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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;TZID=Europe/London:20250226T183000
DTEND;TZID=Europe/London:20250226T200000
DTSTAMP:20261008T022911
CREATED:20250117T132553Z
LAST-MODIFIED:20250117T132553Z
UID:94388-1740594600-1740600000@tuberous-sclerosis.org
SUMMARY:TSC Art Club: Feb 25
DESCRIPTION:Click here to register for this event\nJoin professional artist Sarah Goy for the regular virtual TSC Art Club session!\nPart of the TSA Together meeting series\, TSA Art Club is a monthly creative wellbeing session focused on a playful approach to art. Sarah\, who also has TSC herself\, will be run the events virtually on Zoom. \nThe next session will take place on Wednesday 26 February\, 6:30pm-8:00pm with the theme ‘Heart’ \nIf you’re an independent adults with TSC or a caregiver or loved one of someone with TSC\, you’re very welcome to join. The sessions are about taking time out\, meeting other people and learning a few creative tips along the way. \nYou’ll need: \n\nSketchbook or book with blank pages.\nPencils\, Crayons\, pens\, paints\, or any other art materials you might have.\n\nAn email will be sent in advance of each session with further details\, but materials will be kept simple. \nFind out more about other TSA Together\, including upcoming events and how to register your own\, here. \nSarah is kindly offering these monthly sessions for free. If you feel that you benefit from the events\, please consider donating to Sarah’s fundraiser for her art sessions. \nSarah is a professional artist\, based in Bournemouth. She’s a visiting lecturer at Arts University Bournemouth (AUB) – BA and MA Animation. Since 2017\, Sarah also creates and runs online art therapy styled creative sessions\, again\, encouraging a sense of play through which new skills are gained\, whilst encouraging a sense of community and inclusivity. \nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/tsc-art-club-feb-25/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2025/01/TSC-Art-Club-Jan25-website-slate-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250129T183000
DTEND;TZID=Europe/London:20250129T200000
DTSTAMP:20261008T022911
CREATED:20250117T131430Z
LAST-MODIFIED:20250117T131643Z
UID:94381-1738175400-1738180800@tuberous-sclerosis.org
SUMMARY:TSC Art Club: Jan 25
DESCRIPTION:Click here to register for this event\nJoin professional artist Sarah Goy for the regular virtual TSC Art Club session!\nPart of the TSA Together meeting series\, TSA Art Club is a monthly creative wellbeing session focused on a playful approach to art. Sarah\, who also has TSC herself\, will be run the events virtually on Zoom. \nThe next session will take place on Wednesday 29 January\, 6:30pm-8:00pm with the theme ‘New Beginnings’ \nIf you’re an independent adults with TSC or a caregiver or loved one of someone with TSC\, you’re very welcome to join. The sessions are about taking time out\, meeting other people and learning a few creative tips along the way. \nYou’ll need: \n\nSketchbook or book with blank pages.\nPencils\, Crayons\, pens\, paints\, or any other art materials you might have.\n\nAn email will be sent in advance of each session with further details\, but materials will be kept simple. \nFind out more about other TSA Together\, including upcoming events and how to register your own\, here. \nSarah is kindly offering these monthly sessions for free. If you feel that you benefit from the events\, please consider donating to Sarah’s fundraiser for her art sessions. \nSarah is a professional artist\, based in Bournemouth. She’s a visiting lecturer at Arts University Bournemouth (AUB) – BA and MA Animation. Since 2017\, Sarah also creates and runs online art therapy styled creative sessions\, again\, encouraging a sense of play through which new skills are gained\, whilst encouraging a sense of community and inclusivity. \nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/tsc-art-club-jan-25/
CATEGORIES:Community Event,Featured Events
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2025/01/TSC-Art-Club-Jan25-website-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240518
DTEND;VALUE=DATE:20240519
DTSTAMP:20261008T022911
CREATED:20231208T145312Z
LAST-MODIFIED:20240515T181458Z
UID:92430-1715990400-1716076799@tuberous-sclerosis.org
SUMMARY:Big Day 2024 - Sat 18 May (Reading)
DESCRIPTION:Saturday 18 May 2024\, 10am – 4:30pm\nCrowne Plaza\, Reading\nRegistration for Big Day 2024 is now closed. Thank you to everyone who registered – we’ll see you on 18 May!\n\nEveryone in the TSC community is welcome to Big Day! Come along to share experiences\, make new friends and discuss life with TSC\nBig Day 2024 will take place on Saturday 18 May at the Crowne Plaza Reading\, 10am – 4:30pm. \nOn this page you’ll find lots of helpful information about what to expect at Big Day 2024 – our biggest annual event of the year. At Big Day\, we encourage everyone in the TSC community to attend\, giving us all the chance to connect and learn together. \nConcerned about the cost of Big Day? You might be eligible for the TSA Support Fund\, or you’re in financial difficulties you could apply for complementary tickets (please note that registration is now closed). \n\nThe Big Day 2024 agenda\n\n10:00 – 10:30. Doors open. Tea\, coffee and pastries\n10:30 – 10:45. Welcome and introductions (TSA staff)\n10:45 – 11:15. Finding a new way to treat TSC-related epilepsy (Dr Amanda Almacellas Barbanoj\, TSC researcher)\n11:15 – 12:15. TAND support update. Dr Fiona Senior (Consultant Psychologist\, All-Wales TSC Clinic)\n12:15 – 13:45. Lunch and networking\n13:45 – 14:30. Supporting siblings of children and adults with TSC. Claire Kassa (charity Sibs)\n14:30 – 15:15. The benefits of creativity and art therapy for people with TSC (Sarah Goy\, professional artist)\n15:15 – 15:30. Break\n15:30 – 16:30. Bitesize research updates (Early career TSC researchers)\n16:30. Thank you and close\n\nWhat is Big Day?