LAST-MODIFIED:20220304T150938Z
UID:88900-1662573600-1662577200@tuberous-sclerosis.org
SUMMARY:Glasgow TSC clinic virtual update 2022
DESCRIPTION:Do you live in Scotland and are affected by TSC? Join us for an important annual update from the Glasgow NHS TSC Clinic\nOn Wednesday 7 September\, 6pm – 7pm\, the TSA welcomes the Glasgow TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management (including access to Epidyolex for TSC-related epilepsy)\nNext steps for the clinic\nA Q&A where you can put your questions to the Glasgow team\n\nRegister below for this free session (registration open until 4pm 7 September).
URL:https://tuberous-sclerosis.org/event/glasgow-tsc-clinic-update-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/Glasgow-clinic-virtual-update.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220810T180000
DTEND;TZID=Europe/London:20220810T190000
DTSTAMP:20261008T031009
CREATED:20220517T110426Z
LAST-MODIFIED:20220517T110426Z
UID:89705-1660154400-1660158000@tuberous-sclerosis.org
SUMMARY:St George's London TSC clinic virtual update 2022
DESCRIPTION:Join us for an important annual update from the St George’s (London) TSC Clinic\, one of the largest TSC clinics in the UK\nOn Wednesday 10 August\, 6pm – 7pm\, the TSA welcomes clinicians from the St George’s TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the St George’s team\n\nRegister below for this free session (registration open until 5pm\, 10 August).
URL:https://tuberous-sclerosis.org/event/st-georges-catchup-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/St-Georges-clinic-update-2022-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220706T180000
DTEND;TZID=Europe/London:20220706T190000
DTSTAMP:20261008T031009
CREATED:20220504T150646Z
LAST-MODIFIED:20220617T113314Z
UID:89605-1657130400-1657134000@tuberous-sclerosis.org
SUMMARY:TSC and neurodivergence
DESCRIPTION:Around one in two people who live with TSC are neurodivergent. In this virtual event\, we meet The Brain Charity to discuss neurodiversity in more detail\n \nNeurodivergence is the term for when someone’s brain processes\, learns\, and/or behaves differently from what is considered ‘typical’. Examples of neurodivergence includes autism spectrum disorder and Attention deficit hyperactivity disorder (ADHD). \nIt is normal and quite common to be neurodivergent – whether that means you have only a small number of support needs\, or require support needs that a very high. On Wednesday 6 July\, we welcome The Brain Charity\, who offer emotional support\, practical help and social activities to anyone with a neurological condition \nTickets registration for this free event closes at 5pm\, Wednesday 6 July. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-neurodivergence/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Brain-charity.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220615T180000
DTEND;TZID=Europe/London:20220615T190000
DTSTAMP:20261008T031009
CREATED:20220304T122306Z
LAST-MODIFIED:20220304T122306Z
UID:88893-1655316000-1655319600@tuberous-sclerosis.org
SUMMARY:Cardiff TSC clinic update 2022
DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 15 June\, 6pm – 7pm\, the TSA welcomes clinicians from the Cardiff TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm 15 June).
URL:https://tuberous-sclerosis.org/event/cardiff-tsc-clinic-update-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/cardiff-clinic-update-2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220511T180000
DTEND;TZID=Europe/London:20220511T190000
DTSTAMP:20261008T031009
CREATED:20220302T121016Z
LAST-MODIFIED:20220302T121016Z
UID:88846-1652292000-1652295600@tuberous-sclerosis.org
SUMMARY:Respite for carers in the TSC community
DESCRIPTION:Many people in the TSC community are carers for loved ones who live with TSC. Caring can be an exhausting\, selfless and incredibly challenging step – with little time for respite \n \nIn this free virtual event\, the TSA welcomes The Respite Association to discuss the importance of carer self-care and respite for carers. The Respite Association was founded by people all with first-hand experience of caring\, and the stress and hurdles that come with caring for loved ones. \nIf you’re a carer in the TSC community\, you’ll be welcomed into an understanding and warm virtual event\, focused on helping you and your family. \nThe virtual event will take place through Zoom on Wednesday 11 May\, 6pm – 7pm. Registration ends 5pm\, 11 May. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/respite-for-carers/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/carers-featured.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220423T100000
DTEND;TZID=Europe/London:20220423T163000
DTSTAMP:20261008T031009
CREATED:20220112T095931Z
LAST-MODIFIED:20220203T094814Z
UID:88157-1650708000-1650731400@tuberous-sclerosis.org
SUMMARY:Outlook 2022
DESCRIPTION:Are you an adult mildly affected by TSC? Come to Outlook – a chance to make new and meet old friends\, share experiences about TSC and attend interesting workshops and talks. \n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nIn 2022\, we are delighted to bring back a face-to-face Outlook event\, with Outlook 2022 taking place at the Radisson Blu Hotel\, Durham! \nAs with Outlook events\, for this year we have a varied and worthwhile agenda for adults mildly affected by TSC: \n\n10:00 – 10:45: Welcome and introductions\, plus icebreaker\n10:45 – 11:00: An update from the TSA\n11:00 – 11:15: Break\n11:15 – 12:45: Emotional Freedom Technique workshop with Heather Graham (Ready for Change Now)\n12:45 – 2:00: Lunch\n2:00 – 3:30: Looking After Our Sleep (Kerry Davies\, The Sleep Charity)\n3:30 – 3:45: Coffee break\n3:45 – 4:30: Challenges and opportunities of living with TSC\n4:30: Plans for Outlook 2023\, thank you and close\n\nMore information about Outlook can be found the main Outlook page here.
