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X-WR-CALNAME:The Tuberous Sclerosis Association
X-ORIGINAL-URL:https://tuberous-sclerosis.org
X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;VALUE=DATE:20240420
DTEND;VALUE=DATE:20240421
DTSTAMP:20261009T020503
CREATED:20230726T085404Z
LAST-MODIFIED:20240321T121124Z
UID:92067-1713571200-1713657599@tuberous-sclerosis.org
SUMMARY:Outlook 2024 - Sat 20 April (Cardiff)
DESCRIPTION:Saturday 20 April 2024\, 10am – 5pm\nCardiff Masonic Hall\, Cardiff\nClick here to book your free tickets for Outlook 2024Outlook is the TSA’s group for adults who are mildly affected by TSC. Come along to make new friends\, share experiences about TSC\, and attend interesting workshops and talks.\nOutlook 2024 takes place on Saturday 20 April at Cardiff Masonic Hall\, 10am – 5pm. \nAll adults mildly affected by TSC in the UK will receive a warm welcome at Outlook\, whether it’s your first time at Outlook or you come every year. If you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nWe know that seeing all of the talks might feel daunting\, but don’t worry! Everyone who attends Outlook can go at their own pace and get as involved as they want. If you’d rather take a step back\, that is no problem at all. However\, we’ve now got a great agenda for Outlook 2024: \nOutlook 2024 agenda\n\n10:00 – 10:30. Welcome with tea and coffee\n10:30 – 10:45. Icebreaker session\n10:45 – 11:00. Introduction and update from the TSA\n11:00 – 11:45. Researching sleep in TSC (Dr Stacey Bissell)\n12:00 – 13:30. Lunch\n13:30 – 14:30. TSC research update (Dr Chris Kingswood)\n14:30 – 15:00. Coffee break\n15:00 – 16:30. TSC and Art with Sarah Goy\n16:30 – 17:00. Discussions continue\, close\n\nWhat is Outlook?\nOutlook is an event hosted by the TSA\, where adults mildly affected by TSC can come together and connect. The next Outlook is taking place on Saturday 20 April 2024 at the Cardiff Masonic Hall. \nOffering a relaxed\, open and understanding environment of the impact that living with TSC can have on individuals and families\, Outlook is one of the longest-running events hosted by the TSC. \nAt Outlook\, you can be in an environment of over-18s who understand the impact that being mildly affected by Outlook can have on daily life. You can expect things like: \n\nOpportunities to meet and get to know the TSC community mildly affected by TSC\nA chance to hear about the work of the TSA and to speak to the team\nWorkshops and talks on topics that can help people mildly affected by TSC\n\nFood\, drinks\, tea and coffee is provided to all attendees. \nWhen and where will Outlook 2023 take place?\nOutlook 2023 will take place on Saturday 22 April 2023 in Leicester\, at the conference venue Devonshire Place. An agenda will be shared closer to the date with specific timings\, but Outlook typically starts at 10:30am and ends at 5pm. \nDevonshire Place is well located\, just two minutes walk from Leicester train station and with a large carpark. \nIs there an agenda for Outlook 2023?\nWe’ve got a great agenda organised for Outlook 2024: \n\n10:00 – 10:30. Welcome with tea and coffee\n10:30 – 10:45. Icebreaker session\n10:45 – 11:00. Introduction and update from the TSA\n11:00 – 11:45. Researching sleep in TSC (Dr Stacey Bissell)\n12:00 – 13:30. Lunch\n13:30 – 14:30. TSC research update (Dr Chris Kingswood)\n14:30 – 15:00. Coffee break\n15:00 – 16:30. TSC and Art with Sarah Goy\n16:30 – 17:00. Discussions continue\, close\n\n\nIf you’re not comfortable taking part in anything at Outlook\, there’s no pressure at all! Everyone at Outlook is encouraged to do things at their own pace and preference. If you don’t want to participate in any session\, it’s no problem. \nDoes the TSA organise accommodation?\nThe TSA does not organise accommodation for Outlook. However\, Outlook 2024 is taking place at the Cardiff Masonic Hall\, which is very close to lots of hotels for all budgets including: \n\nPremier Inn Cardiff City Centre (2 minutes by foot)\nPark Inn by Radisson Cardiff City Centre (4 minutes by foot)\nLeonardo Hotel Cardiff (5 minutes by foot)\nPremier Inn Cardiff Bay Hotel (30 minutes by foot\, 10 minutes by car)\nTravelodge Cardiff Atlantic Wharf (30 minutes by foot\, 10 minutes by car)\nFuture Inn Cardiff Hotel (30 minutes by foot\, 10 minutes by car)\n\nPlease note: The TSA does not hold any endorsements or agreements with any accommodation or hotel. \nDoes the TSA offer care support at Outlook?\nThe TSA does not offer care support at Outlook. If you require a carer at Outlook\, we kindly ask that your carer comes with you. \nWhat sort of people go to Outlook?\nOutlook is for adults (aged 18+) who are mildly affected by TSC\, but others are welcome too. This includes parents of children with TSC and carers. \nIf you’re coming to Outlook for the first time\, let us know and we’ll put you in touch with others who have been in the past so you can feel more comfortable. \nOutlook is a friendly and understanding space. You’ll be given a very warm welcome\, from people who understand the impact that TSC can have on individuals and families. Whether you come to Outlook every year or if this is your first time\, we’ll be delighted to have you there! \nI want to help with Outlook\nWe’re always looking for ideas and advice from the TSC community on how to shape all of our events\, including Outlook! If you have any suggestions\, be sure to let us know by contacting support@tuberous-sclerosis.org. \nIs there parking available?\nMasonic Hall Cardiff recommend that people driving to Outlook park at the St David’s Shopping Centre\, which is just 300 yards from their front door. There is also a Cardiff Park and Ride system in place. \nMore details can be found on the Masonic Hall’s website here. \nI can't afford to go to Outlook\nTSA Support Fund might be able to help. Open to anyone who lives with TSC and receives benefits\, the TSA Support Fund offers small grants to people when the financial impact of TSC becomes too much – including with grants towards paying for attending Outlook. \nThe TSA wants all adults mildly affected by TSC to attend Outlook if they’d like to\, which is one of the reasons why Outlook tickets are free. Although the TSA always tries to keep the financial impact of Outlook as low as possible\, the costs associated with Outlook – including travel\, accommodation and food – can quickly add up. \nIs there anything planned for the evening before Outlook 2024?\nOutlook officially begins on Saturday 20 April 2024 at the Cardiff Masonic Hall. However\, an unofficial evening meal organised by Outlookers themselves will take place on the Friday evening at a local restaurant. If you’re interested in joining this unofficial meal\, please email us (support@tuberous-sclerosis.org) and we’ll connect you with the meal organisers. \nPlease note: No TSA staff members will be on-hand before or after Outlook. The TSA holds no liability for unofficial meet-ups\, organised meals or connections made as a result of the Outlook event or at any time during the weekend. \nThe TSA provides services like Outlook only thanks to donations. If you’re able to do so\, please give to the TSA so that we can continue to be here for everyone with TSC
URL:https://tuberous-sclerosis.org/event/outlook-2024/
CATEGORIES:Community Event
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