\nBig Day is one of the TSA’s longest-running events. Everyone in the TSC community is invited to come along in-person and connect with others affected by TSC. It is a full-day event\, with talks\, opportunities to make new friends\, and the chance to speak with people from the TSA. \nAt Big Day you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nDiscuss a range of topics\, all focused on TSC\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\n\nWe try to keep Big Day as affordable for everyone. Tickets are priced £10 for adults and are free for children under 18. This helps us to get back a small amount of what it costs to run the event and to provide a free creche. \nWhen and where will Big Day 2024 take place?\nBig Day 2024 will take place on Saturday 18 May 10am – 4:30pm at the Crowne Plaza Hotel in Reading. \nCrowne Plaza Reading is in central Reading\, a very short taxi journey from Reading station or just a 15-minute walk. Secure parking is available at the hotel at £15\, with other car parking options around the area too. \nIs there an agenda for Big Day 2024?\nBig Day is always a busy event and this year is no different! However\, you can go at your own pace – there’s no pressure to be involved in any session that you would prefer to sit out. If you’d rather just spend the day talking to others in a quiet corner\, then you’re welcome to do so! \nThe Big Day 2024 agenda is now confirmed! As usual\, we’ve planned a full day with lots of opportunities to learn and connect: \n\n10:00 – 10:30. Doors open. Tea\, coffee and pastries\n10:30 – 10:45. Welcome and introductions (TSA staff)\n10:45 – 11:15. Finding a new way to treat TSC-related epilepsy (Dr Amanda Armacellas Barbanoj\, TSC researcher)\n11:15 – 12:15. TAND support update. Dr Fiona Senior (Consultant Psychologist\, All-Wales TSC Clinic)\n12:15 – 13:45. Lunch and networking\n13:45 – 14:30. Supporting siblings of children and adults with TSC. Claire Kassa (charity Sibs)\n14:30 – 15:15. The benefits of creativity and art therapy for people with TSC (Sarah Goy\, professional artist)\n15:15 – 15:30. Break\n15:30 – 16:30. Bitesize research updates (Early career TSC researchers)\n16:30. Thank you and close\n\nDoes the TSA organise accomodation?\nThe TSA does not organise accommodation for Big Day. Accommodation isn’t a requirement in order to attend. \nAttendees might wish to stay in the Crowne Plaza Reading hotel itself\, or to stay in another local hotel. Other nearby hotels include Premier Inn Reading Caversham\, and EasyHotel Reading. \nDoes the TSA provide a creche or carer support at Big Day 2024?\nWe’re delighted to provide a creche at this year’s Big Day for children aged under 18. We’ve partnered with the fantastic Event Childcare to offer this service. Event Childcare is a family-owned team who provide SEN nannies at events\, including Big Day. We were delighted to welcome Event Childcare to previous Big Days. \nThe creche will be available 10am – 4:30pm. The creche is provided in a room very close to the main Big Day meeting room. If you plan to make use of the creche facilities at Big Day\, please ensure that you include this on your booking form. \nOther than the creche\, the TSA will not provide any other form of care support at Big Day. If you require a carer at Big Day\, we kindly ask that your carer comes with you. If paying for care support to attend Big Day is a challenge for you\, you might want to consider applying to the TSA Support Fund. \nWhat sort of people go to Big Day?\nBig Day welcomes everyone in the TSC community. Whether you live with TSC yourself\, if you’re a family member or partner of someone who has TSC\, or a carer or other professional. \nBig Day is a chance for the entire TSC community as a whole to connect\, whoever you are and how much TSC affects you and your family. \nI want to help organise Big Day\n\n\n\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Big Day! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \n\n\n\nI want to come to Big Day 2024 but can't afford it\nAlthough the TSA always tries to keep the price of Big Day for attendees as low as possible\, all the costs associated with event – including travel\, accommodation and food – can quickly add up. \nTSA Support Fund might be able to help. Open to people affected by TSC and in receipt of benefits\, the TSA Support Fund offers grants to people when the financial impact of TSC becomes too much – including with costs towards paying for attending Big Day whether it’s costs towards travel\, accommodation or care support (or anything else). \nYou can also apply for complementary tickets for Big Day here.