URL:https://tuberous-sclerosis.org/event/outlook-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/Outlook-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220406T180000
DTEND;TZID=Europe/London:20220406T190000
DTSTAMP:20261008T031009
CREATED:20220112T112121Z
LAST-MODIFIED:20220119T094234Z
UID:88161-1649268000-1649271600@tuberous-sclerosis.org
SUMMARY:TSC and epilespy
DESCRIPTION:Around 4 in every 5 people affected by TSC also have TSC-related epilepsy. Join us for this virtual session\, focused on one of the most common aspects of TSC\n \nEpilepsy can have a major impact on people’s lives\, whether mild or severe. During this free event\, Dr Sam Amin (Consultant Paediatric Neurologist\, University of Bristol) will discuss a wide range of TSC-related epilepsy topics\, including: \n\nThe most common epilepsy questions received by the TSA\nTreating and managing TSC-related epilepsy\, including which epilepsy medicines are currently in development\nThe latest in TSC-related epilepsy research\n\nThe virtual event will take place through Zoom on Wednesday 6 April\, 6pm – 7pm. Free registration ends 5pm\, 6 April. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-epilepsy-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/tscepilepsy2022slate_2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220323T180000
DTEND;TZID=Europe/London:20220323T190000
DTSTAMP:20261008T031009
CREATED:20220112T120821Z
LAST-MODIFIED:20220112T120821Z
UID:88179-1648058400-1648062000@tuberous-sclerosis.org
SUMMARY:TSC and the kidneys
DESCRIPTION:One of the most common ways that TSC can affect someone is problems with the kidneys. In this free virtual event\, kidney experts Dr Chris Kingswood and Dr Nicholas Annear (St George’s University Hospital) discuss TSC and kidneys in more depth\n \nAround eight in every 10 people living with TSC will experience some kidney problems at some stage of their life. Kidney problems are not common in early childhood\, but become more common as individuals get older. \nDuring this free event\, Dr Kingswood and Dr Annear will provide a broad overview of TSC and the kidneys\, including diagnosis\, treatment and management of kidney problems in TSC. There will also be time to put your kidney questions to the experts. \nMore information about TSC and the kidneys can be found here. This event will take place through Zoom\, with free registration open until 5pm 23 March.
URL:https://tuberous-sclerosis.org/event/tsc-kidneys-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/tsckidneys2022slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220310T180000
DTEND;TZID=Europe/London:20220310T190000
DTSTAMP:20261008T031009
CREATED:20220112T114450Z
LAST-MODIFIED:20220309T092234Z
UID:88171-1646935200-1646938800@tuberous-sclerosis.org
SUMMARY:Belfast TSC Clinic virtual catch-up
DESCRIPTION:Join the Belfast TSC Clinic catch-up 2022\, as we welcome the TSC community in Northern Ireland to come together on all-things TSC in the nation\n \nThe Belfast TSC catch-up 2022\, taking place on Thursday 10 March 6pm – 7pm\, is an opportunity to connect with others in the Northern Ireland TSC community and to learn more about the Belfast TSC Clinic. \nCome along to hear from TSC specialists at the Belfast clinic as we discuss: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\, including a look over the last year\nTSC treatment and management\, with a focus on Northern Ireland\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Belfast team\n\nRegistration is free and open until 5pm on Thursday 10 March.
