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X-WR-CALNAME:The Tuberous Sclerosis Association
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X-WR-CALDESC:Events for The Tuberous Sclerosis Association
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DTSTART;TZID=Europe/London:20211110T193000
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DTSTAMP:20261010T035216
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UID:87465-1636572600-1636576200@tuberous-sclerosis.org
SUMMARY:Virtual event: Introduction to supporting siblings
DESCRIPTION:Do you want to find out more about supporting siblings whose brothers or sisters live with TSC?\n\n \nThe TSA is delighted to host ‘Introduction to supporting siblings’\, a special virtual workshop organised in partnership with siblings charity\, Sibs. \nPresented by Sibs\, this workshop is intended for parents and guardians of children living with TSC who want to know more about supporting siblings. The focus of the workshop will be on supporting siblings. This workshop is not for professional workers. \nThe workshop will give parents and guardians an insight into siblings’ needs and experiences\, and gives some ideas for giving siblings attention \n‘Introduction to supporting siblings’ is free to register and attend. Unlike other TSA events\, this event is presented by Sibs\, with the TSA facilitating the opportunity for the workshop to be focused on the TSC community. \nAttendance is limited to only a very small number of attendees – do not delay registering\, to help guarantee your place. \nOnce registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and skin can be found here.
URL:https://tuberous-sclerosis.org/event/supporting-sibs/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/png:https://tuberous-sclerosis.org/wp-content/uploads/2021/10/sibsslate.png
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DTSTART;TZID=Europe/London:20211118T190000
DTEND;TZID=Europe/London:20211118T200000
DTSTAMP:20261010T035216
CREATED:20211015T130557Z
LAST-MODIFIED:20211118T104049Z
UID:87372-1637262000-1637265600@tuberous-sclerosis.org
SUMMARY:TSA Annual General Meeting 2021
DESCRIPTION:The TSA’s Annual General Meeting (AGM) 2021 will take place Thursday 18 November\, 7pm – 8pm. The AGM will take place virtually\, via a video conferencing platform. The AGM is a great opportunity to hear from the TSA and to make sure that we understand what is most important to you. \nTo attend the AGM 2021\, please register your place below. Tickets will be available until 5pm on Thursday 18 November. \nTSA AGM 2021 materials can be read here: \n\nAGM 2021 Trustees letter\nAGM 2021 Notice\nA Year in Review: 2020 (including the latest Treasurer’s Report\, Strategic Report\, the 2020 Summarised Statement of Financial Activities and the Balance Sheet for 2020)
URL:https://tuberous-sclerosis.org/event/agm2021/
CATEGORIES:Community Event
ATTACH;FMTTYPE=image/jpeg:https://tuberous-sclerosis.org/wp-content/uploads/2020/03/tsa-slate.jpg
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DTSTART;TZID=Europe/London:20211123T180000
DTEND;TZID=Europe/London:20211123T190000
DTSTAMP:20261010T035216
CREATED:20211018T094655Z
LAST-MODIFIED:20211018T094655Z
UID:87436-1637690400-1637694000@tuberous-sclerosis.org
SUMMARY:Virtual event: TSC and lymphangioleiomyomatosis (LAM)
DESCRIPTION:Virtual event: TSC and lymphangioleiomyomatosis (LAM).\n \nAround three in every 10 women who live with TSC\, and a very small number of males\, also develop complications in the lungs\, called ‘lymphangioleiomyomatosis’ (or ‘LAM’). The impact and severity that LAM can have on a person varies significantly amongst individuals living with TSC\, with problems ranging from shortness of breath and coughing to chest pain or a collapsed lung. \nIn this free virtual event\, we welcome Professor Simon Johnson (LAM National Centre Director) to discuss the condition in more detail\, what it can mean for people who live with the condition day-to-day\, and what next steps people with TSC and LAM may have. \nTaking place on Tuesday 23 November\, 6pm – 7pm\, this free event will also include a question and answer section – giving you the chance to put your LAM questions to Professor Johnson. \n‘TSC and LAM’ is free to register and attend. Once registered\, you will receive details through email on how to join the session\, within 24 hours of the event taking place. \nMore information on TSC and LAM can be found here\, or by contacting the TSA Support Line.
URL:https://tuberous-sclerosis.org/event/tsc-and-lam/
CATEGORIES:Community Event
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