URL:https://tuberous-sclerosis.org/event/big-day-2024/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/12/Big-Day-2024-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240420
DTEND;VALUE=DATE:20240421
DTSTAMP:20261008T022911
CREATED:20230726T085404Z
LAST-MODIFIED:20240321T121124Z
UID:92067-1713571200-1713657599@tuberous-sclerosis.org
SUMMARY:Outlook 2024 - Sat 20 April (Cardiff)
DESCRIPTION:Saturday 20 April 2024\, 10am – 5pm\nCardiff Masonic Hall\, Cardiff\nClick here to book your free tickets for Outlook 2024Outlook is the TSA’s group for adults who are mildly affected by TSC. Come along to make new friends\, share experiences about TSC\, and attend interesting workshops and talks.\nOutlook 2024 takes place on Saturday 20 April at Cardiff Masonic Hall\, 10am – 5pm. \nAll adults mildly affected by TSC in the UK will receive a warm welcome at Outlook\, whether it’s your first time at Outlook or you come every year. If you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nWe know that seeing all of the talks might feel daunting\, but don’t worry! Everyone who attends Outlook can go at their own pace and get as involved as they want. If you’d rather take a step back\, that is no problem at all. However\, we’ve now got a great agenda for Outlook 2024: \nOutlook 2024 agenda\n\n10:00 – 10:30. Welcome with tea and coffee\n10:30 – 10:45. Icebreaker session\n10:45 – 11:00. Introduction and update from the TSA\n11:00 – 11:45. Researching sleep in TSC (Dr Stacey Bissell)\n12:00 – 13:30. Lunch\n13:30 – 14:30. TSC research update (Dr Chris Kingswood)\n14:30 – 15:00. Coffee break\n15:00 – 16:30. TSC and Art with Sarah Goy\n16:30 – 17:00. Discussions continue\, close\n\nWhat is Outlook?\nOutlook is an event hosted by the TSA\, where adults mildly affected by TSC can come together and connect. The next Outlook is taking place on Saturday 20 April 2024 at the Cardiff Masonic Hall. \nOffering a relaxed\, open and understanding environment of the impact that living with TSC can have on individuals and families\, Outlook is one of the longest-running events hosted by the TSC. \nAt Outlook\, you can be in an environment of over-18s who understand the impact that being mildly affected by Outlook can have on daily life. You can expect things like: \n\nOpportunities to meet and get to know the TSC community mildly affected by TSC\nA chance to hear about the work of the TSA and to speak to the team\nWorkshops and talks on topics that can help people mildly affected by TSC\n\nFood\, drinks\, tea and coffee is provided to all attendees. \nWhen and where will Outlook 2023 take place?\nOutlook 2023 will take place on Saturday 22 April 2023 in Leicester\, at the conference venue Devonshire Place. An agenda will be shared closer to the date with specific timings\, but Outlook typically starts at 10:30am and ends at 5pm. \nDevonshire Place is well located\, just two minutes walk from Leicester train station and with a large carpark. \nIs there an agenda for Outlook 2023?\nWe’ve got a great agenda organised for Outlook 2024: \n\n10:00 – 10:30. Welcome with tea and coffee\n10:30 – 10:45. Icebreaker session\n10:45 – 11:00. Introduction and update from the TSA\n11:00 – 11:45. Researching sleep in TSC (Dr Stacey Bissell)\n12:00 – 13:30. Lunch\n13:30 – 14:30. TSC research update (Dr Chris Kingswood)\n14:30 – 15:00. Coffee break\n15:00 – 16:30. TSC and Art with Sarah Goy\n16:30 – 17:00. Discussions continue\, close\n\n\nIf you’re not comfortable taking part in anything at Outlook\, there’s no pressure at all! Everyone at Outlook is encouraged to do things at their own pace and preference. If you don’t want to participate in any session\, it’s no problem. \nDoes the TSA organise accommodation?\nThe TSA does not organise accommodation for Outlook. However\, Outlook 2024 is taking place at the Cardiff Masonic Hall\, which is very close to lots of hotels for all budgets including: \n\nPremier Inn Cardiff City Centre (2 minutes by foot)\nPark Inn by Radisson Cardiff City Centre (4 minutes by foot)\nLeonardo Hotel Cardiff (5 minutes by foot)\nPremier Inn Cardiff Bay Hotel (30 minutes by foot\, 10 minutes by car)\nTravelodge Cardiff Atlantic Wharf (30 minutes by foot\, 10 minutes by car)\nFuture Inn Cardiff Hotel (30 minutes by foot\, 10 minutes by car)\n\nPlease note: The TSA does not hold any endorsements or agreements with any accommodation or hotel. \nDoes the TSA offer care support at Outlook?\nThe TSA does not offer care support at Outlook. If you require a carer at Outlook\, we kindly ask that your carer comes with you. \nWhat sort of people go to Outlook?\nOutlook is for adults (aged 18+) who are mildly affected by TSC\, but others are welcome too. This includes parents of children with TSC and carers. \nIf you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nOutlook is a friendly and understanding space. You’ll be given a very warm welcome\, from people who understand the impact that TSC can have on individuals and families. Whether you come to Outlook every year or if this is your first time\, we’ll be delighted to have you there! \nI want to help with Outlook\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Outlook! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \nIs there parking available?\nMasonic Hall Cardiff recommend that people driving to Outlook park at the St David’s Shopping Centre\, which is just 300 yards from their front door. There is also a Cardiff Park and Ride system in place. \nMore details can be found on the Masonic Hall’s website here. \nI can't afford to go to Outlook\nTSA Support Fund might be able to help. Open to anyone who lives with TSC and receives benefits\, the TSA Support Fund offers small grants to people when the financial impact of TSC becomes too much – including with grants towards paying for attending Outlook. \nThe TSA wants all adults mildly affected by TSC to attend Outlook if they’d like to\, which is one of the reasons why Outlook tickets are free. Although the TSA always tries to keep the financial impact of Outlook as low as possible\, the costs associated with Outlook – including travel\, accommodation and food – can quickly add up. \nIs there anything planned for the evening before Outlook 2024?\nOutlook officially begins on Saturday 20 April 2024 at the Cardiff Masonic Hall. However\, an unofficial evening meal organised by Outlookers themselves will take place on the Friday evening at a local restaurant. If you’re interested in joining this unofficial meal\, please email us (support@tuberous-sclerosis.org) and we’ll connect you with the meal organisers. \nPlease note: No TSA staff members will be on-hand before or after Outlook. The TSA holds no liability for unofficial meet-ups\, organised meals or connections made as a result of the Outlook event or at any time during the weekend. \nThe TSA provides services like Outlook only thanks to donations. If you’re able to do so\, please give to the TSA so that we can continue to be here for everyone with TSC