URL:https://tuberous-sclerosis.org/event/belfast-clinic-catchup-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/belfast-tsc-clinic-catchup-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220112T180000
DTEND;TZID=Europe/London:20220112T190000
DTSTAMP:20261008T031009
CREATED:20211210T111911Z
LAST-MODIFIED:20211210T112035Z
UID:88066-1642010400-1642014000@tuberous-sclerosis.org
SUMMARY:Financial wellbeing with The Money Charity
DESCRIPTION:Would you like to feel more confident about money?\nThis 1-hour virtual workshop\, delivered by The Money Charity and trainer Emma Waller (financial wellbeing consultant and co-author of Martin Lewis book ‘Your Money Matters’)\, is designed to help attendees manage their money better\, stay on top of their finances and plan for the future. It also offers the latest in money saving tips. \nThe workshop will cover: \n\nThe importance of financial resilience\nBudgeting & planning\nCredit & borrowing & your credit score\nWhere to access support for debt\nWays to save money in everyday life\nHow to make your money work harder\n\nAll attendees will receive a free digital copy of The Money Manual – a handy guide to making the most of your money. Attendees will never be offered financial products or services during or after our workshops. \nThis virtual workshop is free to attend but is restricted to a maximum of 20 registrations – so be quick!
URL:https://tuberous-sclerosis.org/event/financial-wellbeing/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/the-money-charity-header.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211211T150000
DTEND;TZID=Europe/London:20211211T171500
DTSTAMP:20261008T031009
CREATED:20211029T094201Z
LAST-MODIFIED:20211029T094201Z
UID:87515-1639234800-1639242900@tuberous-sclerosis.org
SUMMARY:Virtual Outlook festive special 2021
DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nLast year\, Outlook – a special community for adults mildly affected by TSC – held a virtual festive special for the first time. The event went so well\, that we’re bringing it back for 2021! \nWhether you’ve been to Outlook before or if it’s your first time\, come along to meet with others virtually on Saturday 11 December\, 3pm – 5:15pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nOutlook festive special 2021 agenda: \n\n3pm – 3:05pm\, Welcome and introductions\n3:05pm – 3:20pm\, Update from the TSA\n3:20pm – 4pm\, Christmas quiz (courtesy of Phil Rogers)\n4pm – 4:10pm\, Break\n4:10pm – 5pm\, Group discussion: Reasons to be positive in 2021 and 2022\n5pm – 5:15pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 1pm Saturday 11 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible.
URL:https://tuberous-sclerosis.org/event/outlook-festive-2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/outlookfestive2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211208T180000
DTEND;TZID=Europe/London:20211208T190000
DTSTAMP:20261008T031009
CREATED:20211110T114234Z
LAST-MODIFIED:20211110T114234Z
UID:87562-1638986400-1638990000@tuberous-sclerosis.org
SUMMARY:Cardiff TSC Clinic update 2021
DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 8 December\, 6pm – 7pm\, the TSA welcomes Dr Jenny Gardener (Consultant Clinical Geneticist)\, Dr Anurag Saxena (Consultant Paediatric Neurologist) and Karen Bailey (TSC Specialist Nurse) to discuss the Cardiff NHS TSC clinic. Topics will include: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\nTSC treatment and management\, including access to everolimus in Wales\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm Saturday 8 December).
URL:https://tuberous-sclerosis.org/event/cardiff-clinic-update-2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/11/cardiff-clinic-update-2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211123T180000
DTEND;TZID=Europe/London:20211123T190000
DTSTAMP:20261008T031009
CREATED:20211018T094655Z
LAST-MODIFIED:20211018T094655Z
UID:87436-1637690400-1637694000@tuberous-sclerosis.org
SUMMARY:Virtual event: TSC and lymphangioleiomyomatosis (LAM)
DESCRIPTION:Virtual event: TSC and lymphangioleiomyomatosis (LAM).\n \nAround three in every 10 women who live with TSC\, and a very small number of males\, also develop complications in the lungs\, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person varies significantly amongst individuals living with TSC\, with problems ranging from shortness of breath and coughing to chest pain or a collapsed lung. \nIn this free virtual event\, we welcome Professor Simon Johnson (LAM National Centre Director) to discuss the condition in more detail\, what it can mean for people who live with the condition day-to-day\, and what next steps people with TSC and LAM may have. \nTaking place on Tuesday 23 November\, 6pm – 7pm\, this free event will also include a question and answer section – giving you the chance to put your LAM questions to Professor Johnson. \n‘TSC and LAM’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and LAM can be found here\, or by contacting the TSA Support Line.
