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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20261008T040931
CREATED:20260421T144807Z
LAST-MODIFIED:20260602T093238Z
UID:97858-1780704000-1780790399@tuberous-sclerosis.org
SUMMARY:**SOLD OUT** Big Day 2026 - Sat 6 June (Milton Keynes)
DESCRIPTION:***BIG DAY 2026 IS NOW AT CAPACITY. THANK YOU TO EVERYONE WHO HAS SIGNED UP\, WE LOOK FORWARD TO SEEING YOU THERE***\nBook your tickets for Big Day 2026 **BOOKINGS NOW CLOSED**Saturday 6 June 2026\, 10am – 4:30pm\nLeonardo Hotel\, Milton Keynes\n\nEveryone in the TSC community is welcome to Big Day! Come along to share experiences\, make new friends and discuss life with TSC\nBig Day 2026 will take place on Saturday 6 June at the Leonardo Hotel\, Milton Keynes\, 10am – 4:30pm. \nThis page has lots of helpful information about what to expect at Big Day\, our biggest annual event of the year. ‘Biggest’ might sound daunting\, but we encourage everyone in the TSC community to attend and to enjoy the day in any way that they prefer. This gives us all the chance to make friends\, connect and learn together. \nConcerned about the cost of Big Day? You might be eligible for the TSA Support Fund\, or you’re in financial difficulties you can apply for complementary tickets by contacting the TSA Support Line. \n\nBig Day 2026 agenda\n\n10:00-10:30: Welcome and introductions with teas and coffees\n10:30-11:10: Concurrent Sessions:\nEarly development for newly diagnosed – Dr Rana Mohamed\nTransition to adult care – Catherine Swales\nSiblings support chat – Nicola Daykin and Arlo Taylor-Osmond\nTSC and adult relationships – Kate Linden-Wyatt\n11:15-12:00: The benefits of mindfulness – Tony O’Shea-Poon\n12:00-13:30: Lunch\n13:30-14:15: Metformin trial update and the importance of a TSC registry – Dr Sam Amin\n14:15-15:00: Researcher panel – Dr Stacey Bissell\, Dr Lucas Gutierrez Lafrentz and Dr Felix Chan\n15:00-15:15: Community speaker: Life with TSC – Arlo Taylor-Osmond\n15:15-15:45: Coffee break and raffle\n15:45-16:30: Update on TSC and genetics research – Prof Andrew Tee\n16:30: Thank you and goodbye\n\nWhat is Big Day?\nBig Day is one of the TSA’s longest-running events. Everyone in the TSC community is invited to come along in-person and connect with others affected by TSC. It is a full-day event\, with talks\, opportunities to make new friends\, and the chance to speak with people from the TSA. \nAt Big Day you can expect to: \n\nBe in an environment where people understand the impact that TSC can have on lives\, with significant time allowed for networking\nDiscuss a range of topics\, all focused on TSC\nHave the opportunity to meet and get to know individuals and families affected by TSC\nMeet the TSA team and tell us about what is most important to you\n\nWe try to keep Big Day as affordable for everyone. Tickets are priced £10 for adults and are free for children under 18. This helps us to get back a small amount of what it costs to run the event and to provide a free creche. \nWhen and where will Big Day 2026 take place?\nBig Day 2026 will take place on Saturday 6 June 10am – 4:30pm at the Leonardo Hotel\, Milton Keynes. \nLeonardo Hotel Milton Keynes is conveniently located near Milton Keynes Central Rail Station and easily accessible by car or public transport. \nOff-site parking is available opposite the hotel on Midsummer Boulevard\, approximately 50 metres away. The tariffs are: \n\nStandard tariff (purple bays) £1 per hour for the first two hours\, then 50p per hour (minimum stay two hours)\nPremium tariff (red bays) £2.50 for the first hour\, then £2 per hour\nLong stay tariff (blue bays) £10 all day\n\nParking charges apply from 7am to 6pm every day. For more details – Where to park | Milton Keynes City Council \n\n\n\n\n\n\n\n\n\n\n\nI'm nervous about Big Day 2026 being too busy\nBig Day can be a buzzing event. However\, you can go at your own pace – there’s no pressure to be involved in any session that you would prefer to sit out. If you’d rather just spend the day talking to others in a quiet corner\, then you’re welcome to do so! \nDoes the TSA organise accomodation?\nThe TSA does not organise accommodation directly. Accommodation isn’t a requirement in order to attend. To book a room at Big Day’s 2026 venue the Leonardo Hotel\, Milton Keynes you can click here. \nOther nearby hotels include: \n\neasyHotel Milton Keynes Central\nMoxy Milton Keynes\nHoliday Inn Express Milton Keynes\n\nDoes the TSA provide a creche or carer support at Big Day 2026?