URL:https://tuberous-sclerosis.org/event/outlook-2024/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/07/Copy-of-Virtual-event-slate-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230809T180000
DTEND;TZID=Europe/London:20230809T190000
DTSTAMP:20261008T022911
CREATED:20230714T123816Z
LAST-MODIFIED:20230725T093830Z
UID:91996-1691604000-1691607600@tuberous-sclerosis.org
SUMMARY:Wales TSC Clinic catchup 2023
DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Wales NHS TSC Clinic\nOn Wednesday 9 August\, 6pm – 7pm we’ll be delighted to speak with the Wales TSC Clinic. Join us as we hear from the clinic in their annual update and chat broadly with the TSC community in Wales. \nThe session will cover: \n\nRecent clinic updates\, including access and referrals\nBroad updates on TSC diagnosis\, treatment\, and management\nA live Q&A for your questions\n\nClinicians in attendance will include Dr Jennifer Gardner (Specialist Registrar Clinical Genetics). \nRegistration is free – click here to secure your place. \nIf you benefit from this event\, please consider making a donation to the TSA\, to allow us to continue to be here for the TSC community. \nTSA event calendar sponsors 2023:
URL:https://tuberous-sclerosis.org/event/cardiff-catchup-2023/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/07/Copy-of-Virtual-event-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230615T180000
DTEND;TZID=Europe/London:20230615T190000
DTSTAMP:20261008T022911
CREATED:20230607T073907Z
LAST-MODIFIED:20230607T075514Z
UID:91905-1686852000-1686855600@tuberous-sclerosis.org
SUMMARY:Belfast TSC Clinic virtual catch-up
DESCRIPTION:Join us at the Belfast TSC Clinic catch-up\, as we welcome clinicians and the TSC community in Northern Ireland to come together on all-things TSC!\n \nThe Belfast TSC catch-up 2023\, taking place on Thursday 15 June 6pm – 7pm\, is an opportunity to connect with others in the Northern Ireland TSC community and to learn more about the Belfast TSC Clinic. \nClick here to register your free place \nCome along to hear from TSC specialists at the Belfast clinic as we discuss and hear about: \n\nThe latest clinic updates and information\nTSC treatment and management\, with a focus on Northern Ireland\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Belfast team\n\nRegistration is free and open until 5pm on Thursday 15 June.
URL:https://tuberous-sclerosis.org/event/belfast-tsc-clinic-virtual-catch-up/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/06/event-slate-belfast.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230513
DTEND;VALUE=DATE:20230514
DTSTAMP:20261008T022911
CREATED:20230110T143359Z
LAST-MODIFIED:20230320T143504Z
UID:90819-1683936000-1684022399@tuberous-sclerosis.org
SUMMARY:Big Day 2023 - Sat 13 May (Manchester)
DESCRIPTION:Big Day is our biggest event of the year\, where we welcome everyone in the TSC community to get together\, make new friends and be in a place where everyone understands the impact that TSC can have on daily lives.\nBig Day 2023 will take place on Saturday 13 May at the Innside by Melia Hotel in Manchester. At Big Day you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\nDiscuss a range of TSC-related topics\nMore information about Big Day can be found here\n\nLunch and refreshments are provided as part of your ticket booking. Please consider providing a donation to the TSA\, to allow us to continue to run face-to-face events such as Big Day. \nPlease note that the TSA will offer a creche facility at Big Day but will not offer any other care support at the event\, such as personal care support. If you require a carer at Big Day\, we kindly ask that your carer comes with you. \nIf you would like to attend Big Day but are concerned about the financial cost\, you might want to apply for the TSA Support Fund. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/big-day-2023/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/04/Big-Day-logo-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230422T103000
DTEND;TZID=Europe/London:20230422T170000
DTSTAMP:20261008T022911
CREATED:20221214T174829Z
LAST-MODIFIED:20230216T161713Z
UID:90674-1682159400-1682182800@tuberous-sclerosis.org
SUMMARY:Outlook 2023 - Sat 22 April (Leicester)
DESCRIPTION:Are you mildly affected by TSC? Come to Outlook to make new friends\, be around people who understand the impact of TSC\, and attend interesting talks. \n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nOutlook 2023 will take place on Saturday 22 April 2023 at the Devonshire Place Conference Centre. If you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nA full agenda for Outlook 2023 is now confirmed. We know that seeing all of the talks might feel daunting\, but don’t worry! Everyone who attends Outlook can go at their own pace and get as involved as they want. If you’d rather take a step back\, that is no problem at all. \n\n10:00 – 10:30. Tea and coffee\n10:30 – 11:00. Welcome and icebreaker\n11:00 – 11:15. Update from the TSA (TSA staff)\n11:15 – 12:15. All about Gestalt Counselling (Katie Eliot\, TSC community member and Outlooker)\n12:15 – 13:30. Lunch\n13:30 – 14:30. Life as a TSC Researcher (Dr Felix Chan\, Aston University)\n14:30 – 14:45. Coffee break\n14:45 – 15:30. Living with TSC (Corinne Swainger\, TSC community member and Outlooker)\n15:30 – 16:00. How the TSA can help you (TSA staff)\n16:00. Thank you and close\, group chats continue\n\nMore information about Outlook can be found the main Outlook page here.
URL:https://tuberous-sclerosis.org/event/outlook-2023/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/12/Outlook-2023-slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230222T180000
DTEND;TZID=Europe/London:20230222T190000
DTSTAMP:20261008T022911
CREATED:20230207T120013Z
LAST-MODIFIED:20230207T121654Z
UID:90997-1677088800-1677092400@tuberous-sclerosis.org
SUMMARY:TSC and pregnancy with Antenatal Results and Choices (ARC)
DESCRIPTION:Our latest virtual event is aimed towards members of the TSC community who are experiencing or have questions around TSC\, family planning and pregnancy.\n \nJoin us for an informative and supportive discussion. This can be a challenging topic and one that we’re committed to doing justice. We’ll provide an opportunity for you to ask questions\, gain knowledge\, and connect with others who are facing similar challenges. \nTo ensure you get the right expertise and information\, we’re pleased to welcome Antenatal Results and Choices (ARC) as part of the event. ARC is a leader in offering support to families who receive a diagnosis of a genetic condition during pregnancy. Their experience will be a valuable resource to the event. \nThis virtual event will be the first of its kind for the TSC community. Virtual tickets are free and will be available until 5pm on the day of the event. \nIf you benefit from this event\, please consider making a donation to the TSA\, to allow us to continue to be here for the TSC community.