URL:https://tuberous-sclerosis.org/event/tsc-and-lam/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/tsclamslate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211118T190000
DTEND;TZID=Europe/London:20211118T200000
DTSTAMP:20261008T031009
CREATED:20211015T130557Z
LAST-MODIFIED:20211118T104049Z
UID:87372-1637262000-1637265600@tuberous-sclerosis.org
SUMMARY:TSA Annual General Meeting 2021
DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2021 will take place Thursday 18 November\, 7pm – 8pm. The AGM will take place virtually\, via a video conferencing platform. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you. \nTo attend the AGM 2021\, please register your place below. Tickets will be available until 5pm on Thursday 18 November. \nTSA AGM 2021 materials can be read here: \n\nAGM 2021 Trustees letter\nAGM 2021 Notice\nA Year in Review: 2020 (including the latest Treasurer’s Report\, Strategic Report\, the 2020 Summarised Statement of Financial Activities and the Balance Sheet for 2020)
URL:https://tuberous-sclerosis.org/event/agm2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211110T193000
DTEND;TZID=Europe/London:20211110T203000
DTSTAMP:20261008T031009
CREATED:20211019T100351Z
LAST-MODIFIED:20211019T100351Z
UID:87465-1636572600-1636576200@tuberous-sclerosis.org
SUMMARY:Virtual event: Introduction to supporting siblings
DESCRIPTION:Do you want to find out more about supporting siblings whose brothers or sisters live with TSC?\n\n \nThe TSA is delighted to host ‘Introduction to supporting siblings’\, a special virtual workshop organised in partnership with siblings charity\, Sibs. \nPresented by Sibs\, this workshop is intended for parents and guardians of children living with TSC who want to know more about supporting siblings. The focus of the workshop will be on supporting siblings. This workshop is not for professional workers. \nThe workshop will give parents and guardians an insight into siblings’ needs and experiences\, and gives some ideas for giving siblings attention \n‘Introduction to supporting siblings’ is free to register and attend. Unlike other TSA events\, this event is presented by Sibs\, with the TSA facilitating the opportunity for the workshop to be focused on the TSC community. \nAttendance is limited to only a very small number of attendees – do not delay registering\, to help guarantee your place. \nOnce registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here.
URL:https://tuberous-sclerosis.org/event/supporting-sibs/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/sibsslate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211027T180000
DTEND;TZID=Europe/London:20211027T190000
DTSTAMP:20261008T031009
CREATED:20210928T110722Z
LAST-MODIFIED:20210928T111332Z
UID:87104-1635357600-1635361200@tuberous-sclerosis.org
SUMMARY:Virtual event: TSC and its impact on skin
DESCRIPTION:Virtual event: TSC and its impact on Skin\n \nIn this virtual event\, we welcome Dr Lea Solman (Consultant in Paediatric Dermatology\, Great Ormond Street Hospital) to discuss all-things skin-related in the world of TSC. \nSkin and dermatology issues are some of the most significant factors of living with TSC\, with around nine in every 10 people who live with TSC also experiencing skin problems as a result of the condition. Dr Solman will cover the key areas of TSC and skin\, including the most common ways that TSC affects the skin\, and treatment and management of TSC skin issues. The session will include opportunities to also ask Dr Solman questions in a Q&A portion of the event. \n‘TSC and its impact on skin’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here.
URL:https://tuberous-sclerosis.org/event/tsc-and-skin/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/09/skinslate4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210602T180000
DTEND;TZID=Europe/London:20210602T190000
DTSTAMP:20261008T031009
CREATED:20210519T100304Z
LAST-MODIFIED:20210519T100304Z
UID:85928-1622656800-1622660400@tuberous-sclerosis.org
SUMMARY:Virtual event: The importance of sleep in children with TSC
DESCRIPTION:Do you want to know about the impact of sleep on wellbeing\, behaviour and managing TSC in children living with the condition?\n \nJoin us for this live session\, where sleep experts Dr Stacey Bissell (Research Fellow\, University of Birmingham)\, Dr Caroline Richards (Senior Lecturer\, University of Birmingham) and Dr Catherine Hill (Associate Professor\, University of Southampton) will discuss how sleep impacts on the daily lives of children affected by TSC. \nDuring the event\, we will cover: \n\nSleep studies in TSC (eSNORE)\nHow sleep can affect wellbeing\, behaviour and managing TSC\nA Q&A session to ask your important questions about sleep to the experts\n\nThis is the first TSA virtual session focused specifically on TSC and sleep – don’t miss it!
