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X-WR-CALNAME:The Tuberous Sclerosis Association
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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;TZID=Europe/London:20261118T130000
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DTSTAMP:20261008T002321
CREATED:20261003T164823Z
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UID:98212-1795006800-1795010400@tuberous-sclerosis.org
SUMMARY:TSA AGM 2026 and expert update on the TAND Toolkit app  
DESCRIPTION:Wednesday 18th November\, 13:00 – 14:00\nBook your free tickets for the TSA AGM 2026\nThe TSA’s AGM for 2026 will take place virtually on Wednesday 18th November 13:00 – 14:00. It will include an update from Prof. Petrus de Vries and Prof. Anna Jansen on the TAND Toolkit app.\n\n\n \n\n\nAgenda items are:\n\n-Discussing the TSA’s latest accounts and Board of Trustees report \n-Re-electing existing Trustees (Dr Frances Elmslie\, Chair\, and Simon James\, Treasurer) \n-Electing new Trustees \n\n \n\n\nIf you’ve ever been in touch with the TSA\, you’re a member\, meaning you can attend and vote at AGMs. You may appoint one or more proxies to attend and vote for you. A proxy need not be a TSA member. There is no contract of service between any Trustee and the TSA. Interested in joining the TSA Board of Trustees\, or would like to discuss any issues with the TSA Chair? Please contact: admin@tuberous-sclerosis.org / 0300 222 5737.\n\nBook your free tickets for the TSA AGM 2026
URL:https://tuberous-sclerosis.org/event/tsa-agm-2026/
CATEGORIES:Community Event
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DTSTART;TZID=Europe/London:20261128T110000
DTEND;TZID=Europe/London:20261128T123000
DTSTAMP:20261008T002321
CREATED:20260905T135409Z
LAST-MODIFIED:20260905T135914Z
UID:98096-1795863600-1795869000@tuberous-sclerosis.org
SUMMARY:November 2026 Festive Outlook Virtual Get Together:
DESCRIPTION:Click here to register for this event\nOutlook is the TSA’s group for adults affected by TSC. Come along to our virtual event to make new friends and share experiences about TSC\, all from the comfort of your home via Zoom. This session is festive themed\, so will also feature a festive quiz.\nAll adults affected by TSC in the UK will receive a warm welcome at Outlook events\, whether it’s your first time at Outlook or you attend every event. \nEveryone who attends an Outlook virtual event can go at their own pace and get as involved as they want. If you’d rather have your camera off\, that is no problem at all. We will be ready to welcome you to the chat whenever you are ready! \nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/november-2026-outlook-virtual-get-together-2/
CATEGORIES:Community Event
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DTSTART;VALUE=DATE:20270515
DTEND;VALUE=DATE:20270516
DTSTAMP:20261008T002321
CREATED:20261003T170448Z
LAST-MODIFIED:20261003T170448Z
UID:98202-1810339200-1810425599@tuberous-sclerosis.org
SUMMARY:TSC Connect 2027 Saturday 15th May (Milton Keynes)
DESCRIPTION:Book your tickets for TSC Connect 2027Saturday 15 May 2027\, 10am – 4:30pm\nLeonardo Hotel\, Milton Keynes\n\nEVERYONE in the TSC community is welcome to TSC Connect! Come along to share experiences\, make new friends\, learn from world leading experts and discuss life with TSC\nTSC Connect 2027 will take place on Saturday 15 May at the Leonardo Hotel\, Milton Keynes\, 10am – 4:30pm. \nTSC Connect is an event for everyone in the TSC community and is extra special as we will be celebrating 50 years of the TSA on TSC Global Awareness Day. \nTSC Connect reflects the TSA’s aim to bring together the TSC community\, including adults\, families\, professionals\, clinicians\, researchers and supporters to connect\, share knowledge and celebrate the progress made over the past 50 years. This page has lots of helpful information about what to expect at TSC Connect\, our biggest annual event of the year. ‘Biggest’ might sound daunting\, but we encourage everyone in the TSC community to attend and to enjoy the day in any way that they prefer. This gives us all the chance to make friends\, connect and learn together. \n\nAn agenda and more details will follow shortly. \n\nConcerned about the cost of TSC Connect? You might be eligible for the TSA Support Fund\, or you’re in financial difficulties you can apply for complementary tickets by contacting the TSA Support Line. \n\nWhat is TSC Connect?