Sunday 11 February marked International Day of Women and Girls in Science, a chance to celebrate the immense contributions of women and girls within the scientific community.   The TSA works very closely with many women across the world in TSC medicine and research. We’ll never underestimate their work for the TSC community. We're delighted
Cannabidiol (brand name Epidyolex) is an important medicine option for people with hard to treat seizures associated with TSC. The journey of this and other treatments is the result of lots of hard work - especially for TSC researchers Those involved in Epidyolex included the company that made it (GW Pharma Limited, now part
It is with great sadness that the TSA must announce the passing of Tom Carter, TSA Trustee and Lifetime President, following a short illness Tom was a vital member of the TSA team, from the charity's early years right through to the present day. Tom held various important positions within the charity and can
The TSA is proud of our position as a leader in global TSC research. However, research can only happen thanks to amazing people in the TSC community taking part There are currently lots of new opportunities to get involved in TSC research. To make it easier to understand them all, we've listed them all
The TSA is seeking a highly experienced, confident and capable Head of Fundraising to provide leadership and direction on all aspects of income generation. This is an exciting time to join a small but hugely impactful charity where you will make a real difference to the lives of thousands. The chosen candidate will be
As part of our work to highlight Global TSC Awareness Day and Global Mental Health Awareness Week, both of which started on 15 May, we asked the TSC community to share their experiences of TSC and mental health challenges. Rebecca, who is aged 24 and was diagnosed with TSC when she was five, took
Everolimus granted European Licence for renal AML Everolimus (trade name Votubia®) has been approved by the regulators for use in the European Union for the treatment of angiomyolipomata (AMLs) in adults with TSC, when embolisation or surgery is not immediately needed. Everolimus belongs to a class of drugs known as mTOR Inhibitors that have been
Here are 31 Facts about TSC: 1.   TSC is genetic disorder that causes tumors to form in vital organs. 2.   It is estimated that TSC affects 1 in 6,000 births. 3.   More than 1 million people worldwide have TSC. 4.   TSC is the leading genetic cause of epilepsy and autism. 5.   TSC is as common
Common questions about our research The most common questions about how the Tuberous Sclerosis Association funds research into Tuberous Sclerosis Complex The Tuberous Sclerosis Association (TSA) is a world-leader in funding and driving research into Tuberous Sclerosis Complex (TSC). We receive a lot of questions about how
History of the TSA The Tuberous Sclerosis Association (TSA) has a long and proud history of supporting the Tuberous Sclerosis Complex (TSC) community in the UK. Launching in the 1970s as a round-robin letter for a small number of TSC families, the TSA has since grown into the
Tuberous Sclerosis Association Grant Round 2013 The TSA invites research applications for the following types of funding: Junior Fellowships Project Grants If you have any questions regarding the application process, please e-mail research@tuberous-sclerosis.org Junior Fellowships TSA Fellowships awarded to outstanding scientists who are in the early stages of their career (no more than 8 years of
Early years and childhood Advice on early years and childhood when living with Tuberous Sclerosis Complex When a child is diagnosed with Tuberous Sclerosis Complex (TSC) it can be a confusing, stressful and overwhelming time for everyone involved. It is common for parents and loved ones to
Adolescents and transition to adult life Advice on adolescents and transition to adult life when living with Tuberous Sclerosis Complex Being an adolescent and growing into a life of adulthood can be a daunting and stressful time for anyone. For people living with Tuberous Sclerosis Complex (TSC),
TSA-funded research The Tuberous Sclerosis Association's heritage and ongoing work in funding research into Tuberous Sclerosis Complex The Tuberous Sclerosis Association (TSA) is proud of our long-standing history of being a world-leader in funding important research into causes, diagnosis, management and treatment for Tuberous Sclerosis Complex (TSC).
Research governance and policies How the Tuberous Sclerosis Association governs the funding of research The Tuberous Sclerosis Association (TSA) offers a wide range of opportunities for researchers to receive funding for work that aims to improve our understanding of Tuberous Sclerosis Complex (TSC), in order to ultimately
For the very first time we have taken our Tea and Scones campaign on tour around the internet, to help raise awareness of TS. We invited five brilliant bloggers to share their take on the theme of Tea and Scones across TS Awareness Week. Please visit their blogs, comment on the posts and share them with your
Education Ensuring that people living with Tuberous Sclerosis Complex have access to the best and most appropriate education for them as possible Negotiating and understanding education systems can be a daunting for anyone. For families affected by Tuberous Sclerosis Complex (TSC), this confusion can be sometimes even
When Everolimus was licensed for the treatment of TSC more than 2 years ago, no-one imagined that years later we would still be fighting for access in the face of a near total failure in NHS funding in England. Â Â Â Over the past year and a half, the TSA has been supporting the development
1 April, 2015 | By Shaun Lintern NHS England has been accused of misleading government ministers and labelled a ‘dysfunctional organisation’ over delays in drawing up a prescribing policy for drugs to treat rare diseases. Health charities and Liberal Democrat MP Greg Mulholland have also accused the government of refusing to intervene despite ministers having
When Everolimus was licensed for the treatment of TSC none of us imagined that years later we would still be fighting for access. Â Over the past 2 years, the TSA has been supporting the development of a service specification and prescribing policy in the face of massive and unnecessary bureaucratic delays. Â In the
International TSC Research Conference 2020 Community Afternoon Blurb to go here Outlook is one of the TSA’s most important and fun events of the year, where adults mildly affected with TSC from across the UK come together to make new (and meet old) friends, share experiences about