URL:https://tuberous-sclerosis.org/event/virtual-event-importance-sleep-children/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/05/sleep-thumbnail.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210520T180000
DTEND;TZID=Europe/London:20210520T190000
DTSTAMP:20261008T031009
CREATED:20210429T123503Z
LAST-MODIFIED:20210429T123713Z
UID:85797-1621533600-1621537200@tuberous-sclerosis.org
SUMMARY:Virtual event: A values-based approach to improving mental health (ACT) in TSC
DESCRIPTION:TSC and mental health: A values-based approach to improving mental health (ACT)\n \nIn the webinar\, Dr Jennifer Black (Clinical Psychologist\, Bristol Royal Hospital for Children) will introduce skills that allow you to deal with difficult thoughts and feelings\, so they have less of an influence over you. \nLiving with a long-term physical health condition can have a significant impact on emotional wellbeing and quality of life. This webinar will focus on how people living with TSC can be supported to live well alongside ongoing health problems. It will focus on Acceptance and Commitment Therapy (ACT)\, a type of talking therapy that encourages openness to and awareness of the present moment in order to help people maintain behaviours consistent with their life goals. \nACT fosters engagement with\, rather than avoidance of\, painful experiences to move towards acceptance of unchangeable difficulties alongside building a rich and meaningful life despite the presence of ongoing difficulties.
URL:https://tuberous-sclerosis.org/event/values-based-approach-to-improving-mental-health/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/04/Dr-Black-webinar-slate-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210417T133000
DTEND;TZID=Europe/London:20210417T160000
DTSTAMP:20261008T031009
CREATED:20210107T112646Z
LAST-MODIFIED:20210414T110027Z
UID:54602-1618666200-1618675200@tuberous-sclerosis.org
SUMMARY:Outlook 2021 virtual meeting
DESCRIPTION:Are you an adult mildly affected by TSC? Join us for the Outlook 2021 virtual event on 17 April and get to know others in the TSC community!\n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nThere’ll be opportunities to: \n\nConnect with others who understand the impact that TSC can have\nTake part or watch interesting sessions about living with TSC\nLearn more about the work of the TSA\n\nLockdowns and social distancing won’t stop the Outlook community from coming together – Outlook 2021 will take place via Zoom. \nRegistration will be open until 12pm Saturday 17 April. \nPlease find our agenda for Outlook 2021 below. \nOutlook 2021 virtual meeting agenda\n\n1:30pm – 1:35pm: Welcome\, introductions and housekeeping\n1:35pm – 1:50pm: TSA update\n1:50pm – 3:00pm: Your life a year on with covid-19: Transforming yourself and your outlook (with Positive Psychologist Andrew Parsons\, Reciprocal Minds\n3:00pm – 3:15pm: Break\n3:15pm – 3:55pm: Living with TSC: Looking forward to 2021 and beyond\n3:55pm – 4pm: Thank you and stay safe
URL:https://tuberous-sclerosis.org/event/outlook2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/Outlook-logo-2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210413T180000
DTEND;TZID=Europe/London:20210413T190000
DTSTAMP:20261008T031009
CREATED:20210323T115634Z
LAST-MODIFIED:20210401T101516Z
UID:85523-1618336800-1618340400@tuberous-sclerosis.org
SUMMARY:Covid-19 and children with TSC: Q&A special
DESCRIPTION:Many families in the TSC community have questions about next steps for themselves and their children who live with TSC\, as we work through the covid-19 pandemic. Here\, we hope to shed light on all-things related covid-19 and children who live with TSC.\nJoin us on Tuesday 13 April\, as Dr Jill Cadwgan (Consultant in Paediatric Neurodisability\, Evelina Children’s Hospital) discusses and answers the most important questions to you about children affected by TSC in relation to covid-19\, including: \n\n“Why are children not being routinely vaccinated?”\n“What about children who are ‘clinically extremely vulnerable’ to covid-19?”\n“Should we continue to shield?”\n\nRegister for the event by clicking below. Registration will be open until 4pm Tuesday 13 April.
