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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTAMP:20261009T221627
CREATED:20220112T112121Z
LAST-MODIFIED:20220119T094234Z
UID:88161-1649268000-1649271600@tuberous-sclerosis.org
SUMMARY:TSC and epilespy
DESCRIPTION:Around 4 in every 5 people affected by TSC also have TSC-related epilepsy. Join us for this virtual session\, focused on one of the most common aspects of TSC\n \nEpilepsy can have a major impact on people’s lives\, whether mild or severe. During this free event\, Dr Sam Amin (Consultant Paediatric Neurologist\, University of Bristol) will discuss a wide range of TSC-related epilepsy topics\, including: \n\nThe most common epilepsy questions received by the TSA\nTreating and managing TSC-related epilepsy\, including which epilepsy medicines are currently in development\nThe latest in TSC-related epilepsy research\n\nThe virtual event will take place through Zoom on Wednesday 6 April\, 6pm – 7pm. Free registration ends 5pm\, 6 April. \nFor any questions or comments\, contact support@tuberous-sclerosis.org.
URL:https://tuberous-sclerosis.org/event/tsc-epilepsy-2022/
CATEGORIES:Community Event
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DTSTART;TZID=Europe/London:20220423T100000
DTEND;TZID=Europe/London:20220423T163000
DTSTAMP:20261009T221627
CREATED:20220112T095931Z
LAST-MODIFIED:20220203T094814Z
UID:88157-1650708000-1650731400@tuberous-sclerosis.org
SUMMARY:Outlook 2022
DESCRIPTION:Are you an adult mildly affected by TSC? Come to Outlook – a chance to make new and meet old friends\, share experiences about TSC and attend interesting workshops and talks. \n \nAll adults mildly affected by TSC will receive a warm welcome at Outlook\, no matter where you are from in the UK or whether it is your first time at Outlook or you come every year. \nIn 2022\, we are delighted to bring back a face-to-face Outlook event\, with Outlook 2022 taking place at the Radisson Blu Hotel\, Durham! \nAs with Outlook events\, for this year we have a varied and worthwhile agenda for adults mildly affected by TSC: \n\n10:00 – 10:45: Welcome and introductions\, plus icebreaker\n10:45 – 11:00: An update from the TSA\n11:00 – 11:15: Break\n11:15 – 12:45: Emotional Freedom Technique workshop with Heather Graham (Ready for Change Now)\n12:45 – 2:00: Lunch\n2:00 – 3:30: Looking After Our Sleep (Kerry Davies\, The Sleep Charity)\n3:30 – 3:45: Coffee break\n3:45 – 4:30: Challenges and opportunities of living with TSC\n4:30: Plans for Outlook 2023\, thank you and close\n\nMore information about Outlook can be found the main Outlook page here.
URL:https://tuberous-sclerosis.org/event/outlook-2022/
CATEGORIES:Community Event
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