URL:https://tuberous-sclerosis.org/event/tsc-pregnancy-arc/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2023/02/TSC-stories.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230111T180000
DTEND;TZID=Europe/London:20230111T190000
DTSTAMP:20261008T022911
CREATED:20230104T110407Z
LAST-MODIFIED:20230104T110407Z
UID:90789-1673460000-1673463600@tuberous-sclerosis.org
SUMMARY:Wills and future planning with The Money Charity
DESCRIPTION:Thinking about finances for when you’re no longer around is an important area of money management\nThis 1-hour virtual workshop\, delivered by The Money Charity\, will help you have greater clarity on organising your finances and the finances of your loved ones\, should you pass away or when you grow older.  \nThe workshop will cover: \n\nThe importance of wills\, trusts and planning for finances when you die\nSetting up a will\nPower of attorney\nHealth and social care provision for loved ones after you pass\n\nThis virtual workshop is free to attend and the recording will be available for a limited time only – be sure to sign up!
URL:https://tuberous-sclerosis.org/event/wills-future-planning/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/the-money-charity-header.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221210T133000
DTEND;TZID=Europe/London:20221210T150000
DTSTAMP:20261008T022911
CREATED:20220517T125714Z
LAST-MODIFIED:20221129T140303Z
UID:89544-1670679000-1670684400@tuberous-sclerosis.org
SUMMARY:Virtual Outlook festive special 2022
DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nOutlook is our group for adults who are mildly affected by TSC. Every year\, the Outlook group have different opportunities to meet up with others who understand the impact of being mildly affected by TSC. The festive special is a chance for ‘Outlookers’ – even if this is your first event – to get together for the festive season! \nWhether you’ve been to Outlook events before or if it’s your first time\, come along to meet with others virtually on Saturday 10 December\, 1:30pm – 3:00pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nAn agenda for the event can be found below\, but expect opportunities to meet other people mildly affected by TSC in a laid-back atmosphere. \n\n1:30pm – 1:45pm: Welcome and introductions\, update from the TSA\n1:45pm – 2:30pm: Christmas quiz\n2:30pm – 2:55pm: Group discussion: Reasons to be positive\n2:55pm – 3pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 11am Saturday 10 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible.
URL:https://tuberous-sclerosis.org/event/virtual-outlook-festive-special-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Outlook-festive-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221207T190000
DTEND;TZID=Europe/London:20221207T200000
DTSTAMP:20261008T022911
CREATED:20220805T154510Z
LAST-MODIFIED:20221019T101422Z
UID:90064-1670439600-1670443200@tuberous-sclerosis.org
SUMMARY:TSA Annual General Meeting 2022
DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2022 is an important opportunity to hear more about the TSA’s strategic planning and goals. By attending the AGM\, you can find out more about the inner-workings of the TSA and how our targets are developed. \nThe TSA’s Board of Trustees will discuss TSA finances\, major achievements of the charity over the last 12 months\, and our plans for 2023 and beyond. Plus\, there’ll be the opportunity to put your questions and comments to TSA Trustees. Opening stages of the event will include Trustees voting on agenda points for the AGM. \nThe AGM 2022 will take place virtually on Wednesday 7 December\, 7pm – 8pm. To attend the event\, please register below. Registration will remain open until 6pm on the day of the event. \nIf you have a question that you would like to ask the TSA Board of Trustees as part of the TSA’s AGM 2022\, please email the TSA’s Joint Chief Executives: admin@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsa-annual-general-meeting-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221123T180000
DTEND;TZID=Europe/London:20221123T190000
DTSTAMP:20261008T022911
CREATED:20220504T133151Z
LAST-MODIFIED:20220504T133151Z
UID:89599-1669226400-1669230000@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 4
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-4/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-4.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221116T180000
DTEND;TZID=Europe/London:20221116T190000
DTSTAMP:20261008T022911
CREATED:20220504T132958Z
LAST-MODIFIED:20220504T132958Z
UID:89595-1668621600-1668625200@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 3
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-3/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221109T180000
DTEND;TZID=Europe/London:20221109T190000
DTSTAMP:20261008T022911
CREATED:20220504T132654Z
LAST-MODIFIED:20220504T132654Z
UID:89584-1668016800-1668020400@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 2
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-music-therapy-session-2/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221102T180000
DTEND;TZID=Europe/London:20221102T190000
DTSTAMP:20261008T022911
CREATED:20220504T131029Z
LAST-MODIFIED:20220504T131029Z
UID:89578-1667412000-1667415600@tuberous-sclerosis.org
SUMMARY:TSC and music therapy: Session 1
DESCRIPTION:Join us for a special series of virtual events\, where we embrace the power of music therapy for children in the TSC community \n \nMusic therapy is a recognised health and therapeutic intervention\, with the power of music having the potential to improve all areas of health and wellbeing. In a series of four free virtual events during November 2022\, the TSA welcomes Nordoff Robbins – the UK’s largest music therapy charity – and their talented musicians to support the development and wellbeing of children living with TSC. \nWhether you’ve been to music therapy classes before or if this is your first time\, you’ll be warmly welcomed. Don’t worry if you’re not a musician yourself – there’s no experience required! \nThe four FREE music therapy sessions\, exclusively for the TSC community\, will take place Wednesday 6pm – 7pm 2\, 9\, 16 and 23 November. \nMore about Nordoff Robbins \nAs the UK’s largest music therapy charity\, we stand for music and