URL:https://tuberous-sclerosis.org/event/covid19-children-qa/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/03/Tanjala-webinar-slate2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210313T130000
DTEND;TZID=Europe/London:20210313T150000
DTSTAMP:20261008T031009
CREATED:20210208T111658Z
LAST-MODIFIED:20210301T113651Z
UID:81334-1615640400-1615647600@tuberous-sclerosis.org
SUMMARY:Northern Ireland Get Together 2021
DESCRIPTION:We welcome in the TSC community who live in Northern Ireland to the virtual Northern Ireland Get Together 2021\nThe Northern Ireland Get Together 2021\, taking place on Saturday 13 March 1pm – 3pm\, is an opportunity to connect with others in the TSC community who understand the challenges of living in Northern Ireland and being affected by TSC. \nCome along to hear from the TSA team\, meet your fellow Northern Ireland TSC community and to discuss topics important to you. The event will also feature a special Q&A session with the Belfast TSC Clinic. \nJoin the meeting through Zoom to: \n\nHear about the work of the TSC Belfast Clinic\nMeet your fellow TSC community members in Northern Ireland\nCatch-up on the work of the TSA\n\nRegistration\, open until 11am Saturday 13 March\, is free – so\, register today!
URL:https://tuberous-sclerosis.org/event/ni-get-together-21/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/02/Northern-Ireland-Get-Together-logo-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210308T180000
DTEND;TZID=Europe/London:20210308T190000
DTSTAMP:20261008T031009
CREATED:20210106T163510Z
LAST-MODIFIED:20210118T125131Z
UID:54431-1615226400-1615230000@tuberous-sclerosis.org
SUMMARY:Epidiolex (cannabidiol) and TSC
DESCRIPTION:There has been a lot of interest in the possibility of Epidiolex (cannabidiol) as a treatment option for TSC-related epilepsy. In this virtual session\, we look at the topic more closely.\nJoin us for this virtual session\, where we are delighted to welcome Dr Sam Amin (Consultant Paediatric Neurologist\, University of Bristol) to discuss Epidiolex (cannabidiol)\, TSC and the potential treatment’s journey so far. \nAs part of the event\, Dr Amin will be pleased to answer questions from the community regarding Epidiolex. \nRegistration will be open until 4pm Monday 8 March.
URL:https://tuberous-sclerosis.org/event/epidiolex-cannabidiol-and-tsc/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/epidiolexslate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210218T180000
DTEND;TZID=Europe/London:20210218T190000
DTSTAMP:20261008T031009
CREATED:20210121T143600Z
LAST-MODIFIED:20210223T140650Z
UID:63660-1613671200-1613674800@tuberous-sclerosis.org
SUMMARY:In Conversation with Sir David Suchet CBE
DESCRIPTION:This event has now passed. However\, you can still watch ‘In Conversation with Sir David Suchet CBE‘ by purchasing access to the recording of the event (click here). Everyone at the TSA would like to thank Sir David for taking part in this fantastic fundraising event. \nThe TSA is delighted to welcome the TSC community and beyond to join us for ‘In Conversation with Sir David Suchet CBE’ via Zoom. This is a unique opportunity to hear from one of Britain’s best-loved performers and ask the questions you’ve always longed to ask him.  \n\nAt this very special virtual fundraising event\, Sir David will discuss his incredible career across stage\, television and film\, as well as his passions and interests away from performing. You can send us your questions for Sir David\, and we’ll ask as many as we can fit into the hour! \nWhether bringing to life the iconic Hercule Poirot\, portraying an expansive list of Shakespearean characters or even lending his voice in the recent BBC production of His Dark Materials\, Sir David Suchet CBE’s award-winning work has led him to be one of Britain’s most celebrated actors. \n‘In Conversation with Sir David Suchet CBE’ will take place through Zoom on Thursday 18 February\, with details shared to registered attendees before the event. Don’t miss out on this unique opportunity to hear from Sir David\, as he talks directly with the TSA. \nStandard tickets for this virtual event are priced at £25 to raise funds for the Tuberous Sclerosis Association. \nExpanded access tickets for the event are priced at £10 for members of the TSC community in the UK who receive benefits or whose income has been affected by coronavirus\, to make sure that everyone can come together for this exciting fundraising event. \nAttendees who can afford to do so are encouraged to give an additional donation to the charity when booking their ticket to help the TSA continue its vital work to improve the lives of people living with TSC and their families. \nTickets are available via Eventbrite until 4pm 18 February: https://www.eventbrite.co.uk/e/in-conversation-with-sir-david-suchet-cbe-tickets-140974497517 \nThose who previously registered for this event through our website’s booking form are still registered and will receive information about accessing the event as usual.
URL:https://tuberous-sclerosis.org/event/conv-with-sir-david/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/01/In-conversation-with-Sir-David-Suchet-slate-jan21.png
END:VEVENT
END:VCALENDAR