\nWe’re delighted to provide a creche at this year’s Big Day for children aged under 18. We’ve partnered once again with the fantastic Event Childcare to offer this service. Event Childcare is a family-owned team who provide SEN nannies at events\, including Big Day. We were delighted to welcome Event Childcare to previous Big Days. \nThe creche will be available 10am – 4:30pm. The creche is provided in a room very close to the main Big Day meeting room. If you plan to make use of the creche facilities at Big Day\, please ensure that you include this on your booking form. \nOther than the creche\, the TSA will not provide any other form of care support at Big Day. If you require a carer at Big Day\, we kindly ask that your carer comes with you. If paying for care support to attend Big Day is a challenge for you\, you might want to consider applying to the TSA Support Fund. \nWhat sort of people go to Big Day?\nBig Day welcomes everyone in the TSC community. Whether you live with TSC yourself\, if you’re a family member or partner of someone who has TSC\, or a carer or other professional – we’ll be delighted to welcome you! \nBig Day is a chance for the entire TSC community as a whole to connect\, whoever you are and how much TSC affects you and your family. This includes TSA staff\, who will be in attendance too! \nI want to help organise Big Day\n\n\n\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Big Day! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \n\n\n\nI want to come to Big Day 2026 but can't afford it\nAlthough the TSA always tries to keep the price of Big Day for attendees as low as possible\, all the costs associated with event – including travel\, accommodation and food – can quickly add up. \nTSA Support Fund might be able to help. Open to people affected by TSC and in receipt of benefits\, the TSA Support Fund offers grants to people when the financial impact of TSC becomes too much – including with costs towards paying for attending Big Day whether it’s costs towards travel\, accommodation or care support (or anything else). \nYou can also apply for complementary tickets for Big Day by contacting the TSA Support Line. \nAre dogs allowed to attend Big Day?\nUnfortunately\, we do not allow dogs to attend Big Day. Assistance dogs are of course exempt and are welcome to attend. We apologise for any inconvenience or disappointment this may cause. \nBook your tickets for Big Day 2026 **BOOKINGS NOW CLOSED**
URL:https://tuberous-sclerosis.org/event/big-day-2026-sat-6-june-milton-keynes-2/
CATEGORIES:Community Event
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DTSTART;TZID=Europe/London:20260618T180000
DTEND;TZID=Europe/London:20260618T190000
DTSTAMP:20261008T040931
CREATED:20260608T154747Z
LAST-MODIFIED:20260608T154747Z
UID:97923-1781805600-1781809200@tuberous-sclerosis.org
SUMMARY:TSC Teens Art Club: 18 June 2026
DESCRIPTION:Click here to register for this event\nJoin professional artist Sarah Goy for the regular virtual TSC Teens Art Club!\nTSC Teen Art Club is a regular virtual creative event\, especially for teenagers in the TSC community. It’s focused on a playful approach to art. Sarah\, who also has TSC herself\, runs the events virtually on Zoom. \nThe hope is that each session will support mental health and help to build peer connections\, reducing isolation and encouraging togetherness. It’s a non-judgemental\, open and go-at-your-own-pace environment. \nThe next session will take place on Wednesday 18 June from 6:00pm.  \nSign-ups will receive an art kit\, completely free of charge! \nIf you’re a caregiver or parent\, you’re very welcome to join with your teen. Teens who are friends or family members of those affected by TSC are also welcome\, as TSC affects entire groups. \nIf you feel that you benefit from the events\, please consider donating to Sarah’s TSA fundraiser. \nSarah is a professional artist\, based in Bournemouth. She’s a visiting lecturer at Arts University Bournemouth (AUB) – BA and MA Animation. \nSince 2017\, Sarah also creates and runs online art therapy styled creative sessions\, encouraging a sense of play through which new skills are gained\, whilst encouraging a sense of community and inclusivity. \nClick here to register for this event
URL:https://tuberous-sclerosis.org/event/tsc-teens-art-club-18-june-2026/
CATEGORIES:Community Event
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