believe in the value of music for all people in our society. In particular\, we use the power of music to enrich the lives of people affected by life-limiting physical and mental illness\, disabilities or feelings of isolation. We provide a range of different sessions for children and adults of all ages in our centres across the UK – from specialised one-to-one music therapy to shared sessions for groups of different sizes and formats. We also work in partnership with over 280 organisations to bring music therapy to as many vulnerable people who could benefit from it as possible. These include schools\, care homes\, hospices\, hospitals\, mental health services\, and brain injury units. \nMore about the session leader\, Jo Humphreys\, BMus MMT (NR) \nJo qualified as a music therapist in 2013 after completing the Master of Music Therapy programme at the Nordoff Robbins London Centre and has worked as a music therapist at Nordoff Robbins ever since. She has been lucky enough to meet and make music with a diverse range of children and adults in special and mainstream schools\, hospitals\, community settings and more recently\, online. In 2016 she established the first Nordoff Robbins work in South Wales and now supports a growing team of therapists across South Wales and the Southwest of England. She is passionate about working with people to realise their musical potential\, and make the social\, cognitive\, physical and emotional benefits of music accessible to everyone. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/music-therapy-session-1/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Music-therapy-featured.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20221005T180000
DTEND;TZID=Europe/London:20221005T190000
DTSTAMP:20261008T022911
CREATED:20220909T095135Z
LAST-MODIFIED:20220909T095135Z
UID:90125-1664992800-1664996400@tuberous-sclerosis.org
SUMMARY:TSC wellbeing and skin problems
DESCRIPTION:Many people with TSC face emotional and wellbeing challenges as a result of skin issues\nOn Wednesday 5 October\, 6pm – 7pm\, we’ll hear from Jules Carr\, Senior Wellbeing Practitioner at Changing Faces\, a charity supporting children\, young people and adults with a visible difference. \nThe event will cover the link between skin conditions and emotional wellbeing\, including actionable steps to support your wellbeing when living with TSC-related skin conditions\, such as facial angiofibromas. Plus\, your chance to put your questions to Jules.
URL:https://tuberous-sclerosis.org/event/tsc-wellbeing-skin-problems/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/09/og-img.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220907T180000
DTEND;TZID=Europe/London:20220907T190000
DTSTAMP:20261008T022911
CREATED:20220304T150938Z
LAST-MODIFIED:20220304T150938Z
UID:88900-1662573600-1662577200@tuberous-sclerosis.org
SUMMARY:Glasgow TSC clinic virtual update 2022
DESCRIPTION:Do you live in Scotland and are affected by TSC? Join us for an important annual update from the Glasgow NHS TSC Clinic\nOn Wednesday 7 September\, 6pm – 7pm\, the TSA welcomes the Glasgow TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management (including access to Epidyolex for TSC-related epilepsy)\nNext steps for the clinic\nA Q&A where you can put your questions to the Glasgow team\n\nRegister below for this free session (registration open until 4pm 7 September).
URL:https://tuberous-sclerosis.org/event/glasgow-tsc-clinic-update-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/Glasgow-clinic-virtual-update.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220810T180000
DTEND;TZID=Europe/London:20220810T190000
DTSTAMP:20261008T022911
CREATED:20220517T110426Z
LAST-MODIFIED:20220517T110426Z
UID:89705-1660154400-1660158000@tuberous-sclerosis.org
SUMMARY:St George's London TSC clinic virtual update 2022
DESCRIPTION:Join us for an important annual update from the St George’s (London) TSC Clinic\, one of the largest TSC clinics in the UK\nOn Wednesday 10 August\, 6pm – 7pm\, the TSA welcomes clinicians from the St George’s TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the St George’s team\n\nRegister below for this free session (registration open until 5pm\, 10 August).
URL:https://tuberous-sclerosis.org/event/st-georges-catchup-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/St-Georges-clinic-update-2022-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220706T180000
DTEND;TZID=Europe/London:20220706T190000
DTSTAMP:20261008T022911
CREATED:20220504T150646Z
LAST-MODIFIED:20220617T113314Z
UID:89605-1657130400-1657134000@tuberous-sclerosis.org
SUMMARY:TSC and neurodivergence
DESCRIPTION:Around one in two people who live with TSC are neurodivergent. In this virtual event\, we meet The Brain Charity to discuss neurodiversity in more detail\n \nNeurodivergence is the term for when someone’s brain processes\, learns\, and/or behaves differently from what is considered ‘typical’. Examples of neurodivergence includes autism spectrum disorder and Attention deficit hyperactivity disorder (ADHD). \nIt is normal and quite common to be neurodivergent – whether that means you have only a small number of support needs\, or require support needs that a very high. On Wednesday 6 July\, we welcome The Brain Charity\, who offer emotional support\, practical help and social activities to anyone with a neurological condition \nTickets registration for this free event closes at 5pm\, Wednesday 6 July. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-and-neurodivergence/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/05/Brain-charity.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220615T180000
DTEND;TZID=Europe/London:20220615T190000
DTSTAMP:20261008T022911
CREATED:20220304T122306Z
LAST-MODIFIED:20220304T122306Z
UID:88893-1655316000-1655319600@tuberous-sclerosis.org
SUMMARY:Cardiff TSC clinic update 2022
DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 15 June\, 6pm – 7pm\, the TSA welcomes clinicians from the Cardiff TSC clinic to discuss all-things TSC\, and the clinic as a whole. Topics will include: \n\nImportant clinic updates\, such as accessing the clinic and referrals\nTSC diagnosis\, treatment and management\nNext steps for the clinic\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm 15 June).