\nEveryone in the TSC community is invited to come along in-person to TSC Connect to ‘connect’ with others affected by TSC. It is a full-day event\, with talks\, opportunities to make new friends\, and the chance to speak with people from the TSA. \nAt TSC Connect you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nDiscuss a range of topics\, all focused on TSC\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\n\nWe try to keep our events affordable for everyone. Tickets are priced £10 for adults and are free for children under 18. This helps us to get back a small amount of what it costs to run the event and to provide a free creche. \nWhen and where will TSC Connect 2027 take place?\nTSC Connect 2027 will take place on Saturday 15th May 10am – 4:30pm at the Leonardo Hotel\, Milton Keynes. \nLeonardo Hotel Milton Keynes is conveniently located near Milton Keynes Central Rail Station and easily accessible by car or public transport. \nOff-site parking is available opposite the hotel on Midsummer Boulevard\, approximately 50 metres away. The tariffs are: \n\nStandard tariff (purple bays) £1 per hour for the first two hours\, then 50p per hour (minimum stay two hours)\nPremium tariff (red bays) £2.50 for the first hour\, then £2 per hour\nLong stay tariff (blue bays) £10 all day\n\nParking charges apply from 7am to 6pm every day. For more details – Where to park | Milton Keynes City Council \n\n\n\n\n\n\n\n\n\n\n\nI'm nervous about TSC Connect 2027 being too busy\nTSC Connect can be a buzzing event. However\, you can go at your own pace – there’s no pressure to be involved in any session that you would prefer to sit out. If you’d rather just spend the day talking to others in a quiet corner\, then you’re welcome to do so! \nDoes the TSA organise accomodation?\nThe TSA does not organise accommodation directly. Accommodation isn’t a requirement in order to attend. To book a room at the venue of TSC Connect 2027\, the Leonardo Hotel\, Milton Keynes\, you can click here. \nOther nearby hotels include: \n\neasyHotel Milton Keynes Central\nMoxy Milton Keynes\nHoliday Inn Express Milton Keynes\n\nDoes the TSA provide a creche or carer support at TSC Connect?\nWe’re delighted to provide a creche\, plus a new supervised space for older or more independent children\, at TSC Connect for children aged under 18. We’ve partnered once again with the fantastic Event Childcare to offer this service. Event Childcare is a family-owned team who provide SEN nannies at events. We were delighted to welcome Event Childcare to previous events. \nThe creche and supervised space will be available 10am – 4:30pm. The creche and supervised space are provided in a room very close to the main TSC Connect meeting room (Midsummer Hall). If you plan to make use of the creche or supervised space facilities at TSC Connect\, please ensure that you include this on your booking form. \nOther than the creche and supervised space\, the TSA will not provide any other form of care support at Big Day. If you require a carer at Big Day\, we kindly ask that your carer comes with you. If paying for care support to attend TSC Connect is a challenge for you\, you might want to consider applying to the TSA Support Fund. \nWhat sort of people go to TSC Connect?\nTSC Connect welcomes everyone in the TSC community. Whether you live with TSC yourself\, if you’re a family member or partner of someone who has TSC\, or a carer or other professional – we’ll be delighted to welcome you! \nTSC Connect is a chance for the entire TSC community as a whole to connect\, whoever you are and how much TSC affects you and your family. This includes TSA staff\, who will be in attendance too! \nI want to help organise TSC Connect\n\n\n\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including TSC Connect! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \n\n\n\nI want to come to TSC Connect 2027 but can't afford it\nAlthough the TSA has tried to keep the cost for attendees as low as possible\, all the costs associated with event – including travel\, accommodation and food – can quickly add up. \nTSA Support Fund might be able to help. Open to people affected by TSC and in receipt of benefits\, the TSA Support Fund offers grants to people when the financial impact of TSC becomes too much – including with costs towards paying for attending Big Day whether it’s costs towards travel\, accommodation or care support (or anything else). \nYou can also apply for complementary tickets for TSC Connect by contacting the TSA Support Line. \nAre dogs allowed to attend TSC Connect?\nUnfortunately\, we do not allow dogs to attend TSC Connect. Assistance dogs are of course exempt and are welcome to attend. We apologise for any inconvenience or disappointment this may cause. \nBook your tickets for TSC Connect 2027
URL:https://tuberous-sclerosis.org/event/tsc-connect-2027-sat-15-may-milton-keynes/
CATEGORIES:Community Event
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