URL:https://tuberous-sclerosis.org/event/cardiff-tsc-clinic-update-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/cardiff-clinic-update-2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220511T180000
DTEND;TZID=Europe/London:20220511T190000
DTSTAMP:20261008T022911
CREATED:20220302T121016Z
LAST-MODIFIED:20220302T121016Z
UID:88846-1652292000-1652295600@tuberous-sclerosis.org
SUMMARY:Respite for carers in the TSC community
DESCRIPTION:Many people in the TSC community are carers for loved ones who live with TSC. Caring can be an exhausting\, selfless and incredibly challenging step – with little time for respite \n \nIn this free virtual event\, the TSA welcomes The Respite Association to discuss the importance of carer self-care and respite for carers. The Respite Association was founded by people all with first-hand experience of caring\, and the stress and hurdles that come with caring for loved ones. \nIf you’re a carer in the TSC community\, you’ll be welcomed into an understanding and warm virtual event\, focused on helping you and your family. \nThe virtual event will take place through Zoom on Wednesday 11 May\, 6pm – 7pm. Registration ends 5pm\, 11 May. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/respite-for-carers/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/03/carers-featured.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220423T100000
DTEND;TZID=Europe/London:20220423T163000
DTSTAMP:20261008T022912
CREATED:20220112T095931Z
LAST-MODIFIED:20220203T094814Z
UID:88157-1650708000-1650731400@tuberous-sclerosis.org
SUMMARY:Outlook 2022
DESCRIPTION:Are you an adult mildly affected by TSC? Come to Outlook – a chance to make new and meet old friends\, share experiences about TSC and attend interesting workshops and talks. \n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nIn 2022\, we are delighted to bring back a face-to-face Outlook event\, with Outlook 2022 taking place at the Radisson Blu Hotel\, Durham! \nAs with Outlook events\, for this year we have a varied and worthwhile agenda for adults mildly affected by TSC: \n\n10:00 – 10:45: Welcome and introductions\, plus icebreaker\n10:45 – 11:00: An update from the TSA\n11:00 – 11:15: Break\n11:15 – 12:45: Emotional Freedom Technique workshop with Heather Graham (Ready for Change Now)\n12:45 – 2:00: Lunch\n2:00 – 3:30: Looking After Our Sleep (Kerry Davies\, The Sleep Charity)\n3:30 – 3:45: Coffee break\n3:45 – 4:30: Challenges and opportunities of living with TSC\n4:30: Plans for Outlook 2023\, thank you and close\n\nMore information about Outlook can be found the main Outlook page here.
URL:https://tuberous-sclerosis.org/event/outlook-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/Outlook-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220406T180000
DTEND;TZID=Europe/London:20220406T190000
DTSTAMP:20261008T022912
CREATED:20220112T112121Z
LAST-MODIFIED:20220119T094234Z
UID:88161-1649268000-1649271600@tuberous-sclerosis.org
SUMMARY:TSC and epilespy
DESCRIPTION:Around 4 in every 5 people affected by TSC also have TSC-related epilepsy. Join us for this virtual session\, focused on one of the most common aspects of TSC\n \nEpilepsy can have a major impact on people’s lives\, whether mild or severe. During this free event\, Dr Sam Amin (Consultant Paediatric Neurologist\, University of Bristol) will discuss a wide range of TSC-related epilepsy topics\, including: \n\nThe most common epilepsy questions received by the TSA\nTreating and managing TSC-related epilepsy\, including which epilepsy medicines are currently in development\nThe latest in TSC-related epilepsy research\n\nThe virtual event will take place through Zoom on Wednesday 6 April\, 6pm – 7pm. Free registration ends 5pm\, 6 April. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-epilepsy-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/tscepilepsy2022slate_2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220323T180000
DTEND;TZID=Europe/London:20220323T190000
DTSTAMP:20261008T022912
CREATED:20220112T120821Z
LAST-MODIFIED:20220112T120821Z
UID:88179-1648058400-1648062000@tuberous-sclerosis.org
SUMMARY:TSC and the kidneys
DESCRIPTION:One of the most common ways that TSC can affect someone is problems with the kidneys. In this free virtual event\, kidney experts Dr Chris Kingswood and Dr Nicholas Annear (St George’s University Hospital) discuss TSC and kidneys in more depth\n \nAround eight in every 10 people living with TSC will experience some kidney problems at some stage of their life. Kidney problems are not common in early childhood\, but become more common as individuals get older. \nDuring this free event\, Dr Kingswood and Dr Annear will provide a broad overview of TSC and the kidneys\, including diagnosis\, treatment and management of kidney problems in TSC. There will also be time to put your kidney questions to the experts. \nMore information about TSC and the kidneys can be found here. This event will take place through Zoom\, with free registration open until 5pm 23 March.
URL:https://tuberous-sclerosis.org/event/tsc-kidneys-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/tsckidneys2022slate.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220310T180000
DTEND;TZID=Europe/London:20220310T190000
DTSTAMP:20261008T022912
CREATED:20220112T114450Z
LAST-MODIFIED:20220309T092234Z
UID:88171-1646935200-1646938800@tuberous-sclerosis.org
SUMMARY:Belfast TSC Clinic virtual catch-up
DESCRIPTION:Join the Belfast TSC Clinic catch-up 2022\, as we welcome the TSC community in Northern Ireland to come together on all-things TSC in the nation\n \nThe Belfast TSC catch-up 2022\, taking place on Thursday 10 March 6pm – 7pm\, is an opportunity to connect with others in the Northern Ireland TSC community and to learn more about the Belfast TSC Clinic. \nCome along to hear from TSC specialists at the Belfast clinic as we discuss: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\, including a look over the last year\nTSC treatment and management\, with a focus on Northern Ireland\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Belfast team\n\nRegistration is free and open until 5pm on Thursday 10 March.
URL:https://tuberous-sclerosis.org/event/belfast-clinic-catchup-2022/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2022/01/belfast-tsc-clinic-catchup-2022.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220112T180000
DTEND;TZID=Europe/London:20220112T190000
DTSTAMP:20261008T022912
CREATED:20211210T111911Z
LAST-MODIFIED:20211210T112035Z
UID:88066-1642010400-1642014000@tuberous-sclerosis.org
SUMMARY:Financial wellbeing with The Money Charity
DESCRIPTION:Would you like to feel more confident about money?\nThis 1-hour virtual workshop\, delivered by The Money Charity and trainer Emma Waller (financial wellbeing consultant and co-author of Martin Lewis book ‘Your Money Matters’)\, is designed to help attendees manage their money better\, stay on top of their finances and plan for the future. It also offers the latest in money saving tips. \nThe workshop will cover: \n\nThe importance of financial resilience\nBudgeting & planning\nCredit & borrowing & your credit score\nWhere to access support for debt\nWays to save money in everyday life\nHow to make your money work harder\n\nAll attendees will receive a free digital copy of The Money Manual – a handy guide to making the most of your money. Attendees will never be offered financial products or services during or after our workshops. \nThis virtual workshop is free to attend but is restricted to a maximum of 20 registrations – so be quick!
URL:https://tuberous-sclerosis.org/event/financial-wellbeing/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2021/12/the-money-charity-header.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211211T150000
DTEND;TZID=Europe/London:20211211T171500
DTSTAMP:20261008T022912
CREATED:20211029T094201Z
LAST-MODIFIED:20211029T094201Z
UID:87515-1639234800-1639242900@tuberous-sclerosis.org
SUMMARY:Virtual Outlook festive special 2021
DESCRIPTION:Grab a minced pie\, a cracker and your winter jumper – Outlook is going festive once more!\nLast year\, Outlook – a special community for adults mildly affected by TSC – held a virtual festive special for the first time. The event went so well\, that we’re bringing it back for 2021! \nWhether you’ve been to Outlook before or if it’s your first time\, come along to meet with others virtually on Saturday 11 December\, 3pm – 5:15pm for some festive cheer and to connect with others in the TSC community. \nBe sure to wear your best festive jumper – you might be the winner of the hotly-contested jumper competition! \nOutlook festive special 2021 agenda: \n\n3pm – 3:05pm\, Welcome and introductions\n3:05pm – 3:20pm\, Update from the TSA\n3:20pm – 4pm\, Christmas quiz (courtesy of Phil Rogers)\n4pm – 4:10pm\, Break\n4:10pm – 5pm\, Group discussion: Reasons to be positive in 2021 and 2022\n5pm – 5:15pm: Thank yous\, jumper competition\, close\n\nRegister below for this free session (registration open until 1pm Saturday 11 December). \nThe TSA would like to say a big thank you to the Outlook Steering Group for all of their help in organising the event – without them it would not be possible.
URL:https://tuberous-sclerosis.org/event/outlook-festive-2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/outlookfestive2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211208T180000
DTEND;TZID=Europe/London:20211208T190000
DTSTAMP:20261008T022912
CREATED:20211110T114234Z
LAST-MODIFIED:20211110T114234Z
UID:87562-1638986400-1638990000@tuberous-sclerosis.org
SUMMARY:Cardiff TSC Clinic update 2021
DESCRIPTION:Do you live in Wales and are affected by TSC? Join us for an important annual update from the Cardiff NHS TSC Clinic\nOn Wednesday 8 December\, 6pm – 7pm\, the TSA welcomes Dr Jenny Gardener (Consultant Clinical Geneticist)\, Dr Anurag Saxena (Consultant Paediatric Neurologist) and Karen Bailey (TSC Specialist Nurse) to discuss the Cardiff NHS TSC clinic. Topics will include: \n\nHow to be referred to the TSC clinic\nClinic access and next steps\nTSC treatment and management\, including access to everolimus in Wales\nNext steps for the clinic\, following long-term funding\nA Q&A where you can put your questions to the Cardiff team\n\nRegister below for this free session (registration open until 4pm Saturday 8 December).
URL:https://tuberous-sclerosis.org/event/cardiff-clinic-update-2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/11/cardiff-clinic-update-2021.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20211123T180000
DTEND;TZID=Europe/London:20211123T190000
DTSTAMP:20261008T022912
CREATED:20211018T094655Z
LAST-MODIFIED:20211018T094655Z
UID:87436-1637690400-1637694000@tuberous-sclerosis.org
SUMMARY:Virtual event: TSC and lymphangioleiomyomatosis (LAM)
DESCRIPTION:Virtual event: TSC and lymphangioleiomyomatosis (LAM).\n \nAround three in every 10 women who live with TSC\, and a very small number of males\, also develop complications in the lungs\, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person varies significantly amongst individuals living with TSC\, with problems ranging from shortness of breath and coughing to chest pain or a collapsed lung. \nIn this free virtual event\, we welcome Professor Simon Johnson (LAM National Centre Director) to discuss the condition in more detail\, what it can mean for people who live with the condition day-to-day\, and what next steps people with TSC and LAM may have. \nTaking place on Tuesday 23 November\, 6pm – 7pm\, this free event will also include a question and answer section – giving you the chance to put your LAM questions to Professor Johnson. \n‘TSC and LAM’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and LAM can be found here\, or by contacting the TSA Support Line.
URL:https://tuberous-sclerosis.org/event/tsc-and-lam/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/tsclamslate.png
END:VEVENT
END:VCALENDAR